Celiac.com Sponsor (A1):


Join eNewsletter


Celiac.com Sponsor (A1-m):



Join eNewsletter

bburmeister0407

Advanced Members
  • Content Count

    23
  • Joined

  • Last visited

2 Followers

About bburmeister0407

  • Rank
    Top Contributor

Profile Information

  • Gender
    Female

  1. We're in the same boat. I was in denial, and I decided to stuff my face with gluten to prove I didn't have it. I'm sick. Shocker. I'm only about a month in, and I'm angry and full of resentment. It actually makes me angry when my girlfriend orders food I can't eat at our favorite restaurant. How messed up is that? Right now I just want to order a freaking pizza, and I can't, because even the Domino's gluten-free pizza poisons me. I came to this forum for the same reason you did. I hope it helps you.

     

    -B

     

    Oh my gosh yes. I did that just yesterday. I work for Pizza hut and brought home a ton of free breadsticks. I got sick and tired and grabbed a bag yesterday to prove I could do it...was up until midnight with anxiety and severe bloating...serves me right.


  2. Also... I found this little poster on being mentally strong I want to share

     

     

     

    Be Mentally Strong 

     

    1.) Don't waste time feeling sorry for yourself

    2.) Dont give away your power

    3.) Dont shy away from change

    4.) Dont waste energy on things I cant control

    5.) Dont worry about pleasing everyone

    6.) Dont fear taking calculated risks

    7.) Dont dwell on the past 

    8.) Dont make the same mistakes over and over

    9.) Dont resent other people's successes

    10.) Dont give up after first failure

    11.) Dont fear alone time

    12.) Dont feel that the world owes you anything

    13.) Dont expect immediate results


  3. It feels like we talk a lot on here about dealing with the physical aspects of celiac, but I'm curious as to how you all deal with the emotional aspects? Lately, it's really been hitting me deeply with the realization that i'm going to have to deal with this every day for the rest of my life, and that sometimes, even though I seem to be doing everything right, my body still gets angry. Today, I really wanted to talk to my mom (about what, exactly…I don't know. Just to say that it's hard dealing with this, I guess?) but I stopped myself because I knew she wouldn't understand. I'm only 25 and sometimes I'm just so tired, physically and emotionally. How can I even think about moving forward, getting married, having children, all of those things, when I can barely keep my body functioning in a normal way for more than a week or two at a time?

     

     Sometimes I just feel so angry that I've lost years of what should have been good, healthy living to illness and that I have to deal with this now, at such a young age. I haven't been as sick as some, but I also haven't been healthy for a long time. Sometimes it feels like I am getting better and better and then boom…back down the ladder.

     

    In a post I made a while back, somebody recommended a mindfulness technique, which has been helpful. I try to write in a journal to organize my thoughts and feelings. 

     

    How do you deal with your emotions? I hope this isn't too weepy, weepy, cue the violins! It's just been stressful lately with my job and my health. 

     

    Thanks for letting me vent. (Thank you for letting me have  a little pity party. Trying to move on now.)  :)

     

    Oh Belle,

    I have wanted to post something similar for days (pulling up a chair now) but didn't want to seem like the debbie downer. Great to know that I'm not the only one who sheds a tear occasionally regarding this. I am young as well...ripe ole age of 23. Things were great relationship wise until this appeared. Granted I never felt well, but I can put up a pretty good mask. Shopping and cooking were easy. There were never arguments about food... EVER.

     

    Last night I was going to make some amazing spaghetti and meat sauce with quinoa noodles. I let my roommates know that I was going to make dinner and was told, "If it has gluten-free noodles, I am not eating it." They didn't mean it in a "this is gross" type of way but more of a "you have to eat those kind of noodles, we don't want to take that away from you." I already feel like an inconvenience to the rest of the world and now inside my home. I know it is an adjustment for everyone in my life, not just myself...but it sure isn't easy. I notice my blood sugar dropping more rapidly than I used to and because it's all an adjustment, I don't like how I feel just yet. It's better but certainly different. It makes me crazy emotional, I just want to feel better and not feel left out!


  4. I have really bad issues with CC and its funny when people like my mom will be like: "Oh, I'll just scrape the pumpkin part off for you and I'll eat the crust part." Erm..no, they touched. Its like talking to people about food cooties. I went to Taco Bell last week and they were being super awesome about my food...then the lady goes "Well our beef has it in it..in fact all beef has gluten in it..you should stop eating beef." Lady, 10 seconds ago you did not know what gluten was...and now you are telling me which foods its in??? 

     

     

    BTW taco bell ground beef does have tons and tons of gluten in it (wheat and gluten) are labeled separately on their label. 


  5. I had to do this with my roommates just last week. When I get panic attacks, I end up on the couch in the living room instead of my bed. They understand that it has been a rough night by that point. My male roommate nathan actually wanted to know more. He wanted to make sure that he wasn't hurting me and wanted to help when he could. I sat down and explained what gluten is and what it is in (he thought it was in all foods). I give very specific instructions when in the kitchen and food is being made for all three of us. When I am not feeling good, he doesn't usually ask about the symptoms but he will ask how he can help. I don't know if you need to go into gory details because I think they get it, but they more or less want to know how to help you feel better.


  6. Oh man...Thanksgiving was rough but surprisingly (at least I am surprised) that I made it without being glutened or giving in!! That stuffing and green bean casserole really really made it tempting but I did everything in my power to stay away. 

    My family even bought Schar's Ciabatta rolls so that I could have some bread...let me tell you, G.R.O.S.S. Gluten free food isn't anything compared to the glutenfull food, but I don't mind Not feeling horrible after every meal. :-)


  7. I work for a chiropractor in Wisconsin and we are always making connections about the body and different traumas it goes through. I was tracing back my medical history for the last few years and I think I have finally made a connection with everything.

     

    When I was little, I broke my arm and had to have two surgeries. Then I broke it again, another two surgeries. The break was so bad that those two turned into four surgeries. In the 6th surgery, the doctor got my ulnar nerve stuck and I lost function of my hand. Then in 2011 I had another surgery to fix all the nerve damage. 

     

    During surgery number 7, I was given an absurd amount of medication to keep me from getting so sick afterwards. I was then put on Vicodin post op. Within a week I had some severe anxiety and digestive issues. I stopped eating for about a week because I was so afraid of food. I was put on a medication for the digestive issues and then put on a medication for my anxiety...never once considering that they may be connected. 

     

    Fast foward a few years and I am diagnosed with Celiac. As soon as I went gluten free I noticed that my anxiety would disappear. If I got glutened, welcome panic attacks again. None of this started until my last surgery. Now, in no way am I saying that everyone who has a trauma would get celiac or that everyone with celiac had a trauma, but there has to be some sort of connection. 


  8. I have been trying to spend Sunday evening creating one large meal that I break up into containers for the week. That way when I don't have time, I already have it figured out. It only gets tricky when I am a waitress and am allowed to snack on Pizza Hut's food during my shift but I never actually get a break to eat. I should probably ask if I can bring in my own snack. I actually had a friend recommend keeping a bag of chocolate chips in the fridge for a quick sweet tooth fix.

     

    As far as the anxiety goes, My roommate and I have noticed that whenever I eat gluten, I will have a horrible night with multiple panic attacks.


  9. From what I've read, the cravings go away after you've been gluten-free for awhile.  I never liked bread, so didn't have any cravings - so no first-hand experience.  Maybe you should consider finding a different part-time job?  Like at a clothing store or something where there's no food.

    A Celiac working at Pizza Hut sounds a bit like an alcoholic working as a bartender to me...  :lol:

     

    LMAO! You just made my day! I spent a lot of money on college *cough* $94,000 *cough* and need to make those $800 a month payments....pizza hut was the only one hiring in the area. It's tempting..but I try to remember the feeling that I get when I do eat gluten. Luckily, I am a waitress, so I don't actually come in contact with the pizza. I use clean instruments to touch everything, however I do make sure to wash my hands before even thinking about putting them near my face.


  10. So besides having a full time day job, I also carry a part time job at the local Pizza Hut....wow is that hard. Being a newbie, I've tried my hardest...ok well maybe not my hardest, but I've tried. The other night I caved and had some cinnastix. I thought I was going to die later that night. The gas, migraine, bloating, and the panic attack that followed shortly thereafter. How do you avoid eating those things you are just dying for!?

     

     

    Also, have any of you noticed a correlation between panic disorder and celiac? Just curious


  11. No dumb questions here.   :)  Most places don't have a problem with food brought in, at least in my experience.  I usually make a point of ordering a drink when I do that rather than my old standard of water. That seems to be enough when I am with "normal" diners. I rarely take my family out to eat because 4/5 of us eat gluten-free so it just isn't practical - especially with kids who are picky eaters.

     

    Most of the time I go out now, we do something that isn't food based (like a hike or movie) or just go out for coffee. It's just easier that way.  

    I would love to do that...unfortunately I live with two gluten eaters and food has always been a huge staple for us. I love cooking, but they like to go out more than stay home, so I either end up going out and not eating or staying home and excluding myself. 


  12. Ditto the others. It will take you more time to get used to it all. It is a bit weird bringing food places at first but within a few months, you get used to it. Perhaps put the money you were spending on eating and drinking out towards some gluten-free treats for yourself?

     

    Hang in there. 

     

     

     

    :o They make Chocolate Chex!!!??? Ugh! Why don't they sell it up here??   ;)

    Ha! I prefer the Honey Nut gluten-free chex.

     

    Dumb Question: Do places you have a problem with you bringing your own food? I hate being a bother so I try to make time to go home and eat before meeting up with anyone, but I also dont want places to think that I am loitering buy not buying any product.


  13. I am curious to see if anyone else feels the same way:

     

    I was diagnosed with Celiac last week and I have been gluten-free for about a month now. I live with 2 roommates who have no food issues. I have a hard time finding food that I can eat at a grocery store that I can afford and forget eat out with my roommates. I almost feel like the gluten-free lifestyle creates this "left out" feeling in my life. 

     

    Any tips?