Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

knitty kitty

Moderators
  • Posts

    3,057
  • Joined

  • Last visited

  • Days Won

    150

Reputation Activity

  1. Like
    cristiana
    knitty kitty got a reaction from cristiana in Dehydration, dry skin and full body tingling when overheating   
    @Richard1973, welcome to the forum! 
    @cristiana is on the right track, stay hydrated. 
    Also have your potassium level checked.  Low potassium causes dry skin and dehydration.  
    We need Thiamine B1 to keep our p...
  2. Like
    MMH13
    knitty kitty got a reaction from MMH13 in Not Sure What to Think   
    Yes, I understand.  
    I get outbreaks on my legs if I wear leggings.  I switched to flannel, nice and soft. 
    Do ask your doctor about supplementing with B vitamins.  Niacin B3 helps the dermatitis herpetiformis spots heal...
  3. Like
    MMH13
    knitty kitty got a reaction from MMH13 in Not Sure What to Think   
    dermatitis herpetiformis that resembles folliculitis is a thing.  I've had blisters as well as the follicular type.  
    Any area is susceptible to an outbreak.  Keep in mind that dermatitis herpetiformis is pressure sensitive, so...
  4. Like
    MMH13
    knitty kitty got a reaction from MMH13 in Not Sure What to Think   
    Welcome to the forum, @MMH13,
    Yes, @trents and @Scott Adams have good advice.  
    Do try to get off the ppi, omeprazole.  
    This study found that people with Celiac taking PPI's like omeprazole are seronegative.  
  5. Upvote
    MMH13
    knitty kitty got a reaction from MMH13 in Not Sure What to Think   
    Good for your doctor to be wondering about it!  She's on the right track.  
    Anemia, diabetes and thiamine deficiency can cause seronegative results.  
    Unfortunately, if you go gluten free, your intestines will start heal...
  6. Like
    Scott Adams
    knitty kitty got a reaction from Scott Adams in Itch Relief for dermatitis herpetiformis   
    Removing dairy from my diet significantly improved my dermatitis herpetiformis.  My skin and itch cleared rapidly afterwards.  I suggest you try removing dairy and see if it makes a difference.  
    Taking the flushing kind of Nia...
  7. Like
    knitty kitty
    knitty kitty reacted to MMH13 in Not Sure What to Think   
    Thank you for sharing that about your dermatitis herpetiformis, it's really useful information. I'm particularly interested by what you said about pressure sensitivity; I suspected that the winter leggings I was wearing contributed to...
  8. Like
    knitty kitty
    knitty kitty reacted to DebJ14 in Joint swelling when ill even on gluten-free diet   
    Nobody told me about the high dose Thiamine, but when my husband was injured he was put on it, so I started taking it too.  I definitely saw improvement.  At this point my biggest concern is my right foot/ankle.  Tendon tears have ta...
  9. Like
    knitty kitty
    knitty kitty reacted to Posterboy in 14 year old with Celiac & EOE still suffering...   
    Nacina,
    Knitty Kitty has given you good advice.
    But I would say/add find a Fat Soluble B-1 like Benfotiamine for best results.  The kind found in most Multivitamins have a very low absorption rate.
    This article ...
  10. Like
    Posterboy
    knitty kitty got a reaction from Posterboy in 14 year old with Celiac & EOE still suffering...   
    @Nacina,
    I would add a B Complex to all that and extra thiamine B 1 and magnesium glycinate, and high dose Vitamin D to get his level up faster.  
    We need the B vitamins to repair our body and for energy to function. ...
  11. Like
    knitty kitty
    knitty kitty reacted to trents in 50 YO Male Recently Diagnosed with Celiac Disease   
    Welcome to the forum community, @ekelsay!
    Yes, your tTG-IGA score is strongly positive for celiac disease. There are other antibody tests that can be run when diagnosing celiac disease but the tTG-IGA is the most popular with...
  12. Upvote
    knitty kitty
    knitty kitty reacted to Sultana in Thiamine supplementation   
    I hope someone can help. I've read some of posts on here on thiamine and wondered if anyone knew about thiamine interactions with manganese? I've googled and found that thiamine and manganese work together. I read that manganese is also...
  13. Like
    knitty kitty
    knitty kitty reacted to plumbago in Partial Positive Biopsy/Negative Serology - is celiac still possible?   
    The supplements should work with time on a gluten free diet.
    I would be concerned about that sodium level. From the other results you posted, the trend seems to be downward. Please do follow up about that. It's not normal to walk...
  14. Like
    knitty kitty
    knitty kitty reacted to trents in Partial Positive Biopsy/Negative Serology - is celiac still possible?   
    1000 mcg of B12 supplementation is peanuts. You should be taking 5000 mcg. and you should be taking a high potency B-complex to boot. The B-vitamins are seldom found in isolated deficiencies but are usually deficient as a group. If you...
  15. Upvote
    knitty kitty
    knitty kitty reacted to Celiac16 in Almost in remission!!!   
    I second this!! I was diagnosed with POTS too and thiamine was a lifesaver along with going low carb (carbs and sugars deplete b1, and diabetics are ubiquitously deficient). It helped my vertigo, nausea, shortness of breath, and tachycardia...
  16. Upvote
    Celiac16
    knitty kitty got a reaction from Celiac16 in 26 years old and feel like an 80 year old   
    @Cramper,
    Welcome to the forum!  
    Your symptoms sound like what I experienced.  I had Gastrointestinal Beriberi.  Celiac Disease damages the small intestine so vitamin absorption is affected.  Alcohol damages the smal...
  17. Upvote
    Celiac16
    knitty kitty got a reaction from Celiac16 in Nausea and fatigue almost all day   
    @itarachiu,
    Have you been checked for diabetes?  Your reactions after eating are similar to my reaction of high blood glucose.  Panic attacks can occur if blood glucose levels stay high for too long.  
    Are you keeping a f...
  18. Upvote
    Celiac16
    knitty kitty got a reaction from Celiac16 in Constant sweating with celiac disease   
    I also have had hypothyroidism, fibromyalgia, OCD, PTSD, and osteoporosis, Wernicke's Encephalopathy, and type two diabetes.  I'm a Microbiologist.  My health has improved by taking high dose Thiamine, and supplementing essential vitamins a...
  19. Upvote
    Celiac16
    knitty kitty got a reaction from Celiac16 in Constant sweating with celiac disease   
    @brian1, welcome to the forum
    Sorry to hear you're not feeling better.  Improving one's vitamin levels are so important.  
    I use Thiamine, Pyridoxine B6, and Cobalamine B12 for pain relief in addition to a B Complex su...
  20. Upvote
    Celiac16
    knitty kitty got a reaction from Celiac16 in Almost in remission!!!   
    @lydialoo,
    Congratulations on your improvements!
    Dysautonomia and POTS are caused by Thiamine insufficiency.  Blood tests for Thiamine deficiency are not an accurate measurement of how well Thiamine is being utilized ...
  21. Like
    Celiac16
    knitty kitty got a reaction from Celiac16 in Mild guillaine barre syndrome   
    You are very welcome.  
    Yes, doctors don't treat the body as a whole.  Thiamine deficiency affects many body systems, many organs, but the body needs to be looked as as a whole, not just isolated parts.  
    Yes, thiamine defi...
  22. Upvote
    Celiac16
    knitty kitty got a reaction from Celiac16 in Mild guillaine barre syndrome   
    @Vicrob,
    Have you been tested for a thiamine deficiency? 
    I have two genes for Celiac Disease.  I developed vitamin and mineral deficiencies because Celiac Disease damages the small intestine so that these nutrients c...
  23. Upvote
    knitty kitty
    knitty kitty reacted to CelestialScribe in Could my infant son have been glutened? Hear me out.   
    Hey there,
    First off, I'm sorry to hear about the tough time you've been having with your little one. It's definitely possible for a baby to react to gluten at such a young age, especially considering the genetic predisposition...
  24. Like
    knitty kitty
    knitty kitty reacted to RMJ in Biopsy question   
    The magnification when the biopsy is observed under a microscope is greater than that of the endoscope.  So yes, the biopsy might be positive when nothing was seen during the endoscopy.
    I hope you get a clear cut answer!
    ...
  25. Like
    heyitsme
    knitty kitty got a reaction from heyitsme in How long until brain fog lifted for you? + my story in short   
    Remember that twenty percent increase in dietary thiamine causes an eighty percent improvement in brain function?  You can be on that borderline between minimum sufficiency and deficiency for a long time, years.  
    Try a combination of...
×
×
  • Create New...