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Blaze422

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About Blaze422

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  1. My history is. Typical to most posters...they find this forum after they have struggled for months.

    That's when we learn about the problems with a biopsy after steroids or blood work after going gluten-free. I have discussed my history on other threads and was trying to save everyone from a tedious story.

    So yes, I was biopsied and had bloodwork that were not positive for DH. And no, I don't want to do a gluten test and have

    GI biopsy.

    And yes, that is why I freely admit that while it behaves and looks like DH, it may not be.

    But the question is...if a person has DH and is gluten free....can other food allergens cause a flare up?


  2. I am sensitive to corn (diarrhea )

    The reason this all is on my mind because I'm seeing an environmental allergist next week out of desperation. He comes with a great reputation for being thorough and a great sleuth /detective type.

    Quick recap : I never had any rashes until August 2014. Random stomach issue over the years and then slowly escalating rashes that were bilateral, reactive to iodine, not responsive to steroids.... but NOT insanely itchy.

    Dermatologist agreed to try dapsone 25mg four times a day and I got 75% improvement in 4 months. Reduced dapsone to 25 mg twice a day and for 3 months have maintained status quo. Still have some rashes, some itchiness but manageable. Now in the last 3 weeks, things are flaring and spreading.

    One thing I have been doing a lot past month or 2 is far infrared sauna and Epsom salt/baking powder/hydrogen peroxide baths .

    Not sure if any of this is significant but thought I should increase dapsone again and see if I have a "hidden"

    Allergen contributing to my pathetic state.

    Thanks for any advice,

    Mark


  3. I have been tapering off my dapsone and thinking I was getting better, but recently entered back into the world of

    Itching. My idea of "healthy" is still have a rash on my lower back and neck hairline and sporadic patches on armpits etc...but 1/3 of what I used to have and .but significantly less itch..

    I'm pretty confident that I have avoided gluten, but I remember many posts that discuss DH being a S.O.B....

    And that sometime she raises her angry head because she can simply be a bi€th.

    (A disclaimer is that I had some honey whisky that apparently has been rated a 4 out of 10 on confidence of being gluten free.)

    So maybe I'm crazy, but I could swear that after drinking Arizona green tea that is proud of "no preservatives or artificial colors or flavor" I'm itching ...a lot. And my legs broke out.

    Looking at the ingredients it appears to Have high fructose corn syrup . So in my over active paranoia, I'm wondering if my DH is "smoldering" and if corn can act similarly to iodine or salycylates and aggrevate my condition. So until I rule it out..I've eliminated corn as best I can.

    Thanks for reading my rambling thought. Opinions appreciated!


  4. In contrast when my son in law has gluten and gets cramps, foggy brain and flu like symptoms...gluten makes me itch and have rashes.(dermatits herpetaformis)...not necessarily immediately.

    Ingesting iodine makes itching worse.

    I have found no connection between caffeine, wine in my symptoms...however...,

    I take probiotics, digestive iodine, black seed oil, l- glutamine etc to heal my gut...

    My understanding is there is a link between the immuno response to gluten in my rash can mitigated by healing my gut.


  5. In dealing with my DH, I am open to eliminating anything and everything that worsens the itch. So not only am I gluten-free, I am low iodine and low salycylates. (Lot as obsessed about the low Sal)

    I was drinking 2-3 glasses of red wine and 2-3 cups of instant caffeinated coffee, then in my attempt to go low Sal I switched to de-caf coffee and gin (lLOL)

    The more I investigate leaky gut, the more I concluded that I need to stop drinking. And I have...for 2 weeks so far.

    Here's my question... If alcohol was contributing to my leaky gut, is it like gluten, and even one glass of wine will yield serious consequences? I don't want to be taking probiotics, digestive enzymes and eating healthy and have a drink if it's going to cause a "relapse". It is y understanding that leaky gut takes months to heal, and it is my assumption that an occasional drink is ok, but I'm curious how many of y'all avoid alcohol completely.


  6. Actually, in defense of my dermatologist , she is very open minded. After being confident of her initial diagnosis of exzema, when I returned 10 days later with beet red elbows, I said that I know she thinks this is exzema...but I'm thinking....and she completed my thought by saying...Dermatijts herpetaformis. I said thank you jesus!

    She confesses limited experience with DH...is humble and said that anything is possible. The fact that I began the process with less severe itching than her other DH patients is consistent with the fact that everyone is different etc. bottom line is that avoiding gluten is a good thing from her perspective regardless if it is exzema or DH .


  7. Quick recap..

    I used steroid creams so negative biopsy for DH May or not be accurate.

    Migrating rash that was bilateral, non responsive to steroids and reactive to iodine. back, chest, arms, elbows, not in folds etc...and although my wife said it was exzema..I am convinced its not.

    Itch however, only 4 on a scale of 10

    Dapsone significantly decrease itchiness but has no taken it away.

    Most of rashes as gone except low back and neck hairline. I no longer have to take 1/2 doses of antihistamines to get thru the day.

    After.one month of dapsone (25 mgs every 6 hrs) I went off it and almost immediately started getting itchy and rashy again. Back on for another month with return to better skin.

    That said, my dermatologist was disappointed that the dapsone hasn't been more effective. For that reason, the jury is still out on whether I have DH. My healing might be because of my diet, or might also be from dapsone.


  8. Itchy...I know there's an area for recipes but I have to share this with you. For New Years my wife made black eyed peas ( not sure the specifics) but I put it over a bed of sweet potato/apple mash.

    You take an equal amount of pealed sweet potatoes and apples and after dicing them, add a little water and simmer medium heat ,covered for 20 minutes. Stir frequently. Lower temp and simmer another 20 minutes. Add ginger and cinnamon and then mash with potato masher.

    awesome!


  9. Now you understand why I drink..Or at least why I drank..LOL

    If you try to avoid dairy, it has carrageenan.

    You try to avoid carrageenan and it has iodine.

    You try to avoid iodine and it is high is salycylates.

    I am getting better and am trying not to drive my wife nuts.

    Fanatical about avoiding gluten in food, lotions, shampoos etc

    Trying to be LI but it my understanding that 50 micrograms of iodine or less a day is ok and so if my eggs whites have trace iodine, I eat it... The sea salt in almond milk might be a problem..

    My low SAL strategy is to try to be smart and avoid high sal items like my wine and coffee but not to be neurotic at this point.

    No dairy. No alcohol.

    Probiotics, MSM,food grade Diamatacious earh

    Moisturize with coconut oil.

    dapsone for 1 more month

    You guys are great...thanks again!


  10. Ok...not to over analyze it...but why stop now?..

    Are you both saying the flare up would result in both increasing itchiness and ALSO spreading/increased reddening of the rash?

    I realize everyone is different, but I'm wondering if iodine will cause a relapse of the healing/ a new area of rash,/ a darker hue to the rash....or merely a temporary worsening of the itch.

    Thanks for your patience!


  11. As my rashes are slowly going away ( diet and dapsone ) one of the reasons I am pretty sure I have DH is that itching increases with salty foods.

    I understand that gluten will cause antibody production and the longer I stay off gluten, then less reactive ..(ie..less antinbodiy prduction) will result from accidental ingestion of gluten.

    Does iodine cause a "relapse" in the healing process... Or is it only temporary increase in itchiness?


  12. I'm going to take back my thread before it gets totally hijacked....

    Do the veterans on this board put any stock into the "leaky gut" hypothesis? It is above my pay grade to discuss/ re-hash the auto-immune vs allergy discussion, but one of the reasons I am attempting to go low Sal is my attempt to eliminate anything that my encourage a auto-immune response.

    That said, my reading has led me to give up alcohol...Oh!!!!...The Humanity!!!

    I'm thinking that if alcohol might be causing leaky gut ( drink 2-3 glasses of wine a night)...I can give it up.

    Thoughts?


  13. I almost feel embarrassed complaining about my rashes or itchiness when I read testimonials like the 2 of you.  I'm inferring from your answers that moisturizing or not isn't a factor in the healing?

     

    And here I go on another confession:

    My wife is a student of alternative medicine and should have earned her PhD if time on the internet counted towards the title. She wants to heal my gut. 

    Probiotics

    MSM

    Black Seed Oil

    Apple Cider Vinegar

    Barley's Greens

    Zinc

    Vitamin D3 and K

    Coconut oil for cooking and moisturizing

    Bleach baths

     

    I see that the oils are High Sal and Apple cider vinegar is High Sulfite.   I haven't read every page on this forum, but have posters discussed the above?  Do you have an opinion on alternate therapy and healing the gut?