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About darkangel

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  1. Birth control pills can't be good for you, can they?

    My gynecologist put me back on them to alleviate symptoms of premenopause - night sweats, insomnia, killer PMS, cramps. In the years before menopause, it's not unusual for hormone levels to go haywire, causing all kinds of problems. He intends for me to stay on them indefinitely. My periods got lighter and lighter and now are pretty much non-existant, though I still experience some montly symptoms. I asked him about the periods stopping and he said it was normal.

    Recently, I visited my general practitioner, who practices integrative medicine - allopathic and alternative mix - who I really trust. I asked him about being on bc pills until menopause and he said it was fine and actually probably a good thing for me, since I'm struggling with all the digestive issues.

  2. If you're feeling pain high, up under your ribs, that's not your intestines... maybe gall bladder?

    I suppose bacterial overgrowth could cause pain and spasming, but the more obvious symptoms I associate with overgrowth of bad gut bugs are sudden and severe and/or chronic abdominal bloating, gas and gurgling, increased sensitivity to foods, brain fog, coated tongue.

    I associate intestinal pain and spasms more with eating foods your body's unable to properly digest. Have you noticed any pattern of eating specific things that trigger these symptoms?

  3. OMG THAT'S MY ENTIRE DIET!!!!!!!! ARUGH!!!!! I'm just going to keep my food journal and take it to Dr. Green...any one know if he takes Cigna?

    You don't have to eliminate these items permanently. The idea is to eliminate them and use a very careful diet until you stop bleeding. Then she has other levels that are less restrictive for lesser symptoms like bloating and gas.

  4. Are you sure there's not something else going on? Your extreme fatigue and achiness could be attributed to some unrelated bug or virus. I just found out thru blood tests that I have mono (again). I had it in college and my doc says the virus stays in your system and can "reactivate" periodically. It's my hunch when you're feeling stressed and your body is at a low ebb due to problems with celiac, you're more susceptible to other problems. Just a possibility. Regardless, try to be good to yourself. Get plenty of rest, plenty of fluids, treat yourself to something you enjoy and don't feel guilty about it. This is a time of adjustment for you... and it's going to take a while to come to terms with your diagnosis.

  5. when it comes to food I'm very into habits and fresh food it's fresher, yummy and just GREAT! Also it's a no brainer when it comes to "is this gluten-free?" I eat fresh vegies, fresh free range and no hormone meat, free range and healthy fed eggs, whole foods gluten-free bread, gluten-free cerial, fruit, milk, cheese (no blue), gluten-free coffee, and all the snickers bars I can eat! I drink water mostly, sometimes coke and sometimes tea and wine.

    am i doing anything wrong?

    Well, yes. Something is obviously still causing serious problems for you. It would be nice if just going gluten-free could be the answer for everyone, but a diseased gut often requires a much more careful diet... particularly in the presence of frequent bleeding.

    There's a great book called Listen to Your Gut by Jini Patel Thompson. I'd highly recommend it. Here are the things I've discovered from all of my research to be problems for people with any kind of digestive disease:

    Caffeine - Inhibits absorption of vitamins and minerals. Coffee is the worst thing you can drink. Really aggravates the colon, in particular.

    Carbonated drinks - The last thing you need is more gas, sugar or caffeine in your system.

    Milk/milk products - Most folks with gluten intolerance also have problems with dairy. It could be the lactose or it could be the casein or both.

    Raw or lightly cooked vegetables - It's very hard for a compromised digestion to break down the tough fiber matrix in raw or lightly cooked veggies and vegetable and fruit peels.

    In Jini's book she gives dietary guidelines for various symptoms, in order of severity. Below are the guidelines to stop intestinal bleeding. This is the most strict diet before having to go on a bowel rest elemental diet. I'm not trying to frighten you, but impress on you the seriousness of your situation.

    Stop Intestinal Bleeding Diet


    Alcohol, caffeine, decaffeinated coffee, carbonated drinks.

    Cheese, cream sauces, milk products.

    Sour, vinegary, acidic foods and condiments.

    Tomatoes, tomato-based foods.

    Citrus fruits or juices, pineapple, grapes, cherries, raspberries.

    Cabbage family vegetables, beans, lentils, raw vegetables, coconut, roughage/high fiber foods, leafy green vegetables, hot/spicy foods, deep-fried foods, red meat, nuts and seeds.

    Margarine or butter substitutes, artificial sweetners, carrageenan.

    Yeast, sugar if necessary.

    Garlic, ginger, cumin, chilies, pepper, paprika, tumeric.

    Processed foods; preservatives, MSG, nitrates, etc.

    Do eat:

    Eight glasses of spring water/day, weak Japanese green tea.

    Well-cooked carrots, zucchini, pumpkin, potatoes, sweet potatoes, yams. Acorn, butternut and spaghetti squash. Avacados, cucumber, regular and shiitake mushrooms, seaweed, tofu.

    2 eggs/day maximum, non-oily fish; sole, cod, sea bass, monkfish. Shrimp, scallops, chicken and turkey. Meat or vegetable broths.

    Basmati rice, dry curd cottage cheese.

    Well-ripened bananas, baked apples and pears, organic, no sugar added applesauce.

    Light, extra-virgin or virgin olive oil; cold-pressed sesame, flax, hempseed or sunflower oil.

    Basil, oregano, thyme, dried cilantro, gluten-free soy sauce.

  6. You might also want to explore the Specific Carbohydrate Diet which is also a grain-free and mostly dairy free diet shown to be helpful for all types of digestive diseases. http://www.scdiet.org

    I'd disagree with the previous poster. I do find these diets to be difficult (although certainly not impossible) to stick to because of their restrictiveness. However, if you find them to be helpful for you, then the increased health and fewer symptoms/problems will probably be the reinforcement you need to stay with the program.

  7. It's possible you have food reactions other than OR in addition to gluten. People who have trouble with gluten often have trouble with dairy (lactose and/or casein). If you're eliminating one without the other, that could explain your ongoing discomfort. Other common offenders are yeast, sugar, corn, eggs, tree nuts, soy and peanuts. An elimination diet and a careful food journal would help you find the culprit.

    So, from your posts, I'm gathering your doctor has ruled out Type II diabetes? Yet from your symptoms, it sounds like you do at least experience some blood sugar issues. Eating 5-6 small meals a day rather than 2-3 large meals, or worse, starving yourself, will help keep you on an even keel and you should be able to avoid dizziness and blood sugar crashes.

    Ya know, we've all got horror stories we can tell about different doctors, but I hate to see someone who's suffering give up on the medical community. Educating yourself, experimenting with foods, keeping a journal of symptoms, reading all the digestive health books you can get your hands on is very important - but so is finding a doctor you feel can help you. Don't give up after one or two (or more) bad experiences... keep looking for the right one. Ask friends or relatives for referrals or see if someone here lives in your area and could refer a wise, helpful and reputable doc. From your original post, I really think you NEED to see a qualified gastro doc who can help you pinpoint your trouble.

  8. I feel you. Someone brought apple pie to work today and twice I've had people stick their head in my office to make sure I know it's out there and get a piece.

    We actually have a couple of celiacs here where I work. One lady baked me a gluten-free cake - even though I haven't been officially diagnosed - and was so proud of herself. I thought it tasted alright, but my coworkers here in my division all hated it. There are some nice gluten-free alternatives out there, but some things just can't compare to the "real" thing.

  9. Anywhere from late 30s on up you're fair game for perimenopausal symptoms. Many women go through a period of wildly fluctuating hormonal levels before they hit menopause. I experienced a worsening of PMS symptoms - up to two weeks before my period, worse cramping during my period that lasted longer than it used to, night sweats, insomnia and a sex drive suddenly through the roof. I tried OTC progesterone creams, but ultimately ended up seeing my OB/Gyn who put me on low dose BC pills to stabilize my hormone levels.

  10. I am gluten, soy, corn, legume and nightshade-free. I recently re-introduced a little white potato but the jury is still out on whether that's okay. I'm also mostly dairy-free, but find now I can have an occasional hunk of Cabot cheddar cheese and it's fine. This is over a year in, though. You may need to be very patient and limit your diet quite a bit for awhile. It will get better, though.

    I feel better when I avoid all grains, too. And yes, you do begin to feel there's very little you CAN eat, but it keeps meal planning simple. LOL

  11. Increased gut troubles around that time of the month are common. An explanation from Oprah's Web site:

    Dr. Masterson has a single word of reasoning: hormones. "All women react differently to hormones," she says. "People don't realize that the hormones in our body control our temperature, women's temperature, around the time they ovulate. It's responsible for the acne around periods that people hate. Breast tenderness. It's responsible for so many things and our metabolism, slowing down the gastrointestinal tract, the stomach, that's why a lot of pregnant women will become constipated or have diarrhea because of those high hormone levels during pregnancy.

    Again it's the same thing with the menstrual cycle. The ebb and the flow of hormones can cause constipation and diarrhea.

  12. I did not know that Crohns causes blunting of villi, but that disease certainly runs in our family. However, the colonoscopy showed no inflammation or damage, so I am stumped.

    From the wikipedia definition of Crohn's:

    Biopsies may also show chronic mucosal damage as evidenced by blunting of the intestinal villi, atypical branching of the crypts, and change in the tissue type (metaplasia).

    Damage to intestinal villi in both UC and Crohn's is discussed at length in the book Breaking the Vicious Cycle.

    You may also find this interesting:

    The diagnosis of Crohn's disease can sometimes be challenging, and a number of tests are often required to assist the physician in making the diagnosis. Sometimes even with all the tests the Crohn's does not show itself. A colonoscopy has about a 70% chance of showing the disease and the rest of the tests go down in percentage. Disease in the small bowel can not be seen through some of the regular tests; for example, a colonoscopy can't get there.

  13. Yes i have, i saw him yesturday with all those symptoms. I said i should try and go through the next 6 weeks. He assured me my symptoms would go when i stop gluten. i am monitoring them and believe me if they get any worse i am going to stop

    Well, it's a shame he can't accomodate you by moving the test up further, but if you're determined to get a hard and fast diagnosis by the gold standard of biopsy, I guess you'll just have to hang in there. Many of us have suffered for years before receiving a diagnosis - (still working on getting mine) - I guess it's your choice.

  14. I drank 1 container of my probiotic last night & almost instantly my belly swelled to the size of a basketball & was rock solid - like it could get bigger. I did a bunch of deep breathing and relaxed and didn't really eat anything else - and today my tummy's flat and I feel better than I have all week.

    Rebuilding good gut bugs is just half the equation. If you've got an overgrowth of bad bacteria and/or yeast, you need to take steps to figure out what you've got and get rid of some of the bad stuff before the good bugs will have a shot at repopulating. An anti-candida diet would help. Sugar, alcohol and yeast are going to make the problem worse.