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About darkangel

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  1. I don't understand why I crave the gluten sometimes even though it makes me feel so bad.. hmm

    Intense food cravings are a very common sign of food allergies and/or sensitivities. It's like an addiction. Dairy can also cause the nasal stuffiness and extra mucous. Folks who have problems with gluten often have problems with lactose, too. With the pizza, you're getting a double whammy.

    Sometimes I don't feel validated in being so picky and gluten-free.. I feel like I'm being a hypochondriac instead. I just don't think I could cause this kind of nausea or this sore on my tongue.

    Try reading back over your original post with an open mind, as if someone else posted it. Your body is desperately trying to tell you something's very wrong. It's up to you to decide if you're going to listen and do something about it or continue to suffer.

  2. I'd suggest you find a gastro doctor familiar with celiac - maybe you could see your relatives' doctor? - and give it one more try. Request the full celiac blood panel and the biopsy. If results are inconclusive, I'd still give the gluten free diet a try to see if that resolves your symptoms.

    Don't let anyone tell you what you feel is "all in your head" or make light of your situation. Your body's trying to tell you something is not right. It's up to you to find a supportive doctor who will help you figure out what's going on. College is going to be tough if you have to deal with on-going health issues. I know because I struggled with "IBS" and limped through while eating a terrible diet and popping anti-spasmodics. (I didn't know any better at the time and just did what my doctor told me to do.) You want to be able to enjoy this time in your life. I feel certain a uni cafeteria staff has dealt with special dietary requirements and food allergies... eating gluten free on campus may be easier than you think.

  3. There are some doctors that think that celiac can manifest in the colon (versus the small intestine) as an IBD like Crohn's or Colitis.

    Sometimes I wonder if they aren't different manifestations of the same problem as opposed to totally separate diseases. I think there's alot about digestive health we still don't understand. And in my experience, most allopathic gastros, in my area at least, have very little desire to learn more beyond their usual drugs and surgery approach.

  4. If I eat what she cooks - vegetables mainly, albeit fresh, but cooked - it tears me apart. I will be out of commission and in pain.

    For a compromised digestive system, veggies need to be well-cooked, to the point of being soft/soggy. I know. That flies in the face of the health nut raw or lightly steamed mentality. But overcooking breaks down any tough fiber matrixes and helps make veggies easier to digest. Any tough skins should be removed, too. The vegetables that seem safest to me are canned organic green beans and sweet peas, frozen peas and carrots, and the squashes - zuchinni, winter squashes and summer squash - are good, but you have to peel them before cooking. Peeled, baked apples or applesauce, canned pears and peaches, and very ripe bananas work well on the fruit side.

  5. I was diagnosed with IBS years ago and given anti-spasmodics and anti-anxiety meds to cover up the symptoms. In 1999, I was diagnosed with ulcerative colitis, then they thought it might be Crohn's, then they went back to ulcerative colitis. No one tested me for celiac disease, in spite of my requests. Now, I'm having symptoms that are atypical for UC and finally got my GI to run a full celiac blood panel. I have a feeling the results will be inconclusive since I've been eating mostly gluten free for a long time now. So, I consider myself to be misdiagnosed and I still don't know anything for sure but I do respond well to a gluten and lactose-free diet... in fact, avoiding all grains and starcy carbs seems to help me.

  6. She should know what leaky gut means, but alot of allopathic gastro docs don't. They're not trained to look at the whole person, to consider gut ecology, to treat with probiotics or any other natural supplements or dietary modifications. They're trained to find diseases, stick a label on you and give you drugs or perform surgery.

    If you can find a naturopathic or complementary medicine doctor in your area, they could help you treat leaky gut. The company I know of that tests for leaky gut is Genova Diagnostics (used to be Great Smokies Diagnostic Lab) and the test is called the Intestinal Permeability Test. More info here: http://www.gdx.net/home/assessments/ip/ I believe you can order the test kit and take it on your own at home, but you'd be better off finding a medical professional who can guide you and help interpret the results.

    I believe the Comprehensive Diagnostic Stool Analysis test detects candida levels. But you can try the candida questionnaire to see if your symptoms indicate a candida overgrowth:


  7. Right now, I'm in the middle of a bad flare up (D about 10-15 times per day) and the doctor put me on Asacol. So far that's not working and the doc said if it's not under control by Friday, he wants to put me on Prednisone. Arrggh!

    You might want to ask your doctor about azulfadine (sulfasalazine). It's an older drug, similar to Asacol, but not time-released. Many folks have bad reactions to Asacol but do well on azulfadine.

    Prednisone, IMHO, should be a last resort. The side effects are horrible and can do long-term damage. If you need stronger medication, you might look into immunosuppresants as an alternative to steroids.

  8. ah I cringe at the thought of that! But that i what I was thinking.... I'm still looking for a new doctor, but i think it is time to eliminate.

    Yeah, I know... it's not fun. I joke with my husband that if there's anything I enjoy eating and find tasty, it will cause problems for me and have to be eliminated. LOL But yeah... sounds like your body's trying to tell you something's still offending.

  9. Alcohol can certainly stir up a sensitive gut. I hope you're eating more than cheese dip and chips. If you have issues with gluten - and it sounds like you do - dairy products will probably cause problems, too. I would recommend a safe diet of lean chicken, turkey and fish, rice, potatoes and soft cooked vegetables that will go a long way towards helping your gut settle. Forgive me if I've read too much into your posts, but saying you ate nothing but brats and buns, cheese dip and chips concerns me. As sick as you are, you don't want to be just "gluten free," you also want to eliminate alcohol, lactose and follow a soothing diet that's nutritious and will help calm things down.

  10. I have a poo question too!

    I'm going like 3-5 times a day, it ranges from D to constipation to somewhat normal. ....is this normal?! I have been eating gluten-free and haven't changed my eating my tummy is never settled, it's ALWAYS moving, it's odd i can feel it moving.


    Sounds to me like there's something else irritating your digestive system besides gluten. May be time to do some detective work with an elimination diet.

  11. Brain fog, short-term memory loss, inability to concentrate are all also symptoms of candidiasis - an overgrowth of bad bacteria in the gut... a very common state for those of us struggling with various digestive problems. It's not limited to celiac disease. You might want to take this online quiz to see how many symptoms match the candidiasis profile:


  12. The hard part is not actually being diagnosed and wondering if I'm giving up foods when I really don't have to.

    Exactly. It's one thing to eat something knowing it might cause some temporary discomfort. It's another thing to eat something knowing it's destroying your digestive system. To further muddy the waters, there are plenty of times I've "cheated" and felt no ill effects... so you can't help thinking, "Gee, this must be alright, so long as I don't do it very often."

  13. To make a long story short, people who have digestive diseases - ulcerative colitis, Crohn's, what have you - have impaired digestive abilities. Most are unable to completely digest and absorb gluten. Lactose is another common offender. Anything that's not properly digested can irritate the gut and feed the bad gut flora, making the problem worse. Crohn's and ulcerative colitis both respond well to a grain-free, lactose-free diet.

    Ulcerative colits affects the inner lining of the large intestine. It usually starts on the rectum end and works it's way up and around. At it's worst, the entire colon can be affected. Crohn's can strike anywhere throughout the digestive system, but is usually found in the small intestine. It affects the entire intestinal wall, not just the inner part. Both diseases are "inflammatory bowel diseases" and are considered to be auto-immune responses. Celiac disease affects the small intestine but is resolved with a gluten-free diet. UC and Crohn's are considered chronic and incurable.

  14. I'll step up to the plate and admit I consider myself to be "gluten intolerant," but the jury's still out on celiac disease, and I view being GI as less serious than having celiac disease. As someone who's gluten intolerant, I avoid gluten 95% of the time, but have been known to cheat on special occasions, knowing it will probably cause me some discomfort in the same way folks who are lactose intolerant may enjoy the once-in-a-blue-moon bowl of homemade ice cream that's just too good to pass up. If my tests finally come back with a positive result for celiac, it will be much easier for me mentally to maintain a 100% strict gluten-free diet, knowing the stakes are much higher at that point. Perhaps I'm wrong and need to educate myself further.

  15. Darkangel, who is the singer on your picture - cute!

    That's the fabulous Ms. Jada Pinkett Smith, rock star, actress and wife of Will Smith.

    To the OP, it took me many years to get to this point. It's really hard mentally to give up "normal" foods, particularly when family get togethers and all social stuff seems to revolve around food. I've shot myself in the foot many, many times, but now, I just find it easier to keep everything as simple as possible, even though I don't have a celiac disease diagnosis yet. People eventually realize you can't eat the office birthday cakes, etc. and stop bugging you about it. Anyway, in my experience, it takes a long adjustment period. Hang in there.

  16. You'll probably have more luck with a gastro doc than a general practitioner. And a GP may want to refer you anyway.

    I'd keep an open mind at the moment and don't assume you have celiac disease. Your symptoms could have a variety of causes. I'd just describe what's going on and mention the wheat sensitivity and that you felt your symptoms improved with an elimination diet... see what he says. You don't want to miss other possible problems he might be able to identify.

    There's a spectrum of reactions out there. You can have a wheat allergy or you can be "gluten sensitive" without having a celiac disease diagnosis. You can read more about it here: http://www.foodintol.com/celiac.asp#difference

    There's a lot of controversy about oats. There are tons of articles on this site alone. Here's one: https://www.celiac.com/st_prod.html?p_prodi...-05107373132.7b

    It's possible to be sensitive to oats regardless. I find I feel better when I eliminate all grains. You could eliminate them for a couple of weeks, then add them back in and see how they affect you personally.

  17. I would insist on getting the celiac panel. It's a simple blood test, and since your doctor has not found anything else wrong, what has she got to lose in doing this test?

    I gathered my GI never ran a full celiac panel because he didn't feel my symptoms fit the usual celiac symptoms and insurance wouldn't foot the bill if he couldn't "justify" it. It's only in the past couple of weeks that he's agreed to the full panel of tests because NOW he perceives my symptoms to be atypical for ulcerative colitis - the working diagnosis I've been living with for the past seven years.

  18. I run about 3 miles a day and used to lift weights twice a week until several months ago when I would get too fatigued from lifting. Is that also a celiac symptom?

    Yes, fatigue is common. If weight loss is an issue for you, I'd drop the running and add the weight training back into your routine. Even if weight loss isn't an issue, perhaps you could strike a happy medium by cutting back on the running and adding the weight training back... it's so important to maintain healthy muscle mass as we get older and it's good for bone density, too.