marciab
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Latest Celiac Disease News & Research:
Everything posted by marciab
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ARCHIVED Which Pain Medications Are gluten-free, Sf, Df, Cf, Ef ?
marciab posted a topic in Gluten-Free Foods, Products, Shopping & Medications
OK, Today I am watching to see if I am bleeding too heavy, because my instructions are to go to the ER if I do ... been there done that ... no fun ... this time, they may put an end to my suffering permanently (you know what I mean ) since I now have a history of excessive bleeding. What do you who are also intolerant to corn, soy, dairy, egg and... -
ARCHIVED Found A Paper On The Net--so Informative
marciab replied to darlindeb25's topic in Publications & Publicity
Thanks for posting this. This one is definitely easy to read ... As one of the old folks here, I was looking for healing info ... "Older patients may respond to the gluten-free diet but not completely heal. Why not? Well, they may be healing fully further down the small intestine but not in the area near the stomach, which has been exposed... -
ARCHIVED Martha Stewart Gluten Free Segment
marciab replied to floridanative's topic in Publications & Publicity
I really enjoyed watching someone bake with all those ingredients that I had never seen before. I'm not much of one to experiment all of my own ... Do they have something like this on any of the cooking channels ? Marcia -
ARCHIVED Welcome Back Patti (jerseyangel)!
marciab replied to lonewolf's topic in Introduce Yourself / Share Stuff
I was just wondering how you were doing ? I started to hijack a thread and decided not too How long has it been since your surgery ? Are you up yet ? Back to vacuuming ? It took me forever to get over my gall bladder surgery. They took it out thinking it might help my stomach pains. DUH !! I was still eating gluten so the surgery basically... -
ARCHIVED I Need Your Top Ten Dining Out Questions/concerns
marciab replied to tiffjake's topic in Gluten-Free Restaurants
Y'all have pretty much convered what I would be looking for. What about the chef's apron ? Can they change after baking something covered in gluten ? Cakes, breads, etc. Also, I'd like to see some exciting gluten-free / allergen free items on the menu. Like the hazel nut crusted fish someone posted recently. Or the baby cakes brownies. I'm tired... -
My ataxia did not go away until I had been gluten-free for 1 year (September 2006), but my myoclonus had gotten better 5 months sooner ... so I am hanging in there to see what else will clear up ... I just figured out that the Kettle chips I was eating were cross contaminated and causing "D", so I may have another 2 years to heal ... I've been...
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Good luck today. It dawned on me last nite that you could have slipped some plain flour (or some with sugar in it) onto her crackers or popcorn and she would not have noticed it either. Two year olds are sooo easy to fool. You can forget it when she is 19 marcia
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ARCHIVED Major Gi Symptoms A Must To Be Considered Sensitive?
marciab replied to Michelle M...'s topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I had myoclonus, ataxia, severe fatigue, brain fog and pain that started back in 1990. The myoclonus ataxia were just eliminated last year by getting the gluten out of my diet. I was diagnosed with CFIDS / FM and told I would have to live with it ... You are lucky to have such an enlightened doctor... I only had mild IBS from 1975 - 2004, then... -
ARCHIVED What Are You Craving?
marciab replied to angel-jd1's topic in Gluten-Free Foods, Products, Shopping & Medications
Pamela's gluten-free spicey ginger cookies warmed with organic peanut butter ... -
That's great. I am a member of a couple of other boards too, CFS and WEMOVE, and I have been trying to get some of them to try going gluten free. I'm finding is soooo frustating to know how life changing a diet change can be and yet feel like no one is listening. That's interesting that your nephrotic syndrome can be controlled by gluten. My daughter...
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ARCHIVED Help My Daughter Has Dh And I Need Her To Have A Reaction Now!
marciab replied to Electra's topic in Dermatitis Herpetiformis
You've probably already thought of this, but how about trying different gluten sources. Like a green drink with wheat grass, whole wheat pasta, rye crisp or bread, something with barley ... marcia -
ARCHIVED Constipation
marciab replied to hathor's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
"Amount of fat has no impact on my bowels -- unless I have too much and I get diarrhea, cramps, etc I have experimented with different levels of fat in the diets I've followed during my life and have yet to hit some happy medium ... I do have real problems digesting fat since I've been an adult; I find I feel better without the stuff. " Sounds like... -
I'm not sure which states have Cracker Barrell's, but I ate there for about a month and didn't have any severe symtpoms from gluten... I ate the roast beef, carrots, green beans and applesauce. It is available on their carb watchers menu. Also, Red Lobster was ok. You picked a great time to come to FL. I live on the coast and it is 80 degrees...
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Thanks for posting these ... New to LI - Were you saying that my health food store might process the sugar for me ? And does this much sugar make it too sweet ? I was thinking I would need to cut it with potato or tapioca starch to be more like regular powdered sugar. I never got anywhere with this though ... I am looking forward to making...
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These look really good, but can you tell me a substitute for powdered sugar ? I can't have corn starch and am looking for an icing ... Thanks marcia
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ARCHIVED What Products Have You Pitched -after Gluten Free?
marciab replied to Lisa's topic in Gluten-Free Foods, Products, Shopping & Medications
Just wanted to add and check with y'all too ... I was having "D" every morning and finally have stopped that ... I gave up my Kettle lightly salted baked potato chips and Back to Nature rice crackers ... Wah! I don't want to have to try these again, so has anyone else had a problem with these ... Thanks Marcia -
As the mother of a teenage daughter who has worked in the food industry for 4 years, I would not trust any restaurant. Much less a fast food restaurant. Even though my daughter understands how food allergies work, she is only there for the money and her mind is on other things (boys) most of the time. And some places are so busy the waitresses hardly...
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ARCHIVED What Do You Feed Your Dog?
marciab replied to jesscarmel's topic in Introduce Yourself / Share Stuff
Thanks, Viola ... BTW My dogs love yogurt ... They liked ice cream too though .. Marcia These guys are rotten ... -
ARCHIVED A Question For Those With Constipation Problems
marciab replied to emcmaster's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I used to have this all the time, except when I had "D". My body had forgotten how to go on it's own. I later found out wheat does this to me. Even a minute amount ... Have you tried using oils, like EVOO, grapeseed oil, flax or borage ? These are good for you and will not affect have a negative effect your cholesteral. I don't remember... -
ARCHIVED What Do You Feed Your Dog?
marciab replied to jesscarmel's topic in Introduce Yourself / Share Stuff
Viola, One more question, please. Does the chicken neck have to be raw ? Mine have never had raw meat other than the occaional rare bite of steak ... thanks .. marcia -
ARCHIVED What Do You Feed Your Dog?
marciab replied to jesscarmel's topic in Introduce Yourself / Share Stuff
Thanks. I'm not sure who sells raw dog food around here, but I can check with a few places ... It was going to cost $200 to get her teeth cleaned and I sure can find something better to do with $200. My dogs thank you too ... Marcia -
ARCHIVED Healthy Hemp Tortillas
marciab replied to tarnalberry's topic in Gluten-Free Foods, Products, Shopping & Medications
These are also soy, dairy, corn, egg and yeast free ... which means ... I can have them too ... Yeah .. Thanks Tif ... The other hemp ones I found had soy in them ... Marcia -
ARCHIVED Happy Times! I Feel So Much Better!
marciab replied to rutland's topic in Coping with Celiac Disease
congratulations .. It's always good to hear someone is doing well .... Marcia ps. I have to stay away from those gluten-free goodies too. Maybe when we are healed ..... -
Hope you had a great Birthday ... you and Johnny ... glad you are feeling better ... ......... Marcia
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ARCHIVED Kefir
marciab replied to dionnek's topic in Gluten-Free Foods, Products, Shopping & Medications
I just started drinking raspberry kefir made by Helios Saturday. Did you notice how much sugar it has ? 23 grams ... I think plain only has 10 grams. Helios kefir is gluten free. If this is your first time drinking kefir you may have to back off and only drink 2 oz at a time. It can be hard on your digestive tract. Any change, even one for the better...