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Mixy

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  1. Beer - might or might not be the same. A lot of beers actually don't have very much gluten. When they recommend a slice of bread, they know it would have enough gluten.

    A Celiac test tests for antibodies that your body make to gluten. These antibodies start attacking the small intestine. Gluten is found in wheat, rye and barley. Because wheat is the most common thing people eat, it's easier to tell someone to eat Triscuits or bread. So....Celiac tests test for a reaction to gluten.

     

     

    You were right about the beer. I reintroduced it without noticeable effects. The only beer that made me foggy was Guinness (I have no idea of their gluten content)

     

    Another thing: this Easter I reintroduced wheat for a few days. As expected, I felt foggy. It even gave a hangover the following day (not nice). Once I went back to work, I stopped eating wheat again because I really cannot afford a foggy brain right now. My question is, if I eat wheat only on Friday and Saturday for many weeks, would that be enough exposure to do the tests?

     

    Thanks 


  2. I agree , with all that said! Eat a slice of pizza for me please!! Some Celiacs have no symptoms. So don't dismiss , just having brain fog. I think if one does not get tested they are always tempted at one point or another. My daughter being one! But if your tested and know for sure, You don't have as hard a time saying no to a piece of pizza. 

     

    Yes, I should go for it. The idea scares me but I can see the benefits of getting diagnosed in the long run

     

    One question I have: all the gluten challenges relate to eating wheat... would drinking a beer or two have the same effect on the tests?

    Also, if you test positive in the standard celiac tests, how do you know whether it was a gluten reaction, or just a reaction to wheat for example?

     

    Thanks!


  3. I agree with the above opinions on Cyrex.  Perlmutter has some interesting thoughts on Celiac and the affect on the brain which I agree with totally because I do think it affects the brain greatly, from personal experience and from what I have seen in others whom I suspect have undiagnosed Celiac.  But Tom O'Bryan really riles me because he makes a lot of money from trying to be a Celiac expert when in reality, he is a chiropractor.  I have a world of respect for chiropractors because I have a phenomenal one myself but I don't ask him for GI opinions, just bone and muscle issues.  I think O'Bryan rips people off so have no use for his supposed expertise.

     

    Ditto for Cyrex......there is NO test for gluten sensitivity as of yet but I think, in future, this will change.  Always refer to the Celiac experts, as they exist today.  Dr. Fasano is great, although I still have issues with their protocol for diagnosis, especially where kids are concerned.  Dr. Green and those at the Chicago Celiac Disease Center....another good choice for information.  If push comes to shove, then you can always do a dietary trial to see if removing gluten has any affect on symptoms you are having.  Some people may never get a definitive diagnosis but if cutting out gluten makes you feel a world better, then believe in that result. I never doubt people who tell me that not eating gluten makes them feel better. 

     

     

    I really enjoyed Grain Brain, because he was describing something I was really experiencing, a very annoying brain fog which disappeared once i was off wheat.  I felt very closed to his neurological perspective of gluten in general. 

    The  part that still really baffles me is that a respected neurologist which book and thoughts are backed by science would recommend a test procedure he does not think it works or that creates false positives. I just cannot understand why he would use many success stories in his book about patients who were diagnosed gluten sensitive after doing a non believable cyrex lab test, and then use science to describe his theories

     

    I am not saying he is right, I am just saying it is confusing :-)

     

    I have respect for Dr. Fasano too. I will also check more the  Chicago Celiac Disease Cente, which was also cited by @kareng in her reply

     

    Thanks again!!!


  4. You're so right, Gemini!

     

    I've been gluten free for over 5 years without a definitive diagnosis. The only thing that really matters to me is being a productive functioning member of society! LOL!

     

    It's important to do the testing first, but after all testing is complete, you can always try the diet strictly. It's perfectly okay to refuse all forms of gluten with no doctor's note. Lots of us do it! :)

     

    BlessedMommy, I think that you have the right approach to it. If you feel better gluten-free that should be enough reason to do it. In a way, I think it is a psychological issue that somehow I would feel more reassured with the positive result of the test, even though I would probably end up eating the same food as now... It is the strange feeling of knowing... :-)


  5. Hi all

     

    Thanks a lot to everybody for your great and warm replies. Much appreciated!

     

    I think that you are right. If I am going to go through the challenge of reintroducing gluten, why not doing the standard celiac tests done. It makes sense

    Reintroducing wheat is a nightmare though...

     

    I have to admit i am very confused about Cyrex Labs Tests. On the one hand, you get very respected doctors and neurologists like Dr. Perlmutter (The grain brain) and Dr Tom O'bryan (theDr.com) recommending Cyrex tests to patients and other doctors. On the other hand, you get other very respected sources that don't recognize the tests because their lack of rigorous validation tests. So confusing...

     

    Thanks again!


  6. Hi all,

     

    I am new to this forum and i am very happy to have found it... 

     

    I am pretty sure I have Gluten Sensitivity. (probably non-celiac). I started to get quite brain fog after lunch, and I started to suspect that the lack of focus and mood changes had to do something with food consumption 

     

    So, I did an elimination diet, and I concluded that wheat could be the main cause of it . So, I went gluten-free and the brain fog is gone... every now and again i eat a bit of wheat to confirm the symptoms and yes, it does not agree with my brain... I don't have any gastrointestinal issues 

     

    I would like to get tested. In a way a positive result would be a relief, because i will stop investigating, I will fully accept and I won't feel tempted to eat a slice of pizza after a couple of wine glasses.

    I read about the most complete tests that would also detect non-celiac gluten sensitivity and the Array 3 test from Cyrex Labs is constantly cited as the test to do.

    The "problem" is that I have been off gluten for 6 months and you need some gluten exposure before testing. The reality is that I cannot understand how much exposure you need before doing the tests. I have read different things about gluten reintroduction before the tests.

    In Cyrex's FAQ I read that you need sufficient exposure to gluten of at least 25 days before the test. Instead, Dr Perlmutter (the Grain Brain author) states that that would not be necessary because "IgG levels which persist for at least a year following exposure" . I read other healthcare practitioners that recommend to eat "half a slice of bread per day for 10 days. Stop and then wait 25 days before doing your blood sample"

     

    I am confused. Do you have any experience on gluten reintroduction before doing Cyrex Labs tests?

     

    Thanks