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ccrew99

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ccrew99 last won the day on November 15 2015

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About ccrew99

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  1. How long have you been doing this? And what kind of creatine( capsules, brand)?
  2. When I found out I had celiac I also got diagnosed with POTS and gastoparesis around the same time. I’m not sure which one started what but that’s what I got stuck with. If you have had celiac for a long time without knowing it can lead to a cascade of other heath issues. One point I need to mak...
  3. I used to get that as well. Don’t seem to get it anymore being gluten free, so I could see a link for sure. It could be from vit. deficiencies from celiac or just be from celiac.
  4. The only thing that looks like that and itches is DH in my mind. You can still have breakouts even if your gluten free, I have read several others on the show forum saying that. I’m not sure anyone really knows why. You could have ingested gluten and iodine somehow. Remember I’m no expert, but tha...
  5. It does look like how mine presents. It also has a stinging itch- severe itch and takes about 2 weeks for it to finally heal. Sometimes turns purple in color and leaves a colored mark but eventually fades away. Mine also come back in the same place and on the adjacent side of the knee. I have been...
  6. I got diagnosed with POTS after celiac diagnosis. I get Raynaud's phenomenon, muscle cramps/spasms, and had hives for a year and half. I'm not sure if there is any correlation between the symptoms but a lot of celiacs have multiple issues
  7. I ended up with gastroparesis which causes delayed gastric emptying. Look into this as well. I ended up severely sick with this , not sure if celiac caused this but I have both. Chronic nausea and vomiting. Can not take any medications/supplements bc they do not leave my stomach quickly enough and...
  8. I understand how you feel. I wasn't "officially diagnosed" celiac but had enough evidence that my docs and I put 2 and 2 together due to what we conconcluded to be DH, plus a gene test and positive blood work. I never did biopsy bc they said the ones with DH have a harder time getting diagnosed and...
  9. Yes. It's awful!!! It was when I was deficient in b-12 but what I found out was that its not actually a symptom of b-12 deficiency but more so it's that your immune system can't fight off the natural bacteria in and around your mouth. I'm a dental hygienist and that made perfect sense to me. So...
  10. But yes POTS can make you feel terrible!!! It's not just when you change positions, it's that your brain isn't sending the right signals to your heart(nervous system) at the right time so you aren't getting adequate blood supply to various parts of your body. If you are nauseated and have a hard...
  11. I think if the gluten challenge started these symptoms it's a safe bet to say you definitely need to stay away from it regardless if testing negative. I have the dermatitis herpetiformis part of celiac( if they are still saying it's related) so I never had a lot of stomach symptoms like the rest...
  12. http://www.dysautonomiainternational.org/page.php?ID=30 this is a forum I used to navigate POTS and it has some really helpful info and lists of POTS Drs
  13. That definitely sounds like POTS. Same symptoms for me as well. I just happened to get lucky finally and was sent to a POTS dr here in Dallas. From what I have read they are hard to find . It took many Drs and misdiagnosis after misdiagnosis sadly. Salt definitely helps. Interesting though a lot...
  14. I got diagnosed with POTS back in November. I had already been gluten free for about a year and half prior the POTS diagnosis. It was POTS that made me so sick for about 3 years and went undiagnosed until this November. I also had adrenal problems so it is my speculation that I had undiagnosed Celiac...