I know that you are focused on your daughter at the moment, and that going gluten free is scary(!) but please consider putting your son on a gluten free diet also. I say this because I have had a lot of food intolerances - Dairy, Egg, fruit, fizzy drink, etc, but after going gluten free for 4 months, I now can eat these things - and I feel better. Even if he does not have Celiac, there is a strong possibility that he is gluten sensitive, (keeping your daughters journey in mind also) and that this is causing his other intolerances. I understand that it can take a year or more for the gut to heal enough to be able to eat these previously not tolerated foods (and it depends on the reaction that he has to them whether you want to risk them) In my experience being Gluten free is a lot more liberating than the other intolerances, and although a bit of a learning curve - if you are already doing this for you daughter, then maybe try for your son too?
Also - I completely understand your position with regards to the biopsy and having to continue the gluten with your daughter. However... this is the best chance you will have to have the definitive result that many people with Celiac find helps them stay completely gluten free for the rest of their life. Two more weeks of pain now, could prevent 3 months or more in the future, and even then the result will never be as strong.
Best of luck with your journey - is is horrible when family members are ill:(
New Here And Need Help! 8-Year-Old Daughter So Many Symptoms Even Though We Stopped Gluten Five Days Ago
in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Posted
Hi Worried Seattle Mom
I know that you are focused on your daughter at the moment, and that going gluten free is scary(!) but please consider putting your son on a gluten free diet also. I say this because I have had a lot of food intolerances - Dairy, Egg, fruit, fizzy drink, etc, but after going gluten free for 4 months, I now can eat these things - and I feel better. Even if he does not have Celiac, there is a strong possibility that he is gluten sensitive, (keeping your daughters journey in mind also) and that this is causing his other intolerances. I understand that it can take a year or more for the gut to heal enough to be able to eat these previously not tolerated foods (and it depends on the reaction that he has to them whether you want to risk them) In my experience being Gluten free is a lot more liberating than the other intolerances, and although a bit of a learning curve - if you are already doing this for you daughter, then maybe try for your son too?
Also - I completely understand your position with regards to the biopsy and having to continue the gluten with your daughter. However... this is the best chance you will have to have the definitive result that many people with Celiac find helps them stay completely gluten free for the rest of their life. Two more weeks of pain now, could prevent 3 months or more in the future, and even then the result will never be as strong.
Best of luck with your journey - is is horrible when family members are ill:(