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knitty kitty

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  1. Like
    SuzanneL
    knitty kitty got a reaction from SuzanneL in Weak Positive Test   
    @SuzanneL,
    Be sure to eat a sufficient amount of gluten between now and your endoscopy.
    According to recent research, updates to the gluten challenge are being implemented.

    Recommended intake of gluten should b...
  2. Like
    Blue Roan
    knitty kitty got a reaction from Blue Roan in Sick as a dog 6 weeks post-diagnosis   
    @Blue Roan,
    Get your zinc level checked, too.  Copper can accumulate if there's a deficiency in zinc.  Copper and zinc balance each other.  
    Great that your tTg IgA levels are reducing!  Good job!
     
  3. Like
    knitty kitty
    knitty kitty reacted to Baba Fats in New to all of this. But open to learning   
    That blows my mind. But I also have a friend who I told about the cooking situation, and he said he wouldn’t be able to date someone who he’d have to change so much of his style for. Not starting a relationship makes a little more sen...
  4. Like
    knitty kitty
    knitty kitty reacted to SuzanneL in Weak Positive Test   
    Thank you so much! I just got my endoscopy set up yesterday. May 29th. I hate to wait that long but something about insurance and the current medicine I'm on. Omeprazole. She said I had to wait eight weeks. I just want to know. If I'm...
  5. Thanks
    knitty kitty
    knitty kitty reacted to lydialoo in Almost in remission!!!   
    Hey everyone!
    I wanted to say thanks for all the help on here. Today I had some good news that my celiac is almost undetectable!!! 
    Actually turns out most my symptoms have been related to dysautonomia (POTs) and actually ...
  6. Thanks
    Blue Roan
    knitty kitty got a reaction from Blue Roan in Sick as a dog 6 weeks post-diagnosis   
    @Blue Roan,
    How are you doing?
    I checked on the ingredients of those Aussie Bites.
    Organic Rolled Oats, Organic Oat Flour, Organic Unsalted Butter, Organic Expeller Pressed Canola Oil, Organic Dried Apricots, Organic...
  7. Like
    cristiana
    knitty kitty got a reaction from cristiana in Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?   
    I've found good posture helps.  Keep your ears over your shoulders.  
    Our posture tends to suffer when glutened because we tend to round our back to allow for abdominal bloating.  As our tummies bloat, curving our backs allows for...
  8. Like
    cristiana
    knitty kitty got a reaction from cristiana in Growth spurt after diagnosis in adulthood   
    Welcome to the forum, @LimpToeTheTimeless
    Bone growth plates close in the late teens to early twenties, so it's doubtful you'll grow much taller, but you may start to bulk up in muscle.  Remember to boost your absorption of vitamins ...
  9. Like
    Scott Adams
    knitty kitty got a reaction from Scott Adams in Sick as a dog 6 weeks post-diagnosis   
    @Blue Roan,
    How are you doing?
    I checked on the ingredients of those Aussie Bites.
    Organic Rolled Oats, Organic Oat Flour, Organic Unsalted Butter, Organic Expeller Pressed Canola Oil, Organic Dried Apricots, Organic...
  10. Like
    knitty kitty
    knitty kitty reacted to Scott Adams in Uncertain diagnosis   
    So you are on a gluten challenge to be re-tested for celiac disease, and this is because you tested negative before? Since you have such bad symptoms may I ask why the official diagnosis is so important?  Approximately 10x more people ...
  11. Upvote
    knitty kitty
    knitty kitty reacted to cristiana in Recently had my esophagus dilated   
    Hello @BunnyBrown and welcome to the forum.
    I cannot say that I have had the procedure you describe, but recently I did have general surgery and was routinely intubated.  That pain was what troubled me most after the operation, ...
  12. Like
    patty-maguire
    knitty kitty got a reaction from patty-maguire in Recently had my esophagus dilated   
    Welcome to the forum, @BunnyBrown!
    Many people with Celiac Disease become deficient in vitamins and minerals even if following a strict gluten free diet for years.
    Thiamine deficiency disorders can present with dysphagia...
  13. Like
    cristiana
    knitty kitty got a reaction from cristiana in Recently had my esophagus dilated   
    Welcome to the forum, @BunnyBrown!
    Many people with Celiac Disease become deficient in vitamins and minerals even if following a strict gluten free diet for years.
    Thiamine deficiency disorders can present with dysphagia...
  14. Thanks
    knitty kitty
    knitty kitty reacted to Liquid lunch in Dealing with constant nausea and just feeling awful.   
    Hi @B1rdL0ver, I’ve been on a steep learning curve with my issues and found a few things that might help with yours.
    Skin problems -  I use neat cardamom essential oil, clove also works or a blend of the two which smells good. T...
  15. Upvote
    knitty kitty
    knitty kitty reacted to cristiana in Low ig but normal ttg. But the more I learn about Coeliac the more it would explain my daughters physical and behavioural symptoms.   
    Hello @Lrgthrcl
    I am a Mod but haven't been on the forum for a while as I have a lot on at work, but saw you post. 
    I think it is excellent that your daughter has been referred to paediatrics.  However,  if you do have pr...
  16. Like
    B1rdL0ver
    knitty kitty got a reaction from B1rdL0ver in Dealing with constant nausea and just feeling awful.   
    Updated Guidelines on doing a gluten challenge can be found here.
     
  17. Like
    knitty kitty
    knitty kitty reacted to B1rdL0ver in Dealing with constant nausea and just feeling awful.   
    Oooohh!
    I'll go read this! 
    Thanks @knitty kitty and @trents! I'll keep you both posted. 
  18. Upvote
    knitty kitty
    knitty kitty reacted to Beverage in How long before felling better ?   
    I ignored my doc's instructions to not eat oats, I ate Bob's gluten-free oats and gluten-free granola. It took about a month, but I got horribly glutened. I tried other gluten-free oats and still got sick. I eliminated them for awhile...
  19. Like
    knitty kitty
    knitty kitty reacted to Scott Adams in Cycle of dermatitis herpetiformis   
    Prilosec and PPI's in general are some of the most overprescribed drugs ever, and it has become clear that prolonged use can have very negative side effects caused by decreased nutrient absorption--the exact thing that celiac disease...
  20. Upvote
    knitty kitty
    knitty kitty reacted to Raquel2021 in Cycle of dermatitis herpetiformis   
    As mentioned by other eliminate dairy, eggs, and iodine rich foods. Seafood and don't forget about iodized salt. Just get yourself some sea salt instead and see if that helps. The rash can take a while to clear
  21. Like
    Liquid lunch
    knitty kitty got a reaction from Liquid lunch in Washing seeds   
    @Liquid lunch,
    Remember to stay away from cruciferous vegetables, for a while, too!!!  😺
  22. Like
    Scott Adams
    knitty kitty got a reaction from Scott Adams in Should I Wait? And How Long?   
    @Ginger38,
    I was diagnosed with Generalized Anxiety Disorder and Complex PTSD.  SSRIs did not improve my health.  SSRIs made my gastrointestinal symptoms much much worse, worsening my brain health as well.  
    What did wor...
  23. Upvote
    knitty kitty
    knitty kitty reacted to Liquid lunch in Washing seeds   
    @knitty kittyOoh that makes sense. I’m going to need to wait a while before any more experimenting though, collapsed in a heap with ballon belly.
    Cucumbers are now getting peeled and de seeded so hopefully that’ll help and Tem...
  24. Like
    Liquid lunch
    knitty kitty got a reaction from Liquid lunch in Washing seeds   
    Have you tried soaking them in distilled water?  Apparently distilled water can pull more lectins out of seeds and beans.
    https://pubmed.ncbi.nlm.nih.gov/29580532/
  25. Like
    knitty kitty
    knitty kitty reacted to DMulder47 in Weird celiac symptoms   
    Kitten kitty , thank you! This is all new to me. This is very helpful. 
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