RMJ

When a lab develops their own test, and only runs it in their own lab, they do not need to go through the rigorous FDA approval process for diagnostics.

Winjer, I don't think one can assume that positive TTG results in a non-celiac are a response to wheat.  I haven't seen any scientific literature on the subject, that's just my educated guess.

Celiac antibody tests are immunoassays.  They use antibodies to detect antibodies.  I am a scientist and used to develop this type of assay.  They are NOT perfect.  Even those approved by the FDA (or Canadian equivalent) can give false positives and false negatives.  However, MOST positives and negatives are real.  

I looked up the FDA information on the Bioplex assay (type indicated in your lab results).  They occasionally got false positives from Crohns and rheumatoid arthritis, about one in 20 patients with those disorders came up positive. 

One thing that might help you determine if your positives are real or not - after being carefully gluten free for at least six months, see if your antibody levels go down significantly.  This would not be meaningful if your diet is being contaminated with gluten (which perhaps it is if you're not feeling any better)?  So if levels don't go down it could be either that you had a false positive, or gluten contamination.

I hope you find answers.

Ruth

I've switched to eating peanuts that I take out of the shells myself.

I think you could taste the difference if you do it with foods.  Instead, you could get empty gelatin capsules, fill some with a gluten free flour, and fill the others with actual gluten.  They might look a bit different, but your partner could hand them to you each day when your eyes were closed.  With pure gluten you wouldn't have to take too many each day.

I decided to switch to gluten free shampoo but ONLY because I have long hair and it gets in my mouth a lot.

How far do you go in avoiding processed foods that may have been contaminated before they get to you?  At first I just avoided anything with gluten-containing ingredients.  My antibodies went down but not to normal levels.  I had to use Fasano's gluten contamination elimination diet:

http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3598839/pdf/1471-230X-13-40.pdf

Usually the ranges I've seen for positive are >3, or >19.  I think it is likely that you are high positive for the two celiac tests.  (The Immunoglobulin A test is not a test for celiac, it is to be sure your IgA is in the normal range because if not, the other tests aren't valid if they are negative).

Keep eating gluten until you see the GI in case he wants to do a biopsy to confirm the diagnosis.

It would help us to help  you if would you list the normal ranges from your lab report as they can vary from lab to lab depending on what manufacturer's test they use.  

A week and a half is not long enough for a gluten challenge if you've been gluten free for months.  Eight to twleve weeks is more like it.

Looks like they did a good job of testing you!  Your IgA level of <1 is VERY low (that is total IgA, not celiac-specfic IgA).  Because the Total IgA is so low, any celiac IgA tests would be useless.  So for the celiac tests they looked at IgG instead of IgA and those are both high positives.  

Gastroenterologist.  Although she is not a lot of help.  She didn't suggest the GCED, I did that on my own.  She does order the antibody tests when I ask for them.

I've never had obvious symptoms so it was the antibody levels.  

I thought I was gluten free, but  I had to do the Gluten Contamination Elimination Diet to get my levels down that last little bit.

http://www.biomedcentral.com/1471-230X/13/40

I am happy for you!

Some doctors won't give a celiac diagnosis without a positive biopsy, no matter what.  I was high positive on five different blood tests (TTG IgA and IgG, DGP IgA and IgG and EMA).  All values went down to normal or very near normal on a gluten free diet. I could not have a biopsy due to other health problems.  My GI will not give me a celiac diagnosis.

On November 3, 2015 at 6:36:33 PM, Seeking said:

  I am okay with being gluten free but wonder if the blood test could be wrong. Should I get another blood test?

You probably know this, but just in case - if you have another blood test after you've done a good job being gluten free, it will probably be negative.  But that does not mean the first one was wrong.  It means you have celiac and are keeping it under control with your diet.

Have all of your tests been done by the same lab?  Unlike blood glucose and Vitamin D, different labs have different units and different ranges for celiac tests so they can't be compared.

TTG and DGP are both celiac tests.  They are looking for different types of antibodies which may be involved.  They do NOT both have to be positive to indicate celiac.  One is enough.  Hopefully nvsmom will chime in with the explanation of the differences, or someone will quote her.

If you don't eat gluten your numbers can get to the negative range, it may just take a while.  I'm almost there after 3 years.

I hope you get some answers and feel better soon.

Are you sure that all of yur vitamins and supplements are gluten free?

Are you in Canada?  Are these links to the lab in question?

http://tests.lifelabs.com/test_information.aspx?id=25513&view=reporting

http://tests.lifelabs.com/test_information.aspx?id=25098&view=reporting

Do you have the lab ranges for the tests?  It is difficult to say much without those, but it is very likely that the gliadin peptide IgA is positive.  Some of the others might be also.  If I were you, I would get a copy of the complete results, make an appointment with a gastroenterologist, and get a new primary doctor.

Panel 2 is the one that tests for celiac with the DGP and tTG tests.  Panel 1 does NOT have any celiac-specific tests.

I eat short grain brown because I like the flavor.

Here's the General Mills press release for the recall:

http://generalmills.com/en/News/NewsReleases/Library/2015/October/cheerios-10-5/645b5aaf-c2ec-4661-b968-391f41953bfc

I don't know where you live.  I was able to order my original TTG tests through mymedlab.com, but not the DGP tests.

https://www.mymedlab.com/locations