Beverage

@ellen101,
Welcome to the forum!
I have had problems with my voice, stuttering, voice cracking and not being able to get words out when I was deficient in Thiamine Vitamin B1.  
Thiamine deficiency can happen in Celiac Disease because of malabsorption, but thiamine deficiency can occur without Celiac Disease if a person eats a diet lacking in nutrients.
The World Health Organization recommends taking 500-1500 mg per day of Thiamine Hydrochloride for several days and see if there's improvement.  Blood tests are not an accurate measurement of Thiamine deficiency.  Thiamine is water soluble and nontoxic.  
I had improvement within hours.  

I felt better after my diagnosis after a few months, but still lagged in energy for a long time  Good quality B vitamins, with methyl forms, like Designs for Health B Supreme, or Procaps Labs High Potency B-Complex really help.  I also take Liquid Health B12 recommended by someone here and B1 oil form Benfotiamine recommended by KnittyKitty.  All that helped but recently, I discovered the flush form of niacin, nicotinic acid, and wow, a huge improvement in energy.  I'm 65 (66 on Monday) and am stronger and can do more hard work than I have in decades. 
Look for the flush niacin that people complain gives them a flush, that does not say slow release or anything like that, not niacin in form of niacinamide (mide's are synthetic or modified forms of vitamins and that's now what you want). Flush niacin has been around for years, used to lower bad cholesterol and raise good, lots of benefits. I tried it before I got covid in January, then increased a bit to recover after covid and recovered way faster than anyone around me, faster than any vax'd or unvax'd friends.
Start at like 100mg nicotinic acid, the first flush is the worst, red all over, really warm, may be itchey.  But after that, it should be a nice warm cozy flush. I was taking 500mg before I got covid, then after I increased to 2000mg for a few days and bounced back really quickly. Now I'm sticking with about 1000mg about 5 days a week, this dose for me now is barely a flush and no itch.

I got very sick on Bob's gluten-free oats, they may be near higher limit of gluten free.  I am able to eat "purity protocol" oats. I have been eating gluten-free Harvest brand with no issues.  Here's an article:
https://www.glutenfreewatchdog.org/news/oats-produced-under-a-gluten-free-purity-protocol-listing-of-suppliers-and-manufacturers/
I was diagnosed with Celiac's without the endoscopy, based on 3 things:  1. high positive blood tests 2. positive DNA test  3. response to gluten free diet.
For me, that was enough to strongly commit to gluten free, but you know yourself, if you need the endoscopy to keep you on the right path.

I felt better after my diagnosis after a few months, but still lagged in energy for a long time  Good quality B vitamins, with methyl forms, like Designs for Health B Supreme, or Procaps Labs High Potency B-Complex really help.  I also take Liquid Health B12 recommended by someone here and B1 oil form Benfotiamine recommended by KnittyKitty.  All that helped but recently, I discovered the flush form of niacin, nicotinic acid, and wow, a huge improvement in energy.  I'm 65 (66 on Monday) and am stronger and can do more hard work than I have in decades. 
Look for the flush niacin that people complain gives them a flush, that does not say slow release or anything like that, not niacin in form of niacinamide (mide's are synthetic or modified forms of vitamins and that's now what you want). Flush niacin has been around for years, used to lower bad cholesterol and raise good, lots of benefits. I tried it before I got covid in January, then increased a bit to recover after covid and recovered way faster than anyone around me, faster than any vax'd or unvax'd friends.
Start at like 100mg nicotinic acid, the first flush is the worst, red all over, really warm, may be itchey.  But after that, it should be a nice warm cozy flush. I was taking 500mg before I got covid, then after I increased to 2000mg for a few days and bounced back really quickly. Now I'm sticking with about 1000mg about 5 days a week, this dose for me now is barely a flush and no itch.

I got very sick on Bob's gluten-free oats, they may be near higher limit of gluten free.  I am able to eat "purity protocol" oats. I have been eating gluten-free Harvest brand with no issues.  Here's an article:
https://www.glutenfreewatchdog.org/news/oats-produced-under-a-gluten-free-purity-protocol-listing-of-suppliers-and-manufacturers/
I was diagnosed with Celiac's without the endoscopy, based on 3 things:  1. high positive blood tests 2. positive DNA test  3. response to gluten free diet.
For me, that was enough to strongly commit to gluten free, but you know yourself, if you need the endoscopy to keep you on the right path.

I have four autoimmune diseases. Last year, I started falling. Diagnosed with gluten ataxia. My docs tried several approaches, but finally settled on magnesium. Infusions didn’t work, but they then put me on an 8 times dosage of oral slow magnesium. The falls stopped. Check with your docs on this. Sure worked for me. 

I just want to caution on anemia being always from iron deficiency. There can be other causes. I tested low iron for years and years, docs always telling me to take more iron, but it never improved.
It took until I was 19 years old in college to figure it out.  A young medical student in the student health clinic did additional blood tests that showed low in iron, but also lots of red blood cells but very small, less hemoglobin.  He was very methodical about giving me high dose iron, then testing again to see if the iron was doing anything...it did not result in any more or any larger red blood cells, no increase in iron levels. 
He got me a referral to a hematologist who spotted that I had thalassemia, an inherited anemia common in the Mediterranean area (my mom is Portuguese), and taking iron is actually detrimental as it is not water soluble and stores in organs and damages them.  I'd inherited it from only one side of my genes, so not very serious.  Treatment is to not take additional iron or too many foods high in iron, and nothing more to do. 
So just a caution to be sure it's iron deficiency before pouring a lot of iron into your body. If your doc is telling you to take iron and not following up with repeating tests to see if it does anything, then I strongly suggest you get a different doctor.

I just want to caution on anemia being always from iron deficiency. There can be other causes. I tested low iron for years and years, docs always telling me to take more iron, but it never improved.
It took until I was 19 years old in college to figure it out.  A young medical student in the student health clinic did additional blood tests that showed low in iron, but also lots of red blood cells but very small, less hemoglobin.  He was very methodical about giving me high dose iron, then testing again to see if the iron was doing anything...it did not result in any more or any larger red blood cells, no increase in iron levels. 
He got me a referral to a hematologist who spotted that I had thalassemia, an inherited anemia common in the Mediterranean area (my mom is Portuguese), and taking iron is actually detrimental as it is not water soluble and stores in organs and damages them.  I'd inherited it from only one side of my genes, so not very serious.  Treatment is to not take additional iron or too many foods high in iron, and nothing more to do. 
So just a caution to be sure it's iron deficiency before pouring a lot of iron into your body. If your doc is telling you to take iron and not following up with repeating tests to see if it does anything, then I strongly suggest you get a different doctor.

I got a formal diagnosis from a naturopatic medical doctor (in the US). It was based on 3 things:  
1. positive blood tests for antibodies
2. positive DNA test
3. positive response to a gluten free diet

I got a formal diagnosis from a naturopatic medical doctor (in the US). It was based on 3 things:  
1. positive blood tests for antibodies
2. positive DNA test
3. positive response to a gluten free diet

I got a formal diagnosis from a naturopatic medical doctor (in the US). It was based on 3 things:  
1. positive blood tests for antibodies
2. positive DNA test
3. positive response to a gluten free diet

Could there have been any oat flour in the pancake mix?  I can only eat oats if they are purity protocol oats, not just gluten free, not just certified gluten free, purity protocol.  So I stay far away from any pre-made item or mix that has oats, but I do eat oats separately, like brand gluten-free Harvest, which are purity protocol.

Probably from cross contamination in their kitchen, but one thought ... 
Did you have french fries (chips) with it? If something is deep fried in a fryer that also fries gluten foods, it gets contaminated.

I live near Seattle Washington USA and our climate is similar to the UK.  One of my early symptoms was really low vitamin D levels. I started supplementing that before I realized that I probably have celiac.  I have not been diagnosed officially - but it runs heavily in my family - several cousins have either been diagnosed or have the DNA marker for it. I have a lot of symptoms and just stopped eating gluten a month ago.  Anyway - once I started taking vitamin D3 I had more energy and generally felt better.  A lab tech said those of us that live in northern climates can take 5000 IU without any problem.  Be sure your vitamins are also gluten free. I read in several posts here that it takes a long time to heal so hang in there.  There are lots of us still struggling. Best of luck on your journey. 

I was also a little overweight before I was diagnosed, especially for me that had been super skinny most of my life, just figured it was part of getting older. I was finally diagnosed by a naturopath at 59, and he told me he's had several Celiac's patients that were HUNDREDS of lbs overweight. one 300 lbs over.
I went gluten free and dropped 30 lbs in less than a month, I was essentially starving underneath all that inflammation. Gained 10 lbs back, but it's muscle now and I'm very strong, especially for my age at 65.

I was also a little overweight before I was diagnosed, especially for me that had been super skinny most of my life, just figured it was part of getting older. I was finally diagnosed by a naturopath at 59, and he told me he's had several Celiac's patients that were HUNDREDS of lbs overweight. one 300 lbs over.
I went gluten free and dropped 30 lbs in less than a month, I was essentially starving underneath all that inflammation. Gained 10 lbs back, but it's muscle now and I'm very strong, especially for my age at 65.

High MCHC values can be caused by inflammatory processes that cause clumping of blood cells.
From some of your spellings I gather you are in the UK. I don't know how much say you have there in what the doctor orders for tests but for celiac disease diagnosis but I would recommend a minimum of the tTG-IGa, total serum IGA and the Deamidated gliadin peptide (DGP IgA and IgG). The celiac community will vouch for me when I say this: Our collective experience is that general practitioners are typically pretty ignorant when it comes to diagnosing celiac disease. It is advisable to go to appointments armed with knowledge and a willingness to be appropriately assertive in order to see that proper tests are run.

Yes, kissing can get you glutened. 
I wouldn't throw away your cookware. I would scrub it real good though, especially wooden and cast iron stuff. Only the very most sensitive celiacs have to worry about throwing cookery away. Wait and see how you react using what you have. I think you aren't really that close yet in eliminating other sources of CC besides cookware. It is a learning process. Spices can be a source even.

Glad to hear you are picking up on the vitamin/mineral supplementation. All of the nutrients from the food we eat is absorbed in the same area of the intestinal track that is damaged by celiac disease. So, development of nutritional deficiencies over time is part of celiac disease and is responsible for many of the symptoms associated with it. NCGS also seems to cause neurological symptoms in some people even though no damage is done to the small bowel villi. We don't know yet what is the mechanism of NCGS.

Dear Trent, thanks a lot for the very useful tips. I have grown to absolutely hate gluten now. If it really is the thing that has made me suffer all my life, I never ever want to touch that thing again. Thank God I live alone so I don't have to compromise with my family's gluten eating habits. I have gotten rid of everything with gluten. 
I have already seen some improvements on my skin as well. I feel like my dry skin has gotten a little better but I am not sure if it is the gluten free diet or not. So I am planning to continue and stay gluten free for at least a month before I try some bread and see how it affects me. 
I am taking Vitamin D3 right now and it has helped me a lot with stabilizing my mood. Going to order vitamin B and Magnesium as well. Thank you so much! 
 

You already know that gluten is bad for you because when you stop eating it you get better. The only thing you don't know is whether you have celiac disease or NCGS. But the antidote is the same. Total abstinence from gluten for life. What would change if you tortured yourself by going back on gluten to get tested? The only difference would be that your wallet would be lighter.
It often takes up to two years for full healing of the villi in the case of celiac disease once you go truly gluten free. In the meantime you would be wise to add in some gluten free vitamin and minerals supplements. At least 5000IU of D3, a high-potency B-complex and magnesium (magnesium glyclinate is a good highly absorbable form).

I didn't show any thiamine deficiency, not alcoholic, but sure did have a very positive response to taking a thiamine supplement in the oil form, benfotiamine.  After going for allergy shots for years, complaining about asthma, many pulmonologist visits, bad reactions to steroid inhalers (severe high blood pressure when I'm normally low BP) that the pulmonologist finally said "I can't help you anymore"... Then followed Knitty Kitty's advice about the oil form of thiamine, and magic within a few days, my very severe asthma cleared up, went from taking the albuterol inhaler almost every hour to taking it once a day after my exercise.  So whatever, I take 1 capsule befotiamine every day and ignore the docs that aren't knowledgeable about supplements and nutrition.

I had a lot of success with the strategies in this article...he may not have a hiatal hernia, but the things here help regardless.
https://drjockers.com/hiatal-hernia/
If he is taking any antacids, not good, we need acid in our stomach to absorb many vitamins, for example, vitamin D.
I had great success with the heel thumping maneuver, also elevating head of bed by placing two 2x4's under feet at head of bed, and especially drinking a sip of Bragg's apple cider vinegar before any meals with protein. 
I also chew two DGL tablets if needed after meals, they coat, they don't reduce acid.  I use this one, as it has the least sugar:
https://www.amazon.com/Integrative-Therapeutics-Rhizinate-Deglycyrrhizinated-Licorice/dp/B001WUC406?pd_rd_w=QfKKe&content-id=amzn1.sym.bc622850-a717-4d94-96c3-7cc183488298&pf_rd_p=bc622850-a717-4d94-96c3-7cc183488298&pf_rd_r=63ZFZM8X13J3ZRG0C9J2&pd_rd_wg=m5E72&pd_rd_r=23417c98-8254-4fa8-9d37-3f2cfc622fd9&pd_rd_i=B001WUC406&psc=1&ref_=pd_bap_d_rp_1_t
 

I didn't show any thiamine deficiency, not alcoholic, but sure did have a very positive response to taking a thiamine supplement in the oil form, benfotiamine.  After going for allergy shots for years, complaining about asthma, many pulmonologist visits, bad reactions to steroid inhalers (severe high blood pressure when I'm normally low BP) that the pulmonologist finally said "I can't help you anymore"... Then followed Knitty Kitty's advice about the oil form of thiamine, and magic within a few days, my very severe asthma cleared up, went from taking the albuterol inhaler almost every hour to taking it once a day after my exercise.  So whatever, I take 1 capsule befotiamine every day and ignore the docs that aren't knowledgeable about supplements and nutrition.

@Anne Jory,
A stressor, like receiving the Covid vaccines, causes your immune system to gear up and make anti-Covid antibodies.  This immune system response uses up lots of Thiamine Vitamin B1 and can tip the balance into Thiamine deficiency. 
Symptoms of Thiamine deficiency include unintentional weight loss, diarrhea, and thyroid problems.  Without enough thiamine, the thyroid can become underactive (hypothyroidism).  During times when we get more thiamine from our daily diet, the thyroid may become overactive (hyperthyroidism).  This can lead to fluctuations in thyroid function, swinging from high to low and back again.  
Scientific research shows that when there's a deficiency of Thiamine, the thiamine transporter gene turns off signalling other genes down the line to turn on.  The other genes that get turned on are autoimmune diseases like Celiac, Diabetes, thyroid problems (hyper and hypo thyroidism) and more.  
Here's some articles by Dr. Derrick Lonsdale and Dr. Chandler Marrs, leaders in this field....
Hiding in Plain Sight: Modern Thiamine Deficiency
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8533683/
And...
https://www.hormonesmatter.com/vaccination-stressor/
And...
https://www.hormonesmatter.com/tag/gardasil-and-pots/
Do get checked for vitamin and mineral deficiencies caused by malabsorption due to Celiac Disease.  Discuss with your doctor the benefits of supplementing thiamine and the other B Complex vitamins and minerals while you heal.
Hope this helps!