-
Posts
916 -
Joined
-
Last visited
-
Days Won
14
Reputation Activity
-
CMCM got a reaction from cristiana in How Long Do Celiac Patients Live?
My mother was diagnosed (after nearly dying!) in 1967 at age 46. At that time it was challenging to be gluten free because there weren't any gluten-free foods at that time. She would buy rice flour at Asian markets and make baked g... -
CMCM got a reaction from Scott Adams in How Long Do Celiac Patients Live?
My mother was diagnosed (after nearly dying!) in 1967 at age 46. At that time it was challenging to be gluten free because there weren't any gluten-free foods at that time. She would buy rice flour at Asian markets and make baked g... -
CMCM got a reaction from MiriamW in How long does it take to get Gluten out of your system
Here's what happened with my mother. This was in 1967 when she was 46 almost no doctor knew about celiac disease. She was unable to keep food down and her weight had plummeted to 89 when she finally met a doctor who instead of telling h... -
CMCM got a reaction from MiriamW in 24 /48 hour fever, vomitting and sweating galore
For much of my life, despite having a mom with very severe celiac disease (she found out what she had when I was 17), I always thought my digestive issues were due to dairy. I had dairy problems from infancy, and have not really liked ... -
CMCM got a reaction from Scott Adams in How long does it take to get Gluten out of your system
Here's what happened with my mother. This was in 1967 when she was 46 almost no doctor knew about celiac disease. She was unable to keep food down and her weight had plummeted to 89 when she finally met a doctor who instead of telling h... -
CMCM got a reaction from cristiana in 24 /48 hour fever, vomitting and sweating galore
For much of my life, despite having a mom with very severe celiac disease (she found out what she had when I was 17), I always thought my digestive issues were due to dairy. I had dairy problems from infancy, and have not really liked ... -
CMCM got a reaction from cnazrael89 in Supplements for those Diagnosed with Celiac Disease
There seem to be a couple of ways to state gluten dangers. One is "made on shared equipment" with gluten products, and that one is a definite NO. The "made is a facility" one is something companies do as a CYA when it's not a dedicated g... -
CMCM got a reaction from Akilah Smith in Why bother with a colonoscopy?
You could be correct. I guess it all depends on how much you feel compelled to have a definitive diagnosis....or not.
Also worth considering is that the villous atrophy they are searching for in the endoscopy could be missed be... -
CMCM got a reaction from Scott Adams in Why bother with a colonoscopy?
You could be correct. I guess it all depends on how much you feel compelled to have a definitive diagnosis....or not.
Also worth considering is that the villous atrophy they are searching for in the endoscopy could be missed be... -
CMCM got a reaction from Scott Adams in Doctor won’t test me because I don’t have blood in stool
Good grief, so sad to see there are still so many clueless doctors out there. Keep eating gluten, and like others have said, I'd suggest immediately ordering the imaware celiac test suggested by Scott as it's cheap and easy. I rec... -
CMCM got a reaction from Scott Adams in Psychotic Symptoms Went Away
Thanks....I'll read this article in detail, looks like a lot of good information. I don't have depression issues myself (someone else around here brought it up), but I'm trying to figure out which vitamin and mineral deficiencies I m... -
CMCM got a reaction from Scott Adams in No Gluten Intolerance Detected
I don't remember a lot of details and I was only 17 at the time, but I'm sure there wasn't any sort of diagnostic celiac blood panel back then. And no gene test either. I do know she had an endoscopy to diagnose it. After a parade of... -
CMCM got a reaction from SiouxsieRice in No Gluten Intolerance Detected
Long ago, my mother almost died before she was diagnosed with celiac disease (1967!!). She was extremely sensitive to even the smallest amount of cross contamination, and would get violently sick in such cases. For this reason, she r... -
CMCM got a reaction from Wheatwacked in Gluten challenge and financial trouble
Your suspicions about celiac disease have led you here, so I assume you have been researching this to some extent. You COULD certainly spend a fortune trying to pin down a definitive diagnosis from doctors and expensive tests, but the ... -
CMCM got a reaction from Scott Adams in Long and Winding Road (or intestine, lol) to wholeness...and a "Hi, I'm New!" post.
Welcome, you have arrived at a great place to read and ask questions!
What a trip you have been on with your health.....a story that will not be surprising to many of us around here. Getting a diagnosis of celiac disease or ... -
CMCM got a reaction from AmericanaMama in Long and Winding Road (or intestine, lol) to wholeness...and a "Hi, I'm New!" post.
Welcome, you have arrived at a great place to read and ask questions!
What a trip you have been on with your health.....a story that will not be surprising to many of us around here. Getting a diagnosis of celiac disease or ... -
CMCM got a reaction from Posterboy in Gluten challenge and financial trouble
I had extreme nausea, also rather a lot of vomiting in my first several weeks of gluten free. Through recommendations of taking the Benfotiamine (form of thiamine) that I got HERE on this forum, I've been taking it daily and no more ... -
CMCM got a reaction from knitty kitty in Gluten sensitivity? I miss gluten.
I'm a person who can "sort of" tolerate gluten for varying periods of time. I've been either strictly or "mostly" gluten free for the last 15 years. After a year strictly gluten free about 14 years ago, I was so much better that I ... -
CMCM got a reaction from Neroli D in Seeking clarification on genetic HLA-DQ test result
I suspect very few GPs know about celiac. Even some gastroenterologists (who you would think WOULD know about it) are uninformed. It's really hit or miss finding someone who knows more than just sketchy information about gluten sensitivity a... -
CMCM got a reaction from knitty kitty in Gluten challenge and financial trouble
Genetic testing is NOT going to diagnose anything. However, it's good knowledge to have if you have determined that gluten makes you sick and not eating it makes you better. However, it's a real rabbit hole and can be a money pit t... -
CMCM got a reaction from Scott Adams in Gluten sensitivity? I miss gluten.
I'm a person who can "sort of" tolerate gluten for varying periods of time. I've been either strictly or "mostly" gluten free for the last 15 years. After a year strictly gluten free about 14 years ago, I was so much better that I ... -
CMCM got a reaction from Scott Adams in Gluten challenge and financial trouble
Your suspicions about celiac disease have led you here, so I assume you have been researching this to some extent. You COULD certainly spend a fortune trying to pin down a definitive diagnosis from doctors and expensive tests, but the ... -
CMCM got a reaction from Scott Adams in Gastritis and newly diagnosed coeliac
I most recently (starting end of December) was plagued by a bunch of symptoms at once due to eating gluten when I shouldn't. Severe vertigo, followed by a week to 2 weeks of mild sporadic dizziness, but in particular a severe flare-... -
CMCM got a reaction from Scott Adams in Diagnosis has triggered health anxiety and I'm struggling
Things really are so much better now! When my mother was diagnosed in 1967, her doctor said "Don't eat any wheat/rye/barley." That was was the extent of his advice. There were zero gluten free foods in the stores, zilch. No internet exi... -
CMCM got a reaction from Scott Adams in Update: GI said “celiac”, says endoscopy “unnecessary”. Do celiacs need the proof?
For a long time I was convinced I needed a positive blood test (both tests I've had at different times were negative) and possibly a biopsy to learn positively whether or not it was celiac. My recent reading on this subject has led m...