Beverage

I appreciate the information, I'll be making some big changes to my diet. 

Developing a truly gluten-free lifestyle is not as easy as many people think because of cross contamination issues (CC) and the multitude of ways gluten is hidden in the process food supply. This might help: 
 
You also would do well to get some good gluten-free vitamins and supplements. Celiac disease generally results in nutrient deficiencies because of the damage done to the small bowel villi. Get a good senior multi vitamin, a good high potency B-complex, 5000IU of D3 daily and magnesium glycinate or citrate. Make sure they are gluten free. Costco's Nature Made brand is a good choice.

No!  Not Thiamine Mononitrate!
Thiamine Mononitrate is the least bioavailable form of thiamine.  
You want Thiamine Hydrochloride. like this for example...
https://www.nowfoods.com/products/supplements/vitamin-b-1-100-mg-tablets
Or Benfotiamine....
https://www.lifeextension.com/search#q=benfotiamine&t=coveo4A2453FD
Or Allithiamine...
https://www.lifeextension.com/vitamins-supplements/item26106/allithiamine
All are available on line.

@MerryA,
Welcome to the forum!
So sorry to hear about your husband.  
I had similar symptoms, high blood pressure and was put on meds, IBS symptoms, Gerd/reflux, shortness of breath, tachycardia, anxiety and panic attacks.  My symptoms resolved when I took high dose Thiamine Vitamin B1.  
The Gluten Free diet can be deficient in certain vitamins and minerals.  Eating a diet high in gluten free carbohydrates can deplete thiamine because gluten free facsimile foods are not enriched with vitamins and minerals like their gluten containing counterparts.  Thiamine is needed to turn carbohydrates, fats and proteins into energy for the body.  
We need more thiamine during periods of illness and emotional stress.  So being glutened in a restaurant can deplete thiamine further.  
Doctors don't recognize thiamine deficiency symptoms because they were taught it only happens in starving third world countries or only in alcoholism.  Celiac Disease damages the small intestine resulting in malabsorption of essential vitamins like thiamine and minerals like magnesium.  
I'm including some informative articles you can share with your husband's doctors.  
Beriberi (Thiamine deficiency)
https://www.healthline.com/health/beriberi#causes
And...
Hiding in Plain Sight: Modern Thiamine Deficiency
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8533683/
And...
Hypertension, the Autonomic System, and Thiamine
https://www.hormonesmatter.com/hypertension-the-autonomic-system-and-thiamine/

@Walter123,
You should be off all vitamin/mineral supplements six to eight weeks prior to checking for vitamin levels by blood tests, otherwise the test merely measures how much of that vitamin/mineral you've consumed in the previous twenty-four to forty-eight hours.  
Thiamine deficiency can affect the thyroid causing fluctuations in thyroid hormone levels.
Cold hands and feet, and numbness (peripheral neuropathy) are further symptoms of thiamine deficiency.
Hair loss or thinning is also related to thiamine deficiency.
Anxiety and panic attacks are symptoms of thiamine deficiency.
I've had all these symptoms and more due to thiamine deficiency and other vitamin and mineral deficiencies.  Thiamine deficiency shows up first because thiamine cannot be stored for long.  You can deplete thiamine stores in as little as nine days.  You can have a subclinical deficiency for years.  Because your diet might include nutritionally dense foods once in a while, your symptoms can fluctuate.  
"Normal" blood levels of vitamins don't reflect a deficiency within the tissues and organs.  More thiamine is needed when we are under physical and emotional stress.  
Gluten free facsimile foods are not required to be enriched with vitamins like their gluten containing counterparts.  
I took high dose Thiamine and  B Complex supplement and magnesium to correct my deficiencies.  
Dr. Lonsdale's article explains this...
Hiding in Plain Sight: Modern Thiamine Deficiency
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8533683/
Discuss with your doctor and nutritionist about the benefits of supplementing with vitamins and minerals while on the gluten free diet.  
Hope this helps!

Yes, you would need to resume eating gluten for 6-8 weeks before the test. The equivalent of two slices of wheat bread daily. Those are the Mayo Clinic guidelines. The serum antibody testing is designed to detect inflammation markers produced by the ingestion of gluten. If you haven't been ingesting gluten for a long period of time the inflammation will have subsided.
The other possibility is getting an endoscopy with biopsies of the duodenum lining. You would only need to be eating said amount of gluten for two weeks for the biopsy to reveal damage to the villi.

Don't let them put you on antacids, PPI's, etc., except for a VERY short term to heal.  I had a doc try to prescribe me that, bragging that he takes it every day, real athletic young guy...and when I said...but we need acid in our stomachs to break down the vitamins especially D so that our intestine can absorb them!...He went silent.  The info with the drugs says they are not to be taken long term.  So I first took OTC antacids for about a week so I wasn't miserable, then fixed it by following this article:
https://drjockers.com/hiatal-hernia/
These things worked great for me:
1.  thumping on heels with full stomach (recommend emptying bladder first, although the article says otherwise)
2.  raising head of bed a few inches by placing on wood blocks or two 2x4's
3.  ***taking a sip of apple cider vinegar before each meal with protein (we need acid to digest and get vitamins!)
4.  ***DGL chewable tablets after a meal helps soothe/coat, it's almost instant relief.  I like this one because it has the least sugar I have found:
https://www.amazon.com/gp/product/B001WUC406/ref=ppx_yo_dt_b_asin_title_o03_s00?ie=UT
Good luck!

My guess is you are probably getting glutened, but here is something to try while you are figuring it out.
I had a lot of improvement in overall digestion and consistency in intestines, even being strictly gluten free, by taking Butyrate capsules.  Butyrate is a short-chain fatty acid that's produced in the small intestines, you can do an internet search on it to learn more.
I get them from BodyBio. The Calcium/Magnesium Butyrate is what I take. The Sodium Butyrate is for athletes, i.e., the sodium.  Drink lots of water or you might get constipated.  I started taking 1 a day before breakfast, now about 2 a week as microbiome is improved.

You misunderstand what the purpose of GliadinX is and it's intended use. No one is saying that if you use GliadinX you can eat all the gluten you want. It is designed to provide some measure of protection against minor amounts of gluten such as you might get through cross contamination when eating out. And your statement, "enzymes don't work for celiac disease" is not a proven fact, though it may be your opinion. GliadinX seems to help some celiacs when used for it's intended purpose. This is largely anecdotal at this point but our administrator, Scott Adams, testifies that it works for him.

Lots of dis-ease symptoms can be connected to Celiac's, and it causes malabsorption, which leads to vitamin deficiencies.  Eating gluten free doesn't just suddenly build back those deficiencies, it takes a very long time, depending on how long you have had malabsorption (I was diagnosed at age 59 and probably had it for a very long time). 
Once I got diagnosed and went gluten free, I worked with a very good naturopath (and thanks to more information from @knitty kittyhere) that had experience with Celiac patients and their common deficiencies. For example, I found that I had a big B1 deficiency, but regular B1 supplements didn't do the trick, we had to experiment with various forms of B1.  Same thing with other B vitamins.  My blood pressure started coming down soon after that and now I do not take any prescription medications at all (I'm 65 now).
OH!  Also my severe asthma cleared up. I was having to take albuterol inhaler about every hour, now only once a day after my pushups and situps.  I think it was the B1 in form of benfothiamine that did that.

I finally got my sense of taste and smell back (been gone since before 2015)!!! I started following a flush niacin (nicotinic acid, not niacinamide)  protocol for prevention of covid and overall health.  When l-serine and a few other co-factors were added, BAM!  In a few days, it all came back.  That was late January.  Even when I got covid, I didn't lose smell or taste, in fact, it was extra strong and not distorted like some people get.  It's still good, not great on some days now in Spring when my allergies are kicking up, but still strong as long as I keep taking the flush niacin, l-serine, and a few others.  

Whoa whoa whoa. This is massively bad and very dangerous advice. Celiac's is an auto immune disease and the only treatment available is to be completely gluten free.
 

@AlohaMaMa,
I suffered from painful neuropathy in my legs before we figured out the Celiac thing.  There were days when I had foot drop and pain so severe I could barely walk.  It turned out I was deficient in vitamins and minerals.  Celiac Disease causes malabsorption which results in malnutrition.  My doctors weren't familiar with nutritional deficiency diseases (outside of alcoholism) and they wrote me off as hypochondriac. 
You said... 
"The day before her legs turned to dead weight she was running laps and playing pickle-ball...she's in good shape and very social then randomly in a wheelchair one day and back to normal a day or two later. Doctors seem to run from us and our weird problems...you can't make this up!!!"
 
This rang a bell with me.  My painful legs sometimes worked better some days more than others.  People thought I was faking and making stuff up.  I wasn't.  I started researching...being a microbiologist, this was right up my alley.
I realized I had Thiamine deficiency.  Thiamine deficiency symptoms can come and go depending on how much Thiamine is consumed in the diet.  One day I could walk up and down all the aisles in the grocery store, and the next I could barely move.  
I had several deficiencies in the eight B vitamins....  Niacin (B3) and Cobalamine (B12) and even Vitamin C can manifest as neuropathy.  
I began supplementing with high dose Thiamine, niacin, and the other B Complex vitamins and minerals like magnesium (thiamine needs magnesium to work properly).
Here's some articles that might help....
This one explains why symptoms of thiamine deficiency can come and go...
 
"Thresholds and Tipping Points in Thiamine Deficiency Syndromes"
https://www.hormonesmatter.com/thresholds-and-tipping-points-in-thiamine-deficiency/
 
This article describes thiamine deficiency in nursing moms and their infants....
"Neurological, Psychiatric, and Biochemical Aspects of Thiamine Deficiency in Children and Adults"
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6459027/
 
"Nutritional Neuropathies"
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4199287/
 
Case studies....
"A Patient With Thiamine Deficiency Exhibiting Muscle Edema Suggested by MRI"
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6297209/
 
"Myopathy in thiamine deficiency: analysis of a case"
https://pubmed.ncbi.nlm.nih.gov/16920153/
 
Thiamine fact sheet...
https://ods.od.nih.gov/factsheets/Thiamin-HealthProfessional/
 
Have the doctors check your daughter for thiamine deficiency and other vitamin and mineral deficiencies before starting supplementation (otherwise the tests will show false levels).  
I couldn't get my doctors to take me seriously, so I supplemented with over the counter vitamins and minerals.  I took high dose Thiamine and had immediate improvement.  It was amazing!  
I hope this helps you and your daughter find answers.
 

Cristiana, a new study came out earlier this year that showed 44% of first degree relatives of celiacs had celiac disease themselves. It was a large study with 300+ people tested by biopsy. The large number of study participants would seem to support it's reliability. I thought I saved the link but I can't find it now. Maybe Scott has it handy. Yes, 10% was the figure we were working from for years but the percentage is actually much higher than was previously thought.

I thought some forum members, especially those with neurological symptoms, might be interested in this free webinar, put on by the National Celiac Association and the Celiac Research Program at Harvard Medical School. Title is “The Intersection of Neurology and Celiac Disease.”
September 30 webinar registration

@Djd27,
Has your B12 level been checked recently?  How about your Vitamin D level?  Low B12 and low Vitamin D can affect your thyroid.
Vegetarian diets are notorious for being low in certain vitamins and minerals.
Here's some articles to provide more information....
Vitamin B12 deficiency common in primary hypothyroidism
https://pubmed.ncbi.nlm.nih.gov/18655403/
Vitamin B12 and Vitamin D Levels in Patients with Autoimmune Hypothyroidism and Their Correlation with Anti-Thyroid Peroxidase Antibodies
https://pubmed.ncbi.nlm.nih.gov/31779003/
And...
https://theconversation.com/have-you-gone-vegan-keep-an-eye-on-these-4-nutrients-107708
And...
What are the symptoms of vitamin B-12 deficiency?
https://www.medicalnewstoday.com/articles/324265
 
Many of the symptoms you described are the same as B12 deficiency symptoms.
Hope this helps!

I am now experimenting with another B vitamin...niacin. Naturopaths have long recommended the flushing form of niacin (nicotinic acid, not nicotinamide) to clear out atherosclerosis. My boyfriend has that really bad, had a heart attack and 4 way bypass, so we were trying it for him, and I started with it also.
I read some studies about flush niacin and some about melatonin as preventatives for Covid, used together, it's kind of amazing.  Also used in recovery after vax for those that had issues, and recovery for people that got Covid and have lingering problems (aka long haulers).  Covid apparently messes with tryptophan, which is part of the melatonin conversion.  This combination seems to be helping a lot of people.  I believe I have read people taking it for the nerve side effects with long haul Covid.  
I have not had Covid, but am trying it for prevention and overall health.  My BP has been improving with the other B vitamin things, but generally around 120's / 70's.  Last night it was 116 / 69 and I felt really relaxed like I used to when I was a young whipper snapper, and sleep is improving.  I've tried it off and on since June, but had some hard times with my kitties getting sick and having to put them to sleep 2 months apart. 
I am trying it again now consistently.  For some they take right before bed and they sleep amazingly.  That didn't work for me, I have problems taking B vits anytime after breakfast, can't sleep, like someone holding my eyes wide open.  My friend suspects I have that MTHFR thing (problem with energy into cells and can get agitated when the energy is not used properly).  So before breakfast or just after, I take the melatonin first, wait 10 minutes, then take the flush niacin.  Amazingly, the melatonin does not make me sleepy at all when done with the niacin.  I must say, I am feeling another boost up in energy, more than anything else I have tried. I am 65 and shoveled 3/4 yard of gravel yesterday, was not exhausted after, just a little tired, and not even sore today.
My friend that has MTHFR suggested the addition of Liposomal Glutathione for that. So that's what I'm going to try adding next.

Hi. I also had big improvement by taking B-12, but not until I used the methyl form Methylcobalamin. I take this one as recommended by others here:
https://www.amazon.com/gp/product/B003BHUZ68/ref=ppx_yo_dt_b_search_asin_title?ie=UTF8&psc=1
My other big improvement, especially with asthma was B-1 Thiamine, as recommended by @knitty kitty , to use the fat soluble form. I experimented with a few different types, and benfotiamine worked the best for me:
https://www.amazon.com/gp/product/B07G7HPK39/ref=ppx_yo_dt_b_asin_title_o03_s00?ie=UTF8&psc=1
I had such problems, and it was hard to know what was doing what.  Now I take one new thing at a time, for a few weeks, before adding anything new.  If stopping something, wait at least 3 days before introducing anything else new.  Also keep a little log of what you are taking and what changes you notice. It can help, and is a good thing to have handy when talking with your doctor.
 

Whoa whoa whoa. This is massively bad and very dangerous advice. Celiac's is an auto immune disease and the only treatment available is to be completely gluten free.
 

Look into candida albicans overgrowth in the intestines. It could be dying off as a result of cutting out the foods that feed it, which is a good thing, but when it dies off quickly, it feels horrible.  I had it and it felt like I was hit by a truck, a very big truck. My naturopath had me go on a rotating supplementation of vitamin C, garlic, oregano oil, and some other things for awhile until it all cleared up.   Do searches on candida die off and herxheimer effect or reaction.

And eliminate oats. Some are sensitive to oats the same as the other grains. And oats are the next most cross contaminated grain.  I eventually was able to eat purity protocol oats, but I strongly recommend you eliminate them for awhile until you know for sure.

Before I was diagnosed, I was 30 lbs overweight. Dropped it all and more in a month after going gluten free, I was a skeleton underneath. It's taken me 5 years to put back on muscle after that.  The naturopath that diagnosed me said that he regularly has patients that are 100 lbs and MORE overweight, some even 300 lbs overweight before diagnosis. So yea, your doctor is not knowledgeable about Celiac's, so take that as a strong sign that you need a new doctor, it will save you with misdirection or bad information in the long run.

Look into candida albicans overgrowth in the intestines. It could be dying off as a result of cutting out the foods that feed it, which is a good thing, but when it dies off quickly, it feels horrible.  I had it and it felt like I was hit by a truck, a very big truck. My naturopath had me go on a rotating supplementation of vitamin C, garlic, oregano oil, and some other things for awhile until it all cleared up.   Do searches on candida die off and herxheimer effect or reaction.

Nothing in those lab results suggests you have celiac disease. Even your iron markers and B12 are all just fine. These are things you would likely be deficient in if you had celiac disease. But you could have non celiac gluten sensitivity (NCGS) for which there is no test at the present time. NCGS produces a lot of the same symptoms but does not damage the lining of the small bowel as does celiac disease. If our symptoms improve when you eliminate wheat, barley and rye from your diet then I would assume NCGS.

Most of the research we've summarized over 25 years does indicate that even celiacs who are asymptomatic do still have the same risks as those with symptoms, including but not limited to a higher risk of intestinal lymphoma (cancer), as well as lots of related diseases and disorders like Type 1 diabetes. 
Is it possible that others around you are not aware of this, and therefor make it easier for you to cheat? I think peer pressure may also come into play, and if that's the case be sure to educate those around you of how important your dietary restriction is to your long-term health.