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marciab

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Everything posted by marciab

  1. marciab
    You have a good point. I started feeling drugged all day long from my Klonopin after being on the diet for 7 months. I was only on .5 mg, so it wasn't the dosage. I actually called the pharmacist and had them call the manufacturer to make sure they had given me the right dosage ... I had no idea this could happen ... Marcia
  2. marciab
    I noticed you can't do spices. I couldn't either for awhile. Have you ever tried drying papaya seeds in the oven and grinding them up in a pepper grinder ? They taste a little like pepper, but are actually digestive enzymes ... just in case you want to try it . You heat them at 250 degrees for 1 - 1 1/2 hours, then let them cool and fnish drying out on a...
  3. marciab
    Not trying to be a hog here, but I didn't see any reference to cold or soft treats like soy, corn, dairy free ice cream and a CHEESE CAKE ... yum ... can you post the recipes here first ? marcia
  4. marciab
    I'd like a book with definitions and pictures of foreign ingredients, like agave, stevia, nutritional yeast vs regular yeast ... The form these come in would be good too. Liquid vs powder. Also a substitution chart for things like xanthum gum, guar gum, etc. Nice to have if you run out of something ... A section on the best cooking utensils would...
  5. marciab
    You can always do this a little at a time. Start buying only gluten free foods, but still eat the ones you currently have in the house. Eventually, you'll run out of gluten foods ... OK, hopefully, you don't have a pantry full of gluten filled foods Don't be hard on yourself. It's not easy giving up gluten, but you can do it. I am just now...
  6. marciab
    Moonlite - If his problem is gluten ataxia, meaning he can hardly walk and loses his balance, there is hope. I started walking normally after being off gluten for 1 year. It just happened. I had been using a motorized cart in the grocery store for the past 16 years ... I walk normal all the time now .. I still can't do any aerobics without getting fatigued...
  7. marciab
    Thanks. It is just too much work to keep up with which companies are using separate lines for gluten free item. And I am too sensitive to keep risking getting glutenned. Are there any completely gluten free facilities out there where no gluten ever gets in ? BTW: I reacted to the Back to Nature rice crackers. Jerked myself awake several...
  8. marciab
    I just checked my Hershey's bar and my Back to Nature rice crackers and they don't say whether or not they are produced in a facility that produces food with wheat. Are these safe ? Are the labelling rules in effect yet ? I'm pretty sure Back to Nature produces some crackers with wheat. I see some people here eat these without a problem, but I'm...
  9. marciab
    "For muffins I use a mix that I measure ahead of time. Its 2 cup rice flour (we use brown for the extra vitamins and protein), 2/3 cup potato starch, 1/3 cup tapioca starch and 3 tsp xanthan gum. I find this works good for most baked goods. Yes, I get the same satisfaction from it being my own. " Can you tell me which brand of potato starch, tapioca starch...
  10. marciab
    I'm interested in this too, but y'all know so much more than me already I couldn't add anything. I tried grinding rice in my coffee bean grinder last week and even though it looked ok, it was too heavy. My chocolate muffins taste good, but they didn't rise and they are heavy. I hate the thought of spending $200 on a grinder too. Would a used one...
  11. marciab
    "She said there is 2 schools of thought " a little gluten won't hurt you" sort of attitude and the die hard, "don't let gluten near me" School of thought. " It is NOT really a "school of thought". It is a matter of real life experience. Your friend needs to understand that YOU are very sensitive to gluten ... Her husband is evidently going to have...
  12. marciab
    I don't watch the show much anymore, but when I did I remember most of Elisabeth's segments being something that is pertinent in her life. Usually light topics ... like how to shop on the cheap, baby items, didn't she do a segment on maternity clothes ? , new mom info, etc. Elisabeth is like any other NEWBIE to celiac. Just happy to be able to drink...
  13. marciab
    RATS .. she didn't mention nuerological symptoms, just digestive ... I heard they have a blog though ... I love that she felt better on survivor without eating ... Most of us can relate to that
  14. marciab
    It would probably be a good idea for those who have been diagnosed via biopsy or blood work and have nuerological problems that have resolved by going gluten free to email Elisabeth too .... Thanks ... marcia
  15. marciab
    Jess, I looked at the schedule on their website, but didn't see this ... I'm sure I am missing something .. I wrote a letter to Elisabeth and included info on my experience and nuerological celiac ... Marcia
  16. marciab
    Paronoid here too... My daughter is home for the next couple of days and we have a gluten filled birthday cake in the fridge. I bought it ready made though. I felt weird about feeling so paranoid until my daughter reminded me how sensitive she is to peanut butter, cats and other animals. She will get hives immediately around bunnies. It helps to be...
  17. marciab
    Better yet. Let's make all the contestants doctors !!! I would like for them to be zapped on a regular basis too so they know what seizures feel like ... and put weights on their feet so their legs are heavy ... and feed them caffeine or something so that they have brain fog ... THis is good .. revenge of the celiacs ... marcia
  18. marciab
    Thanks, I found one 27 miles from me ... I had no idea this could be so complicated ... marcia
  19. marciab
    Brian, Thanks again ... I wasn't sure so I checked and demerol comes in a liquid and can be swallowed or injected... Tarnalberry, Thanks for replying ... Can any pharmacy compound meds ? Can that be done at a hospital ? I don't want to chance taking a med that would make me feel worse. Thanks for your replies ... I was wondering what...
  20. marciab
    You have to do what is right for you. Not what anyone else wants you to do. If food is making you ill, then you have to stop eating it regardless of how others egg you on to eat what they are eating. I went through this too, but now my family is supportive. They don't want to see me sick again. As far as going vegan, it is not always an option...
  21. marciab
    I get a tons of help from people on this board. Today Brian helped me by filling me in on what to expect as far as gluten-free,DF,SF,EF, CF medications ... And Judy in Philly told me I had a msg from someone I had been waiting for ... And in return, I posted on the Daily Strength seizure board about celiac disease ... hoping to save someone from what...
  22. marciab
    Brian, Thanks ... I really hated the morphine though and was hoping there was something else ... Sounds like I will be fine with an IV while I am there ... Just what to take afterwards will be a problem .. Judy, My clonazepan (sp) had dairy in it. I am going through a major learning curve here with meds. Thankfully, my docs are...
  23. marciab
    Sorry, I don't know of a caprylic adic that is CF,DF,EF,etc. but it is made from coconut oil and you can buy coconut oil and add it to your food or eat it by the spoonful. Eventhough, I can't handle coconut oil, I can eat raw young coconuts for some reason ... These are tasty, but a pain to crack open ... I am having to stick to all natural remedies...
  24. marciab
    What does compounding mean ? Can anyone have this done ? Who does it ? is this common ? I'm having some problems with all this too ... sorry you aren't feeling well sophie ... marcia
  25. marciab
    Hi Nini I see you popped in to say you were lurking ... I hope you feel better soon .... I'm lousy at the sentimental stuff, but wanted to let you know I am always happy and very grateful to see you and the other regulars / old timers here .... Marcia
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