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tonalynn

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About tonalynn

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  1. In getting back to the original topic of good gluten free salad dressings, I have an option for people (like me) who aren't fans of oil and vinegar based dressings. I looooove bleu cheese dressing, but have avoided since being diagnosed with celiac just in case (I get mixed reports if it has gluten or not). If you like creamy dressings, this one is easy, creamy and super tasty!

     

    There aren't any specific amounts, all is to your taste.

     

    Plain yogurt (preferably the full-fat kind)

    Garlic salt

    Cucumber, peeled and diced very small

     

    Throw everything into a container you can shake vigorously and voila! You may have to adjust an ingredient or two to make it to your liking, but it's delicious on salad! :-)


  2. A naturopath probably won't be able to order a HIDA scan. A GI or GP/PCP can. The equipment is located in the nuclear department of a hospital. You mentioned that your naturopath shares an office with an MD. I am sure he/she can order one. I suffered for 30 years with an "on and off " functioning gallbladder. The pain was often unbelievable. I ended up in hospitals around the country because an attack caused me to black out. No one was able to give me a dx until that surgeon in Las Vegas and I got to use one of those new-fangled HIDA machines!

    Now everyone in my extended family gets a HIDA scan when their symptoms become unbearable. This test has saved a lot of pain and life for so many family members. Infection sets in and your risk for dying increases.

    I can relate to the overwhelming part do your story. I was just dxed with diabetes. Again, a shock as I am thin and exercise a lot. Thank you genes! My diet is even more restrictive now! More protein and fats keep you full.....but you need to take care of the GB issue.

    So now that you have had the HIDA scan, what did it tell you? Does it give you specific things that are wrong so you can figure out how to fix/deal with it? Or does it just tell you that stones are not your only problem?

     

    I would love to transfer to the MD that shares my Naturopath's practice, but unfortunately they don't accept ANY kind of insurance. It's pay-out-of-pocket and hope your insurance will reimburse some of the cost. To see them both on the same day would cost $300 and I just don't have that kind of money right now. But I will ask my Naturopath to ask the MD about it.


  3. Thank you, Cyclinglady. I have never heard of a HIDA scan but I will ask my naturopath about it. From what you describe, that very well may be the problem.

     

    I am back on my supplements, found a good digestive enzyme to take with my meals and will be very careful to watch my fat intake (and what kind) from now on. To be hit with celiac AND gallbladder problems in the span of less than 1 year is a bit overwhelming, and my inner child is having a huge temper tantrum that I can't eat a lot of the things I love.

     

    I feel like my appetite has significantly diminished, maybe that will combat the problem of never feeling full. I certainly hope so, I'm tired of feeling like I have a bad case of "the snacks" (a non-drug user's version of "the munchies") all day!


  4. I'm not much for salt, so I've never tried it on fruit. The only thing I've ever added salt to is cottage cheese.

     

    I eat (or ate) Lucky Charms the exact same way! In the 80's there was Pac Man cereal, the habit started with that. It made the "fun" last longer to eat it that way. :-)

     

    When I was a kid, I refused to eat mixed-up foods like a vegetable medley, peas & carrots, that kind of thing. The picture I had in my head of how your stomach was set up was a vast and complicated set of "compartments" for each food. If I ate two mixed foods, the compartments couldn't separate them, so that's how you got a stomachache. Oddly enough, there were compartments for pizza, soup, waffles with butter and syrup, but not things like salad. Go figure..... :-)


  5. I'm sure everyone's got at least one. The kind of quirk that affects how and what you eat that has nothing to do with health, nutrition or disorder. C'mon, let's have a little fun with food! :-)

     

    I'll start. For as long as I can remember, I absolutely can NOT tolerate...banana strings. Every time I peel or eat a banana, I have to search it thoroughly to make sure I won't eat one of the strings by accident. They don't taste any different, they won't hurt me I know. But the thought of eating one grosses me OUT!! I don't even like the feel of them on my fingers if they swing around and stick to them. EEEWWW! :blink:

     

    Ok, who else out there is willing to admit to having this kind of weirdness?


  6. I guess I am missing something here. What's wrong with stating you have celiac in a dating profile? It's a BIG deal. It doesn't mean it defines who you are, but it WILL effect the people you may want to date. By not putting it out there up front, it kind of feels like it's trying to be hidden, like it's shameful. If it was my profile I'd probably put something on there like "I was recently diagnosed with celiac, which means I cannot eat even a spec of gluten. So the standard "restaurant date" isn't going to cut it - so show me your creative side!"

     

    I don't see that as being negative. Some people just don't want to deal with "limitations" and it's better to weed them out before you even get started. I kind of look at having celiac as missing a limb. People who don't have an arm or a leg aren't defined by that - but it does present challenges and requires a different perspective. If I went on a date and found out my date had a prosthetic and didn't inform me of that in advance, my first thought would be "what ELSE are you hiding?"

     

    Just my two cents, but wouldn't it be as important as disclosing a severe peanut allergy or an allergy to bees? The reaction your body will have to gluten can be just as severe. Besides, if they know up front, there's no awkward conversation, no nervousness about when to bring it up. If something with gluten involves happens, you can just say "No, I can't. Gluten, remember?" and it's taken care of.

     

    I'm glad for you that you have dates lined up! Show those guys how awesome being gluten-free can be, and how awesome YOU are! How could they resist? :-)


  7. I mean gallstones. I can only imagine how bad passing a kidney stone must be!

     

    Having your gallbladder taken out is one of the most common surgeries performed today. But no one in the medical field really knows that much about the gallbladder (ask them, most of the time they'll admit it), so their answer is to take it out. But cyclinglady is correct - you CAN still develop stones without your gallbladder. Removing it is not a cure - nor is it a guarantee that it will solve the problem.

     

    Developing stones is more a matter of diet. We actually all have and make stones, it's just that they're small enough to pass and you don't notice. It's when a large stone is made and is trying to pass through your system is when you get symptoms. That can still happen with or without your gallbladder.

     

    The 'idea' I tried actually makes a lot of sense. One of the things to take is Malic Acid (you can find in any health food store). It's found in apples and softens the stones. Another is lecithin - it's common in ice cream - that helps prevent things from binding together, making a stone. Nothing I'm taking is harmful, experimental or not readily available. I'm just choosing to try to heal my body naturally rather than being frightened into removing something my body still needs to use.

     

    I am under the care of a naturopathic doctor, who shares a practice with a classically trained MD, so I'm in good hands and being monitored.

     

    Fat is indeed going to become an issue, since it does trigger your gallbladder into action, but we need it to survive. This is one of the reasons I never feel full - I have to watch my fats and avoid gluten - it seems to eliminate just about everything! Veggies and fruit are delicious, but not satisfying. Fat is satisfying, but until my gut heals, not easy for me to handle. I can eat vegetables all day long, but they're like Chinese food to me - 20 minutes later I'm starving!


  8. I know there are a lot of vegetarians and vegans on this board, I'm hoping you'll have a perspective I'm not familiar with that might help me. Since going gluten free 5 months ago I never feel full. I always feel unsatisfied after a meal and, well, just hungry!

     

    I've heard things like "an apple will make you feel full" or "lots of vegetables/roughage will fill up your stomach and make you feel more satisfied" my entire life. I'm sure the people that tell me this really do feel that way...but I don't. Never have. I eat an apple and I'm still hungry. I eat a veggie-heavy meal and 30 minutes later I'm ravenous!

     

    I'm also dealing with gallbladder issues at the moment, a severe attack earlier this week left me in horrendous pain, unable to eat or sleep for 2 days. So now on top of eliminating gluten, I'm starting to develop a fear of food in general, in case it triggers another gallstone attack. I feel like I can't eat anything anymore without dire consequences!

     

    Does anyone else have this issue? I felt full when I had bread - REAL bread. It was filling and satisfying and that feeling lasted a lot longer than it does now on a gluten free diet. It seems like anything with fat (good or bad) will trigger my gallstone issues. Heck, I just ate a banana and I'm feeling mild pain from my gallbladder already!

     

    If I'm not an eating disorder waiting to happen, I don't know who is! :P

     

    Anyone here find a solution to this problem? I would greatly appreciate any feedback. Geez, at this point, I feel like food is trying to kill me! :huh:


  9. Gemini, after doing some research, I found an ebook written by a doctor that explained why gallstones are formed and why things like olive oil cleanses don't work. He included a list of vitamins (nothing he sold, just the types of vitamins and/or supplements he recommended) and how much to take of each. I gave it a try (after trying some other things like apple cider vinegar, which I could NOT stand at all) and I haven't felt the pain of oncoming or stuck gallstones since (at least, up until I got lazy about taking the vitamins).

     

    If you'd like to read up on it, Dr. Bill Sardi is the author's name, and he has several ebooks on this website: www.nationalhealthlibrarian.com

     

    While it may not be for everyone, I found his ebook extremely well researched with clear explanations. If it made sense to me, it should make sense to anyone! :-)


  10. Anyone here ever suffer from gallstones? Holy CATS do they hurt! I had one last year in January that sent me to the hospital - I thought I was dying. I found an ebook with a list of suppliments to naturally disolve the stones, and it worked great. I haven't had an attack since....until yesterday.

     

    I've gotten lazy and haven't taken that list of suppliements in awhile. I felt it coming on in the morning and by 5pm I was doubled over, rubbing my sternum and cursing everything in sight. Nothing helps ease the pain - at least nothing I've found. I can't take any narcotic painkillers, they make me puke, and morphine does nothing for me. I still had some Tylenol 3 with Codeine from the last attack, but that didn't help either.

     

    It's finally over now. The stone either went back into my gall bladder, or it moved on through. Either way, the pain subsided (finally)!

     

    I was hoping that since going gluten-free in October that I wouldn't have to worry about gallstones anymore, as such a huge negative factor in my diet was eliminated. I guess not. Drat, one more thing that hasn't improved since becoming gluten free. :-(

     

    Anyone else suffer from this? How do you cope? I'm back on my supplements and I'll be happy to share the list and the ebook I got them from if anyone's interested.


  11. I often have very vivid dreams and crazy dreams and violent dreams, so this one didn't surprise me - not too long ago I had a dream that I was on death row (I have no idea for what) and I was requesting my last meal.  I was trying to get them to agree to let me eat within 2 hours of being put to death so that I could eat lasagna with a buttered roll and not be around long enough to feel the symptoms.

    I LOVE this dream! That's so awesome! That's what I'd ask for too - give me a bunch of gluten and let me enjoy it, then put me out of my misery before my misery REALLY kicks in! This is priceless :-)


  12. Since I was diagnosed 4 months ago (and more since I accidentally glutened myself bad enough to vomit 2 months ago), I'm noticing a recurring theme in my dreams: realizing I'm eating gluten after it's too late.

     

    The dream setting, events and gluten containing food always change with each dream, but one thing remains constant. I'm eating something delicious, like a pastry or something you can pull apart with your fingers, and really enjoying it. I'm about halfway through whatever it is (never just a bite), when I REALLY look at it and realize...it's got bread in it/on it/ surrounding it. Bread with a LOT of gluten! I've eaten enough that there's no way I'm not going to get glutened. After a few moments of panicked realization, I wake up.

     

    I still have a vivid image of the last dream: A pastry with a red, gooey filling (raspberry I think) with a cinnamon like, crumb topping sitting on a piece of wax paper. The paper is next to me on a black leather backseat of a taxi cab. The crumb topping is especially clear. As is the memory that it was absolutely delicious enough to break of lots of small bites and savor each one.

     

    I also have dreams (though not as often) of being with people and we all go out to eat, but somewhere that I can't eat anything - even though everyone with me knows I have celiac and can't eat there, but it doesn't seem to matter. Everyone with me is eating and enjoying themselves, while I just sit there and watch.

     

    Does anyone else have dreams like this? Enjoying something (I've never eaten a pastry like that one) in a dream only to realize how much gluten you've just ingested? Or is it my overactive imagination?

     


  13. I'm not sure if this is the right board to post this on, but since it's tax season it's good to know!

     

    I just discovered that certain items and costs related to celiac disease are TAX DEDUCTABLE! Isn't that awesome? I'm including a link from the Denver Celiac Support Group, with information on what you can deduct on your taxes. They are referencing IRS documentation, so I'm assuming this is for Federal tax filing. I'd check with your local tax office or accountant to make sure you can do this, but this is fantastic since gluten-free products are always more expensive!!

     

    http://www.denverceliacs.org/taxdeductions.html


  14. Thanks Kareng, I did look that up and found the Denver Metro Celiac Support Chapter. Unfortunately, it doesn't look like they are very active, they show no meetings, classes or event through April 15th. I didn't think it would be so difficult finding other celiacs here - like you said, it's a very supportive area for gluten free eating. I even tried starting a meetup group, but got no interest. All the Colorado celiacs must still be in the closet - come out out! :-)


  15. I won't miss them too much, but I sure would devour those shortbread cookies they make.  And I would freeze some, too.  Just give yourself an indulgence of your choice in place of them :)  But it does suck to say no to the little girls!  Makes you feel like a jerk walking past their booth on the way into the store and such.  I, too, will remember them fondly.

    I have found that Safeway's Eating Right brand has a delicious gluten-free oreo cookie. I'm sure I can find substitutes for GSCs, but it just hit me that this is something I can't buy anymore, it didn't occur to me last October. I just hope the substitutes are not like Gluten Free Beer. Yuck! ;-)

     

    By the way, LauraTX, I LOVE your profile pic! Fellow Tortie lover/owner, are ya? :-)


  16. Two sweet looking Girl Scouts just rang my doorbell and asked if I'd like to buy some Girl Scout Cookies. I forgot all about these being on the No-No list now! I'm so bummed! No more Thin Mints, Tagalongs or Peanut Butter Cookies.

     

    I'm gonna miss seeing those sleeves of Thin Mints in my freezer this year.... ;-)

     

    I raise my berry-banana protein smoothie to you, Girl Scout Cookies. It was fun while it lasted, and I'll miss you. I will always remember you fondly!


  17. Hi neighbor :)

     

    I found out about a restaurant in Manitou Springs that is all gluten free.  I will be checking that it.  Sounds delish.  Everything sounds delish.  I have noticed that food commercials are everywhere torturing me.  I hope this hunger thing gets better soon!

     

    You said you aren't feeling better?  Isn't that discouraging?  I'm on day 9 and don't feel better and just cried last night.  I was mad and sad and all that stuff. :(

     

    I would so love to have a freaky eating buddy.  LOL!  I'm going to contact the Pikes Peak Celiacs...when I find out something I will let you know.

    Manitou Springs is pretty, I can't wait to hear what you think of their gluten-free restaurant!

     

    Sadly, no I'm not feeling any better. I've had fatigue issues since I was 14 and had a horrible case of mono that kept me out of school for almost 2 months. My energy lever never returned, and I've been scheduling my life around naps ever since. Always tired, can't sleep. I would say my motivation level has increased maybe 2% in the last 4 months, up from 0. Instead of lowering or eliminating one of my anti-depressants, one was increased because I was feeling so angry and irritated all the time, and the gluten-free transition finally hit home, and I had a mini-meltdown. I've lost 10 pounds since October 1, and I haven't done any exercise (mainly because I have no energy or motivation - and I hate exercise). I need to lose 25 more. I've always had problem skin, but it seemed to have gotten worse in the last few months, and my face is broken out like a teenager (I'm 43). My appetite has really decreased and nothing sounds appealing. The money I save from not being able to eat out so much is now going to the grocery store to pay the tripled prices of things because they're either "all natural" or "gluten free."

     

    I'm an introvert and a homebody, so I don't mind too much that I can't go out to eat. But I hate cooking and preparing food, so that doesn't help the situation. Cooking for one just isn't something I've ever liked doing, and I miss the convenience that gluten provided. But it is rather discouraging that I'm not seeing anything change. It's like trying to lose weight and even though it's water weight you lose first, seeing that big drop on the scale is a great motivator to keep going. I haven't seen that, and the only reason I stay gluten-free is that I hate vomiting more than I hate being gluten-free, so it's the lesser of two evils.

     

    I hope to see results soon (well I do think maybe my lactose intolerance may have gone away, but I never considered that a big deal anyway) because I could really use some motivation right about now. I've tried so many other things before I was diagnosed with celiac and every one of them swore I'd feel better (anti-depressants, thyroid meds, Bio-Identical Hormone Therapy, regular exercise) and not one of them delivered as promised. Now it's being gluten free, and I hope this is the one that breaks the pattern and really DOES make me feel better. So I get your crying jag and being mad and sad. I did that a LOT at the beginning. If it wasn't for accidentally glutening myself a few weeks ago and vomiting for the first time in almost 15 years, 3 hours after eating gluten, I'd STILL be super angry. That was what did it for me. I'm resigned. But still not happy about it if I don't feel better soon.

     

    If your family went gluten-free with you, or are at least supportive, that helps a lot. This board helps a lot. We're fortunate we live in Colorado, where the Boulderites have made us progressive enough and environmentally aware enough to be a more gluten-free friendly state. Never thought I'd say this, but thank you, Republic of Boulder, for being so weird and out there! :-)

     

    Just take things one step at a time, if you have a doctor you work with, keep them up to date with how you feel, what you're doing, etc. My naturopath wanted me to cut out dairy (she thinks that's the reason for my breakouts, although I've had acne since I was 11) and I told her to forget it - not happenin! Bread was my life, my love, my go to food. I'm originally from SF, and to think I'll never get to have authentic SF sourdough bread again breaks my heart and I tear up just thinking about it. Now you want to take my other love, ice cream, away too? Are you TRYING to get me to snap and start killing people just because they can eat gluten and I can't? Baby steps.....just little baby steps.... :-)

     

    Feel what you feel, and don't apologize for any of it. This is a MAJOR life change - the way you've looked at food your entire life has to be thrown out the window, all at once. I'm convinced nobody would go completely gluten-free by choice - it's too hard. I've heard people say they went gluten-free to eat healthier, but they all cheat now and again, and we don't have that luxury. If you come from a culture where food is central (I'm Italian) then it's even more difficult. If your emotions aren't all over the place during this transition, then I don't think it's really hit you yet. Crying your eyes out seems to be normal to me. The rug has been ripped out from under us, how could we NOT react?

     

    From what the experienced celiacs here say, we'll find our "groove" and I believe them. I think it's just buried somewhere under a lot of gluten and we haven't found it yet, lol. Keep your chin up. And know that some of us newbies (at least me anyway) is just as mad and sad as you are, you're not alone in that!


  18. I'm a quick healer also but I am still dairy lite.  I'm not so sure that most Celiac's gain dairy back all that well.  I would take it easy, tonalynn, and not splurge and eat a lot of dairy at first.  Go slowly because you don't want it hitting you in the back of the head because of overindulgence.  Many Celiac's I know, including myself, have a limit to what they can eat. Sometimes, you don't know the exact tipping point either.

     

    Don't get me wrong...this is very good news and shows healing is in progress but beware overindulgence!  ;)

    Oh don't worry Gemini, I won't overdo it! Actually, the entire bowl of ice cream was what I was most worried about, but nothing happened. That's about as much as I want to test it, no more than that amount of dairy per day. I still think I'll keep some Lactaid handy, in case I have a dairy heavy day. ;-)


  19. Thank you Tonalynn!  I am also hypythyroid and have hormonal crud.  I was shocked.  When my Dr said he was testing for Celiac, I was like I'm not going to have that...but now I do.

     

    I'm in Colorado Springs, so just down the road from you.  I have not found a support group.  I looked and found one, but the contact info wasn't valid.  I was bummed because I would really like to talk to someone else who knows what I'm going through.

     

    When you go out to eat...where do you eat and what?  I don't want to never go out to eat again...ya know?  I'm so hungry right now.  Saw a commercial for oreos and wanted to eat my own arm.  LOL!

     

    I really appreciate your words of encouragement...thank you  :)

    Hey neighbor! :-)

     

    Well, that gluten free bakery I mentioned is in South Denver/Littleton and they will ship anything to you (except their premade meals). It's called Deby's.

     

    When I eat out....which is almost never nowadays!! I like Red Robin, they are VERY allergen/gluten-free friendly, and even have gluten-free hamburger buns. I also found out that a lot of them (maybe all) have a dedicated fryer specifically for allergen requests, so if you're dying for fries, just ask for that fryer and they're happy to accommodate you. I think Q-Doba will be safe, and there's a place here called DD's Sourdough Pizza, and their gluten-free options are pretty good, but kinda spendy. I ate at Village Tavern on a special occasion and had no issues. But that's about it. If you look on the major chains' websites, a lot of them have nutrition info that includes their gluten-free menus. There are actually quite a few! But CS is a bit smaller, so I'm not sure what chains you have down there. You just have to make some calls. :-)

     

    I miss(ed) Oreos too! But Safeway's Eating Right brand has a gluten-free version that is really yummy! I was rather impressed and I'm quite the cookie-holic. Now that you're gluten-free, have you noticed how MANY commercials are about FOOD? Gahh! I get so mad sometimes at having to make stuff to eat. I just throw whatever is in my hand (unless it's a cat) and stomp my feet and yell (to no one) "dammit! I just want to order a friggin PIZZA!!!" then I go open the pantry and the fridge for the seventy-eleventh time to see if something in there looks appealing NOW.

     

    I was a big fan of Subway when I wanted something quick. I haven't found what to replace that with yet. My meals tend to be more like snacks, since cooking for one is a pain in the butt. But do some checking in your area, I bet you'll find a couple of places that are celiac friendly. And if you're up in the Denver area, give a shout! I'll go be your freaky-eating buddy. :-)

     

    I wonder where the Pikes Peak celiac group meets. If it's not too far I would consider going.


  20. Can it be possible that more than 20 years of being lactose intolerant could be cured by being gluten-free for less than 4 months??

     

    I've been taking Lactaid enzymes for as long as I can remember. My father couldn't digest milk either, and I figured out it was milk that gave me the big D. So anytime I drank milk, ate ice cream, sour cream, cottage cheese, cream based sauces and dressings, I took a Lactaid and my digestive distress resolved. Yogurt and cheese never bothered me.

     

    I will be gluten-free for 4 months next week. I started experimenting with regular milk in my coffee instead of the lactose-free kind. Felt fine. Tried a bowl of ice cream with fruit with no Lactaid. Nothing happened. Drank a glass of milk with a few cookies, no problems!!

     

    Can it happen this fast? I've heard celiacs can tolerate dairy after being gluten-free for awhile, but this soon? Hey, I'm not complaining - I'll be thrilled if the lactose intolerance is gone - I'm just skeptical at how fast it happened!