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cristiana

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cristiana

  1. cristiana
    I think sometimes the pain described here can be a result of a sort of 'perfect storm' of contributing factors. Recently I had an appalling bout of lower back pain, lower burning gut pain and what felt like cramps. I then started to think about what could have caused it and I realised it was several things that had set it off: I'd been carrying heavy luggage...
  2. cristiana
    HI @Kirbyqueen That's great news your insurance will be kicking in soon. Sorry to see that you have been dealing with this for six months now, but I do hope you have managed to find some relief with some of the suggestions in the meantime. Perhaps come back and let us know what the doctor says. Cristiana
  3. cristiana
    This might be helpful - from Coeliac UK. https://www.coeliac.org.uk/information-and-support/coeliac-disease/getting-diagnosed/blood-tests-and-biospy/#:~:text=Usually%2C a biopsy of the,more about diagnosis of children.
  4. cristiana
    Hi @Richard1973 and welcome to the forum. I did go through a period of feeling thirsty all the time and my first thoughts went to asking my GP to test me for diabetes. Have you had a test for this condition as if not I think that would be the first thing to rule out? If you were suffering from diabetes, either Type I or Type 2, I've read that...
  5. cristiana
    Hi @trents Just seen this - Boot's is a chain of pharmacies in the UK, originally founded in the 19th Century by a chap with the surname, Boot. It's a household name here in the UK and if you say you are going to Boot's everyone knows you are off to the pharmacist! Cristiana
  6. cristiana
    I am not a medically qualified person, but I think in your shoes I would do the same. If you are in the UK, there are some really good gluten-free aisles now. The largest range near where I live, currently, appears to be in Tesco's.
  7. cristiana
    Hi Katie I am so sorry you had two miscarriages in the past. Try not to worry, though, because it could be that they were unrelated, perhaps? Well done for contacting your GP. Is it possible that you can speak to your midwife in the meantime for a chat? Cristiana
  8. cristiana
    @Katiec123 Welcome to the forum. I started to have symptoms related to coeliac disease (mouth ulcers, aura migraines etc) but no gastric symptoms during my first pregnancy. That went to term, in fact, I was 10 days over and had to be induced. But my second baby, born 21 months later, arrived at 33 weeks. He's now doing well, and taller than all...
  9. cristiana
    @Blanco - you are most welcome, and I am glad to hear you have made your glutinous bucket list! Just before my biopsy, after the shed loads of Weetabix and Penguins I had eaten, I had a terrible tight headache across my forehead, something I'd suffered from a child and had just thought was a headache at the time. Maybe my body was trying to tell me something...
  10. cristiana
    Hello @brian1 I'm a UK based Moderator here on the forum. If you are British, you may find that in your region you might be able to get certain gluten-free food (usually staples like bread) on prescription. I recommend you ring Coeliac UK for the most up-to-date advice on this. https://www.coeliac.org.uk/home/ There is some advice here for...
  11. cristiana
    Back in 2013, prior to diagnosis, I had been quite unwell so my GP ran several blood tests and the tests for coeliac disease just happened to be some of them. I have no idea what my precise numbers were, but the cut-off was 100 for the TTG test and mine was over 100. I remember both my GP and I were delighted when I went to see her as finally we felt we...
  12. cristiana
    If you are prepared to self-fund, it is sometimes possible to self-refer to a private gastroenterologist in the UK. My friend did. To see a gastroenterologist through the NHS, you typically need a GP referral or a referral from another consultant (for example, a gynaecologist who suspects someone has in fact a gastric problem can refer them onto gastroenterology...
  13. cristiana
    Good afternoon @Blanco! It's always good to see a British coeliac on the forum. Coeliac UK, the British coeliac charity, is a fabulous organisation (worth joining it just for the gluten-free food guide app, by the way) but the one thing it doesn't have is a forum, so we do get quite a few British people posting here. One of the things that stood...
  14. cristiana
    Several of us on this forum have found ourselves in this situation - anxiety is often common in coeliacs around the time of diagnosis. Although it is written to help people with depression, I found Dr Steve Llardi's book (link below) really helped my anxiety. You might wish to take a look at it. He suggests making some lifestyle changes, all natural...
  15. cristiana
    I've sometimes found it hard to attribute flares to a particular cause but it could just be that gluten is sneaking in somewhere? That aside, another thing that can affects my tinnitus and neuropathy is stress. Have you been anxious about anything of late?
  16. cristiana
    Hello @elthomp and welcome to the forum! I am sorry to hear you have ongoing problems with tinnitus and neuropathy. In my own case, neuropathy got a lot better once on a gluten free diet but it was one of the last symptoms to recover. A good year or so, and even today I get tingling in my arms and legs sometimes. My tinnitus remains to some extent...
  17. cristiana
    Thank you for your post, @Nedast, and welcome to the forum. It is interesting to read of your experiences. Although I've not had TMJ, from time to time I have had a bit of mild pain in my jaw, sharp stabbing pains and tingling in my face which appears to have been caused by issues with my trigeminal nerve. I read that sometimes a damaged trigeminal...
  18. cristiana
    Hi Tibaked If you are diagnosed with coeliac disease, you may find that all sorts of symptoms will be alleviated by a gluten free diet. GERD and lactose intolerance can be greatly reduced if not eliminated once the gluten-free diet is adopted. However, if you want to be tested and officially diagnosed you will need to have been consuming gluten until...
  19. cristiana
    This is similar, we call this Apple Crumble in the UK. As I understanding, fruit crumbles became popular during WWII when ingredients were scarce. There aren't many traditional pubs where a crumble doesn't appear on the puddings menu to this day. Bramley Apples are sour apples used for cooking in the UK, hence the need to add sugar. If you are using...
  20. cristiana
    Hi @Lenabeana Welcome to the forum, but I am sorry to hear you are in this situation. However, I agree with Trents, this is definitely a case where you need to take one step at a time. I am not sure where you live so I can't claim a knowledge of your national employment legislation, but re: your boss firing you because of an allergy, have there...
  21. cristiana
    Hello @BunnyBrown and welcome to the forum. I cannot say that I have had the procedure you describe, but recently I did have general surgery and was routinely intubated. That pain was what troubled me most after the operation, far more than the operation site. It took a few days to really settle down, I was quite badly bruised. It was taking so...
  22. cristiana
    This wonderful, Anne. I think you have a point about why people disappear off forums. I found the first few years post diagnosis a real struggle and frankly wondered if I would ever feel better (not to dishearten people, but just to say it can take a while longer for some folk to heal). However, once my antibodies were back within normal range...
  23. cristiana
    Hi @Patsul I had the very same issue with gas, it affected me at first in my mid abdomen, then moved to the lower left quadrant, so I sympathise! My gastroenterologist recommended that I went dairy free for a little while. He suggested giving it 2-3 weeks. It worked a treat. Coeliacs are often temporarily lactose intolerant at diagnosis, because...
  24. cristiana
    @trents That's really interesting, thank you for the update. On this side of the Atlantic it seems Coeliac UK are still with the old system - will keep an eye on their website for changes.
  25. cristiana
    Hi @beeboschmeebo82 It is always good to meet another British person on this forum - there are quite a few of us! Certainly, a small percentage of coeliacs have negative blood tests, your GP may or may not be aware. So, to properly diagnose coeliac disease, or to rule it out, people often have to take on the role of self-advocate in these circumstances...
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