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ch88

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  1. Upvote
    ch88
    ch88 reacted to Scott Adams in Healing after celiacs testing   
    I do wonder if a gluten challenge for some people is worth the risks, especially in your case where it seemed that you had figured it out, and were happily gluten-free. Obviously I wasn't privy to your conversation, but asking a celiac...
  2. Upvote
    ch88
    ch88 reacted to GodsGal in Overwhelmed ;(   
    Hi Dawn! 
    First of all, I want to say, "You can do it!"  I was diagnosed with celiac disease (celiac disease) last February. It is a rough transition. You are taking the right steps and asking the right questions. 
    My doc...
  3. Like
    ch88
    ch88 reacted to David Dawson in Sick and losing the will to live   
    Thank you everyone who gave me your input in regards to my symptoms I thank you all from the bottom of my heart.i have finally improved with just being super strict around making sure no gluten was in my diet to the best of my ability...
  4. Like
    Scott Adams
    ch88 got a reaction from Scott Adams in Strange oral allergy?   
    What brand corn flakes did you use? Was it labelled "gluten free"? Some corn flakes have malted barely which is not gluten free. 
    Oats are also a very problematic ingredient (in that some people react to all oats) and they are v...
  5. Like
    ch88
    ch88 reacted to RMJ in My nightshade allergy may be celiac.. :-(   
    I’m glad you have a plan, but one month gluten free might not be enough to relieve symptoms, especially if you’re new to the gluten free diet and don’t know all the places that it can hide.  Also, some people find when they go gluten...
  6. Like
    ch88
    ch88 reacted to Celiawithceliac in Ataxia from Gluten ?   
    It took me 15 years to have ataxia. 
    my ataxia went away after 4 months on grain and dairy free lifestyle! 
  7. Upvote
    ch88
    ch88 reacted to Posterboy in N Acetyl Glucosamine aka NAG supplement shown to be helpful for Celiacs'; Forgotten Research rediscovered   
    To All,
     I also wanted to add this link on Lectins that explains them a lot better than I can.
     https://www.scienceofcooking.com/gluten-and-celiac-disease/lectins-and-inflammation.html
    It also has some nice information a...
  8. Like
    ch88
    ch88 reacted to paisleydaisy in There's hope for you yet!   
    Hi! 
    Just a positive note from someone 4 years into the gluten-free diet who had questions about worsening food intolerances, no change in lifelong insomnia and ongoing panic attacks (which came out of the blue a few years prior ...
  9. Like
    Leeger
    ch88 got a reaction from Leeger in Microwave use by celiac disease and non-celiac disease users   
    I don't see any risk with using the same microwave so long as you use a plate and a cover. 
  10. Like
    Posterboy
    ch88 got a reaction from Posterboy in Inositol and Theanine   
    Theanine as a mast cell stabilizer:
    https://pubmed.ncbi.nlm.nih.gov/21344174
    Mast cell activation and IBS:
    https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6009183/
    Histamine and the fodmap diet:
    https...
  11. Like
    Posterboy
    ch88 got a reaction from Posterboy in Inositol and Theanine   
    Inositol is a modified sugar. The body can make some of it under ideal circumstances so it is not technically considered a vitamin.  Some people might not absorb it very well though or their bodies might not make enough.  Cells need ino...
  12. Like
    Posterboy
    ch88 got a reaction from Posterboy in Celiac and Diabetic   
    Your welcome, hopefully it works or it helps at least! There is a lot of information online about how theanine helps with amino acid absorption and also down regulates inflammation pathways that are active in ibs and celiac disease. Also...
  13. Upvote
    knitty kitty
    ch88 got a reaction from knitty kitty in Celiac and Diabetic   
    Also consider theanine supplementation. It has neuro-protective, and strong antioxidant properties. It will help the cells in your intestine grow. 
    http://www.phcog.com/article.asp?issn=0973-1296;year=2018;volume=14;issue=55;...
  14. Upvote
    ch88
    ch88 reacted to Scott Adams in My nightshade allergy may be celiac.. :-(   
    Don't take this as official advice, but I have to deal with Kaiser Permanente, which is about as close as it comes in the USA to social medicine (it is a "not-for-profit" health care provider started by Henry Kaiser to provide free health...
  15. Upvote
    ch88
    ch88 reacted to cyclinglady in Dr Joseph Murray (Mayo Clinic) on COVID-19 and celiac disease   
    Dr.Joseph Murray (Gastroenterologist at Mayo Clinic) was interviewed by The People's Pharmacy. His recommendations for celiac disease patients:
    COVID-19 infection can present as GI symptoms, such as diarrhea, abdominal pain, bloating...
  16. Like
    ch88
    ch88 reacted to ravenwoodglass in Intestional Permability could a Vitamin Deficiency Cause It   
    I developed DH as a young child after being impaled. It was one of my first celiac symptoms. At that time I was eating lots of cereals and breads that were fortified. There is no way I was niacin deficient. Unfortunately we have two posters...
  17. Upvote
    ch88
    ch88 reacted to cyclinglady in Possible Celiac   
    Talk with your doctors, but all celiac disease testing does require you to be on gluten.  Since you have only been off for two weeks (and odds are you have still consumed gluten unknowingly since the diet has a steep learning curve),...
  18. Upvote
    ch88
    ch88 reacted to cyclinglady in Frustrated on the beach   
    Maybe you should listen to your body.  It seems to like meat, veggies, fruit and a little dairy.   Boring?  Maybe.  But feeling good trumps feeling bad on a traditional American diet.  
    My diet is about as restrictive as your...
  19. Upvote
    ch88
    ch88 reacted to knitty kitty in Recently Diagnosed and Family Issues   
    "Also, any suggestions for healing myself. I'm severely fatigued with headaches and cracks in the corners of my mouth, severe stomach pains and bloating (especially after eating anything), and horrible depression. "
    Wh...
  20. Upvote
    ch88
    ch88 reacted to cyclinglady in Diamine oxidase deficiency in untreated celiac patients   
    Good grief!  
    The MTHFR Gene and the variants of it are NOT defects!  The link you provided actually is trying to sell you supplements making it not very credible.  About 40% of the population has the MTHFR and all those people are...
  21. Upvote
    ch88
    ch88 reacted to cyclinglady in Blurry vision after gluten contamination   
    Yes, but I am not sure it is directly related to celiac disease. I have Hashimoto’s which in the past would swing wildly going from hypo to hyper.  So crazy my doctor could not keep up.  This all calmed down once my celiac disease was ...
  22. Upvote
    ch88
    ch88 reacted to knitty kitty in Lower right rib pain   
    Have you been checked for Gall bladder problems?  B Complex vitamin deficiencies?  Pernicious Anemia?  Magnesium deficiency?
    Keep a food/poop journal in order to see if there are any connections between input and output.
    ...
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