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Hobbes

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Hobbes last won the day on November 3 2015

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About Hobbes

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    Seattle, WA

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  1. Thank you !!!  I was wondering too whether this has been the cause behind my anxiety for years - I always used to say I "felt" anxious before I knew what I was anxious about - the sensations and feelings I'd feel and then I'd wonder what i was worrying about to pinpoint it.  I was only gluten free for three weeks but it was amazing the difference I felt.  At this moment in time although I desperately want to have biopsy's taken and get a diagnosis (tired of rriends and family thinking I'm a hypochondriac!), I'm not actually sure I can keep eating gluten - I feel so dreadful and its hard working!  I'm a self employed house cleaner/dog walking - not conducive to needing to dash to the loo etc, bor bending over to tidy/clean etc!

     

     

    Ali

     

    Yeah, I understand. My experience was very similar to yours, where I would get anxious in situations where there was nothing to be objectively anxious about.

     

    I would highly highly HIGHLY recommend staying on gluten until you take the test. I know that it's difficult, but you will get through it, and once you get confirmed Celiac it will make your life a lot easier.


  2. I had thought about waiting the month till my next appointment until I read you had to be on gluten for 12 weeks before testing. I have been trying to be gluten free for about 4 days. But I know there have been a couple of mistakes. Can I still test?

     

    If I understand your situation correctly, you have been just a regular gluten-eating person for a long time, and have recently eaten somewhat gluten-free for 4 days. If this is the situation, then yes, you can still test. It's highly unlikely that your villi have healed in the 4 days of somewhat gluten-free eating period. Until you get the test, keep eating gluten.


  3. Hi everyone,

    I'm 15, been diagnosed for 4 months, and still struggling a lot with my health, not feeling normal yet.

    And my friends and boyfriend don't really understand, and don't take it seriously.

    I'm super sensitive and I've been researching and have found that even if you kiss someone who's eaten gluten you can get contaminated. And I've spoken to my boyfriend about this and he's not willing to read books about celiacs or try and gluten free foods or anything..

    And with friends and boyfriend like that it just makes everything a whole lot worse!

    Any ideas?

     

    This makes me incredibly frustrated. You could try to explain to your boyfriend that you have a DISEASE. If he found out you were allergic to peanuts, he wouldn't try to throw them in your face, would he? It's a disease, and he needs to treat it like one. I understand that it can be hard for him to understand, but it's honestly not that hard to put into practice. I don't know how sensitive you are, but for most people simply having their boy/girlfriend brush their teeth after eating gluten is enough to stay gluten free. 

     

    Honestly, just refuse to kiss him after he eats gluten unless he brushes his teeth. He will also probably see you get glutened at some point, sometimes that's what people need to truly understand that this is something serious for you.

     

    I wish you the best of luck! And don't despair. There are plenty of great people out there that will understand and accommodate to you. I've been with my girlfriend for 9 months now and she is completely fine with it. She even defends me in front of other people!  :)

     

    Take the same approach with your parents. Simply refuse to eat anything with gluten in it, and do your research well. No parent will want their child to starve, so they will inevitably buy you gluten free foods.


  4. Hi everyone,

     

    I'm 20 years old and want to share my story and my perspective, on some common issues for people with celiac. 

     

    I have been gluten-free for various periods of time in my life, as I tried different diets to help get rid of fatigue, brain fog, and anxiety. When I look back, I can see now that I have been allergic to gluten ever since I was 13, maybe even before then. I ignored the symptoms for the most part, until at 16 I began to realize how I would feel different after eating certain foods. So I tried a variety of different diets over time: Atkins, Paleo, Vegetarian, Vegan, and Fruitarian. In between all of these diets I would try to go back and eat "normal" foods again, and would inevitably get sick, and the cycle would start over again. However, some of these diets, particularily Paleo and Fruitarian, made me feel really good. I realized what they had in common: they were gluten and dairy free. I did some research and figured out that I had celiac and was lactose intolerant. I've been on a gluten-free, vegan diet for about 9 months now. It's been tremendously successful for me.

     

    However, there are aspects of life that can be challenging for this lifestyle, namely college, work, travel, and dating.

     

    College is difficult because the beer&pizza stereotypes exist for a reason - college is full of it. The way I have gotten around it is to have a mini fridge, microwave, and large rice-cooker in my dorm room, which allows me to prepare essentially all my own food. Classes are also only a couple hours a day, so it's no problem.

     

    The problem for me right now is with work. I have two internships this summer back-to-back through-out the day. I leave my house around 6:30 am and don't get home until 5:00 pm. This represents a huge challenge to me, as I now have to either bring enough food to last me all day, or I have to bring some food and eat out at lunch. The problem is that there is essentially NO gluten free place in the area I'm working in that can provide me with 100% gluten free food on a daily basis. It's a challenge. Right now I'm just bringing enough food for the day, but it's hard to do. 

     

    Travelling is difficult for obvious reasons. You can't prepare your own food most of the time, and you're constantly on the move. However, I've found  it to be significantly easier than work. Since you're not tied down to being in any specific location, you're more free to hunt and explore for places that have gluten-free accommodations. 

     

    A lot of people on here have expressed concerns about dating, and I would like to echo some of the advice already given on here. It's really about respecting yourself first and foremost. Celiac is a disease. It is a medical necessity to you that you are gluten free. When you find the right person for you (and you will), they honestly will not care about the restrictions this poses to them. Life is about people and human contact first, and food second. Having celiac has made me more aware, empathetic, and tolerant of others' struggles and disabilities, and it's made me realize that we all have them. Nobody is perfect, and that's the point. When you're dating someone, it's because they want to be around you, not because they like to eat pizza (and besides, there's always gluten-free pizza).

     

    So there's both hope and despair, for on the hand being gluten free has allowed me to live once again! It has represented the largest single change that has brought me the most clarity, and I'm very thankful for that. But on the other hand, it feels like it has severely restricted my ability to be free. My life has become more routine and structured and isolated, and I sometimes feel irrationally afraid of the world (filled with gluten). So it's bittersweet, and I'm sure it's a normal part of the process as I learn to live with this. 

     

    It's really interesting how much diet truly does matter.