Jump to content

marciab

Advanced Members
 View Profile  See their activity

  • Posts

    698

  • Joined

  • Last visited

  • Days Won

    1

 Content Type 

Profiles

Forums

Events

Blogs

Latest Celiac Disease News & Research:

Everything posted by marciab

  1. marciab
    I haven't tried Sunlight, but I am very sensitive to all dish soaps and can only use Dawn or Joy relugar. The Ultra takes the skin off my hands ... Marcia
  2. marciab
    I can't tolerate vinegar either, so I've been looking for salad dressing and sauce recipes. This one is good ... Tahini / garlic dressing 2 - 3 cloves garlic pinch sea salt 2 tbsp tahini 1 lemon, juice only 1 tbsp EVOO 1 - 2 tbsp + water for desired consistency Press garlic in garlic press and add to other ingredients. The original recipe...
  3. marciab
    I had to reduce my Klonopin for myoclonus after 7 months on the diet. It was starting to make me feel completely drugged out during the day. I was too wiped out to hold my head up ... However, since I have been sick with CFS since 1990 and was accustomed to feeling dragged out and sleepy, if the Klonopin had become too strong any sooner than 7 months, I...
  4. marciab
    I wasn't tested (I won't go there), but everytime I ate or drank anything with dairy in it my stomach would go into spasm or I would get nauseas. Lactaid did not help ... Having said that, for some reason I have been able to drink kefir made from organic cow's milk ever since going gluten free. This is really good with frozen fruit ... And a good probiotic...
  5. marciab
    Bully, I had to google felafil ... I didn't find out whether or not millet would work, but I found this recipe .. tee hee ... It looks too good to pass on .. This one uses chick peas ... And one other person posting on the thread I got this from, bakes hers instead of frying them ... I would imagine, I'm not much of a cook myself, that millet...
  6. marciab
    Laura, Thanks. That's a really good point ... Marcia I almost forgot, millet makes a good substitute for cracked wheat in tabuli too ... I've been cooking it just till it is no longer crunchie, but I am thinking of trying to just soak it in boiling water for 30 minutes next time ...
  7. marciab
    Happygirl, Thanks for the links on millet ... The problem I am having is that some sites DO say that millet can be a problem for people with celiac disease since it contains gliadin. The reason this caught my eye is that the antibody test for celiac is actually looking for antigliadin ... Open Original Shared Link Open Original Shared...
  8. marciab
    I used to eat millet regularly but just stopped recently because I read it has gliadin in it. But, I just googled millet gliadin again, and found conflicting reports ... Does anyone have the latest ? I eat a lot of stir frys and I like the taste and texture. It tasted better when I rinsed it thoroughly first though. Marcia
  9. marciab
    Pauliina Thanks for replying. It's like 4 am here and my kidney stone pain woke me to let me know it is still there ... ow ... Thank God for Percocet ... Have you checked out that website for post exertional fatigue ? It goes into all the reasons that could be causing it. There is a lot of info there, but that doctor does a good job of explaining...
  10. marciab
    Thanks for adding this. And of course, you are right. Unfortunately, some damage is permanent. BUT, since we are dealing in unchartered waters here and no one knows how much gluten damage can be repaired, I have been looking into providing all the nutrients the brain / body needs to heal itself. These websites are a good source of info on what to...
  11. marciab
    Actually I was just looking for research data to back up the idea that Purkinje cells are damaged in other parts of the body than the brain. Hence the name of the thread ... Dr. H proved that gluten damages the brain causing ataxia AND since my ataxia and heart problems cleared up (or have at least become unnoticeable) at the same time, I was wondering...
  12. marciab
    I found this again today ... Gluten sensitivity as a neurological illness M Hadjivassiliou, R A Gr
  13. marciab
    Vydorscope, I said this previously, but let me just add that I feel like this for 2 - 3 days after being active a full day. And it always starts about 24 - 28 hours the day after. Basically I am a zombie ... Albeit a functional zombie ... Just don't ask me to make change. It's not nearly as bad as it was. KNOCK ON WOOD I used...
  14. marciab
    Thanks Karen ... How would I PM someone without having their post to link to it for me ??? Marcia
  15. marciab
    Post exertional fatigue is a hallmark symptom of CFS, but so are the other symptoms that I no longer have. The best way I know to describe it is like your brain and your body have gone on vacation after having worked a month of double shifts. This article is about CFS and post exertional fatigue, but it also gives a really in depth look into how...
  16. marciab
    Ursula, Thanks ... I didn't realize you and I had so many of the same symptoms. I guess it is time for me to look into what foods are causing my lymph nodes to swell. And into what thyroid / adrenal problems are behind the fatigue. These symptoms have improved, so I keep hoping I am on the right track. Can swollen lymph nodes be caused by environmental...
  17. marciab
    Many people use the term Fibromyalgia and CFS interchangebly to describe two different sets of symptoms. The way I was taught is that Fibromyalgia is pain in the connective tissues (areas near the joints). And CFS included flulike symptoms like swollen lymph nodes, brain fog, headaches, an array of nuerological symptoms and overwhelming fatigue...
  18. marciab
    Oh, sorry, I read that wrong. The MUGA is for monitoring the LBBB. So, that is what they mean by heart racing. I have actually been able to walk my dogs every day for 20 - 30 minutes for 6 weeks in a row. Previously, even walking my dogs 1 - 3 days in a row would have made me sick with exhaustion (post exertional fatigue) and a flu like feeling...
  19. marciab
    I'd have to do a lot of reading in order to understand what all the different tests I had meant. I had a complete work up in the hospital years ago in order to rule out a heart attack. Even the one where they run a tube from your groin into your heart. So, we are certain it is a LBBB. BTW, These do show up on an EKG. They are blips in the rythym. ...
  20. marciab
    Vydorscope, My LBBB has been proven by the MUGA, etc. too. I'm still in the process of understanding how the body works so, I'm not sure what symptoms I had are attributed to LBBB. Or what all tests they did on me prove the LBBB. YET ... But, I do have to have cardiac approval prior to any procedures where they put you out. I had all the...
  21. marciab
    Since eliminating gluten, etc. my ataxia, myoclonus and insomnia have been completely resolved. My vision is no longer going out of focus when I walk. I no longer feel like the floor is moving out from under me when I stand in one place (orthostatic hypotension). And my brain fog and fatigue have dramatically been reduced too, but not completely. I'm guessing...
  22. marciab
    I haven't read this yet, but my sister just called me this morning to tell me about the article. She knows I am gluten free and that I have made some major improvements. So while she knows gluten was the cause of my problems, this article really helped her get a better understanding of what all gluten can do ... I was quite impressed with what she quoted...
  23. marciab
    I don't have a concrete answer for you, but I am having similar pain. I had a CT also which was negative. The last GI I saw for this said it was either Fibromyalgia pain or IBS. (Not that this diagnosis helps anyone, just telling you what he said ). My pain worsens when my belly is full, so I make sure I have BM's every day. Have you tried adding...
  24. marciab
    Krista, Thanks for the B12 reminder. I give myself shots, but I keep forgetting them. I really need to track of it this time and see how these affect me. Marcia
  25. marciab
    Krista, Wow .. you can read ... That's great ... I'm still struggling, but I am comprehending things much better. I just have to read everything several times. I'm amazed at all of this still too. And not quite sure what to do with my new self. My daughter went off to college this year and for the first time in 17 years I am actually...
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.