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RMJ last won the day on February 16

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  1. Figure 2 in this paper shows the time course for antibody level increases during a gluten challenge. They didn't test at 3 weeks, but the values went up nicely sometime between 3 and 4 weeks. This was a small study, only about 20 patients, but this is a paper that people refer to for determining the length of a gluten challenge.


  2. I don't see why you and your husband can't eat together. Is it that you can't both prepare food at the same time? Gluten on the plate of the person next to you is not going to jump over and harm you.

    Unless there is flour all over the inside of the oven it shouldn't be a problem. A thorough wipedown should take care of it. You could always cover the food in the oven if it worries you.

    I think dishrags shared between gluten and nongluten dishes could be a problem. I use dish brushes and have two, different styles, for easy identification, one for my husband's dishes and one for mine (I don't have a dishwasher either). I wash dishes right away so there are not gluten dishes in the sink when I'm washing my dishes. Gluten is easy to scrub off of smooth surfaces like a sink. If the sink has been scrubbed, looks clean and feels smooth I wouldn't worry about it.

    People aren't "covered in gluten" unless they work in a bakery! I think you're worrying a little too much. I hope you can find a different (lower) level of concern that keeps you healthy and your family happy.

  3. That is a very low positive. With this type of test, the values can vary about 5% if you run the same blood sample several times. It could easily be 19 (negative) or 20 next time.

    That does look like a good list of tests to run. The "w/rfx" (with reflex) might mean they will only run it if the Ttg is positive. That is what my doctor's lab does. You might want to check that and ask to have it run no matter what. Or it might mean they will do an EMA titer only if the EMA is positive.

  4. You know you have celiac, you know your antibodies are still high. Thus they could still be causing all of your symptoms. Celiac is associated with many diverse symptoms; here is a link with 300 symptoms from the University of Chicago Celiac center.


    This paper describes a gluten contamination elimination diet. I am tryng it to see if it will bring my antibody levels down. I haven't had them remeasured yet, but after I started the diet I started to feel really good!


  5. The FDA had a workshop in March about development of treatments for Celiac. This webpage has the presentations (below the IBS presentations).


    I learned some interesting things. For example, the blood tests are not actually approved for monitoring recovery, just for aid in diagnosis.

    The FDA is supposed to issue a transcript of the meeting soon.