Beverage

Welcome to the forum, kristid4d!
After reading your description of the testing and the doctor's remarks, there is no doubt in my mind that you are a celiac. "Consistent with celiac disease" communicates exactly what you would expect if the endoscopy showed blunted villi. You are making up any equivocation in that instance. And your serum antibody levels should return to normal if you are truly eating gluten free. That is expected. So congrats! You are doing a good job with that, apparently. 
Believe me, all of us who have celiac disease truly understand the social frustrations, self-consciousness and limitations you describe when eating out. And we all just want to be able to enjoy fresh bread and real pasta like normal people, like we used to. I remember how delicious it is and have this overpowering craving when I smell fresh bread baking. There is a sense of loss. 
But here is where you need to do some work: "Now I find myself telling him to take the kids and go without me, and that makes them feel bad. (Our kids are grown, but they come over almost every weekend, and they love to go out and eat with us.) It's just too much trouble. I hate having to tell the server about the condition because I know I sound like one of those self-righteous clean-eaters who make being gluten-free some sort of religion or act as if they've achieved a higher state of consciousness. Bleah." If you really want to go out with your husband and kids to eat, you need to become willing to do the work of taking more control of the situation rather than playing the victim and feeling sorry for yourself.
First, I would recommend taking control of the situation by developing a list of restaurants that are more likely to offer gluten free options than others. So when your family says, "Let's go out to eat," you can say, "Sounds wonderful. But can we got to X, Y, Z? Because I have better gluten free choices at those places. If your family cares about you and understands you have this medical issue, I would think they would be willing to comply with your request. I want to bring that up again later. Many large restaurant chains have gluten free sections in their menus now. And you can research that ahead of time online.
Second, I suggest you develop a lead in line to help restaurant personnel get on board with helping you to eat gluten-free. Something like, "I have a medical condition that requires me to avoid gluten. Can you help me pick some menu items that are safe for me?" And then ask questions like, "Can you ask the chef to boil that pasta in a clean pan that isn't being used to boil wheat pasta?" Or, "can you cook that burger in a clean fry pan?" You get my drift, I'm sure. You have to lead them by the hand. Along with that, tailor your orders such that your get things that are naturally gluten free or that would likely not come in contact with gluten food in the preparation, e.g., steamed broccoli, a hard boiled egg, a baked potato. 
Third, when you eat out, carry with you some product with you that breaks down gluten, like GliadinX. It won't allow you to disregard gluten free eating precautions but can protect you against minor amounts of gluten exposure such as happens with cross contamination.
In short, taking control means doing what you can do to make things work. If you can take control of the situation when you eat out by using a gracious approach to protect yourself then it will make everyone involved more comfortable.
I want to come back to the family support issue. Are your husband and kids dismissive of your need to eat gluten-free or are they understanding and supportive?
I hope I haven't come across as scolding you. I know you are looking for support. But the best support is helping people learn how to cope with difficult circumstances. 

My understanding is the risk of COVID are low for people in good health and not considered elderly.  Not non-existent risk, but low risk.   The VAERS data is publicly available to look up.  But IMHO it is likely not accurate because people don't always report reactions to VAERS.  They may not be reported very often even?  The 3 people in the video were all in the medical field and some said they never heard of VAERS.  Europe has a similar reporting system for vaccine reactions so it would be interesting to know what it shows.
I also saw these women's stories on videos months ago Beverage in different videos.  I haven't looked for them in a while though but it wouldn't surprise me if they were deleted.  Twitter won't allow this video to be posted and Facebook probably wouldn't either.  Vaccine reactions are being censored by social media companies.  FB deleted a large group on vaccine reactions with 70K+ people.  
I think it's bad to hide the possible vaccine negative effects.  People should know about them before making a decision.  I've heard medical insurance plans won't cover COVID vaccine injury costs because the vaccines are experimental instead of an approved treatment.  The vaccines are being used under an emergency authorization.  So they are not covered experimental treatments.
Anyone who wants a COVID vaccine shot is welcome to get it IMHO, but they should be aware of the risks, which are non-zero.  The question is are the vaccine risks higher than the disease risks?  But without accurate reporting it's impossible to know.

A video on side affects for some vaccine recipients.  This video is banned by Twitter.
https://www.bitchute.com/video/WTFWQ8U9l9ai/
 

Hello,
I have found everyone's responses very helpful and it's reassuring to know I am not alone in this journey. I am now in week 2 of cutting out dairy in addition to the gluten. Also, starting this week I am eating only what I make for myself. I have a glimmer of hope as I do feel as though my symptoms are improving. Thank you to all of you for the shared advice, suggestions and articles. Hope everyone is well.

After going gluten free, my headaches disappeared immediately, my sinusitis and drippy nose cleared up within 2 weeks, my constipation cleared up within a month, my severe rheumatoid arthritis cleared up totally in 5 months. I have now been gluten free for over 30 years!

@Emiandgabesmom,
Celiac is genetic.  Emi and Gabe need to be tested as well.  
Blood tests are not accurate for vitamin deficiencies.  While blood levels may show normal levels, tissues and organs are deficient, giving their vitamin stores to the blood to supply the brain. 
Nsaids can cause continuing damage to your digestive system.  
Thiamine and other vitamin deficiencies can explain your fatigue.  
https://www.hormonesmatter.com/energy-thiamine/

Scott, I respectfully disagree based on months of research I have done in regards to the covid virus, and the vaccines themselves. Below you see statistical data from the CDC (one of many I have screenshot off of their page) that show a very high percentage rate. I'm not factoring anything in other than what the CDC is saying. 

Absolutely not will I be taking a unvetted vaccine that has the potential for lifelong illness and/or death for a common virus with a 99.9% life expectancy.

We've had some friends with no reaction to the Phizer, one felt like she was hit by a truck after the 2nd shot.  But definately more reactions with the Moderna. The worst was one guy in 50's who had a sore arm in the Moderna on the first shot, and ended up in the hospital with high fever and very ill after the 2nd.  It's been a month and he is finally back to work (working remotely). Watch your symptoms closely and do not delay if anything changes, it seems to go downhill quickly.

Celiac Disease causes malabsorption which results in malnutrition and vitamin and mineral deficiencies.  The damage to the small intestine, villi blunting, diarrhea and constipation all affect your body's ability to absorb sufficient nutrients.  
Removal of gluten containing foods from the diet means the removal of a major source of vitamins.  Wheat containing products are mandated by law to replace the vitamins and minerals lost during processing.  Food production companies use the cheapest, synthetic, often low bioavailability, vitamins to save cost.  In effect, you have been taking vitamin supplementation in gluten containing foods.
Adding good quality bioactive vitamin and mineral supplements while healing and mastering the gluten free diet will help restore health.
 

Several vitamins and hormones play a big part in regulating our sleep.  When I fixed some of my B vitamin and acid reflux issues, my sleep improved A LOT.  Also, you need to get sunshine every day, letting it get into your eyes (not looking at the sun of course, but seeing sunshine a little bit without sunglasses on)...this helps our own body to create melatonin.  Also a little melatonin, passion flower, valerian sleep aid can help. Look for Dr. Peter Osborne's videos about it on Youtube, they have helped me a lot.

I have had the problem of waking up in the middle of the night and not being able to go back to sleep. I’ve connected it to gut dysbiosis and it was also present when I had clostridium difficile full blown. I believe my original gut dysbiosis was caused by a low grade c diff overgrowth since I had recovered on my own without it being diagnosed and when I got it full blown 13 years later (same tooth/failed root canal, treatment with clindamycin) the symptoms were the same. One of those symptoms was sleep problems - waking up after 5 hrs and not being able to go back to sleep. This can recur if I get off the wagon on my no gluten, no dairy, no nightshades, no sugar and no processed food diet. Don’t know if that helps, but I did trace it to my gut as opposed to stress. Stress could certainly cause it, however.
I’ve seen it operate with viruses as well. July, 2020 I had COVID that hit my digestion with intense burning, nausea and bloating. It dragged on - 6 weeks - and 3 months to recover my energy. That was part of it - sleep dysregulation. Was it the COVID virus or was it COVID revealing gut dysbiosis? Hard to know but I did go back to the GI dr and we did treat SIBO again. I don’t think we got rid of it the first time though the xifaxin helped a lot. The first time (2017) I hadn’t dialed in the diet and did not realize that the gluten free baked goods were not my friend. Even when I made them from scratch - tapioca starch and arrowroot flour among others caused problems no doubt feeding the small intestine bacterial overgrowth. I’ve found healing the gut to be a layered process. Gluten is one of the issues but not the only one for me. Identifying the root causes has helped. Take care and be well. 

Several vitamins and hormones play a big part in regulating our sleep.  When I fixed some of my B vitamin and acid reflux issues, my sleep improved A LOT.  Also, you need to get sunshine every day, letting it get into your eyes (not looking at the sun of course, but seeing sunshine a little bit without sunglasses on)...this helps our own body to create melatonin.  Also a little melatonin, passion flower, valerian sleep aid can help. Look for Dr. Peter Osborne's videos about it on Youtube, they have helped me a lot.

I had a big D deficiency and did not get improvement until I added K2, also a little sip of apple cider vinegar before meals with protein.  K2 helps the D3 to get absorbed. D also needs acid to be absorbed, so the ACV helped.  The ACV also helped with bad acid reflux.
For me, the other one that took awhile to figure out was B1 Thiamine. I was taking a multi B, but my energy was still lagging (and I had severe asthma).  Search for KnittyKitty's posts about B1, studies about taking the oil based forms, like benfotiamine and lipothiamine, which absorb much better.  When I added the oil based forms, wowza, my asthma reduced to almost nothing and energy much improved.
 
I also take this B12 per Ennis' recommendation and I can tell a difference with my energy when I skip it:
https://www.amazon.com/gp/product/B003BHUZ68/ref=ppx_yo_dt_b_search_asin_title?ie=UTF8&psc=1
 

I think I did have a hiatal hernia, docs thought I might, but no diagnosis based on a scope or anything, just on symptoms.
I didn't try the chiropractor, but I tried that thumping of your heels first thing in the morning.  Things were slowly improving after that.  Then one day, after eating lunch, I had the dry cough and lots of acid reflux distress, it was VERY uncomfortable.  So I drank some water and did the thumping, and I felt a weird feeling at my stomach as if something slid down.  It was a weird sensation just for a few seconds, like a slippery eel sliding down...yuck.  I'm guessing it was this.  Since then I have not had the severity that I used to have, and taking a teaspoon of apple cider vinegar before meals with protein and DGL after dinner (or if any acid reflux...I like spicy food) is all I need now.  I haven't taken any antacids since trying the things in the article.
Oh...since my problem got worse as soon as I laid down to go to sleep, we also did a little elevation of the head end of your bed ... we started with one 2x4 for about a week (2" height).  Then we added to it, to 2 2x4's (4" height) at the head and 1 2x4 at the middle legs.  Can't tell it's there, but we both thought it helped and I don't get that dry cough then anymore.

I've had neuropathy issues to some degree for almost 25 years, even though I've been taking supplements that are supposed to help with it. It wasn't until I started taking benfotiamine (a type of B1 that absorbs better), and magnesium citrate during the past year that I've finally stated seeing improvement with it.

I think this varies greatly from person to person, and depends on how much damage was done to your intestines, but for me I began feeling better immediately. My full recovery took a couple of years, and I also had to temporarily eliminate several other foods in addition to gluten to recover. 

Here's an article that explains how the "feel-good" brain chemicals are made in your intestines and how thiamine (vitamin B1) can help heal the intestines, relieve inflammation, and make those "sense of well-being" brain chemicals.
"Thiamine Deficiency - A Potential Cause of SIBO and other Gut Dysfunction?"
https://www.eonutrition.co.uk/post/thiamine-deficiency-a-major-cause-of-sibo
 

Hi metalhead,
I agree that you may have celiac disease.  Your tests are positive even if the results are low positive.  It looks like you didn't get the full celiac antibodies test though?  The DGP IgG, DGP IgA, serum IgA  and EMA results are missing?  Perhaps those tests weren't done?  We have had people on the forum who only tested positive on IgG antibodies before.  So if that one test, DGP IgG wasn't done, they would not have been diagnosed.
Low vitamin D is typical for some people with celiac.  Also low B vitamins.  Nature Made is a good brand of vitamins to take, and not real $$$.  There are some minerals that tend to be low also, like magnesium, copper and zinc.  You may feel better if you can get a good B complex and a multivitamin and mineral complex.  B-12 is related to nerve health.  
Celiac disease can cause damage to the villi lining of the small intestine.  That damage prevents efficient absorption of nutrients.  So celiacs can be low on various vitamins and minerals.  Taking supplements can help, but with the gut damage they may not be well absorbed.
The gotcha is that without proper nutrient levels it is hard for the body to repair and maintain it's tissues.
 

It took me awhile, but not until I addressed the vitamin deficiencies created with Celiacs. 
I just posted this for someone else:
I had big D deficiencies (take D3 and K2, the K helps absorb the D), B vitamin deficiencies, especially B12 and B1 (thiamin). 
KnittyKitty has posted a LOT about B vitamins. Try searching for those posts and you will dig up a lot of info. 
it's not about just taking vitamins, most are junk, have fillers, are not forms of those vitamins that your body can absorb and use. But taking the right forms of each vitamin makes a huge difference, you have to learn about what actually gets absorbed and works.  Also I strongly prefer capsules or gel caps, not hard tablets.  Make sure they are labeled gluten free of course.
I recommend a naturopathic doctor if that is available to you.  I have also learned a lot of reading articles by Dr. Jonathan Wright (naturopathic doctor here in the NorthWest USA, has many books and known world wide), also I follow the Youtubes by Peter Osborne (he has a lot of info about the right forms of each vitamin).  Search out articles and youtubes by these guys.
When I was first diagnosed in 2015, I dropped so much weight after going gluten free, I literally looked like I was ready to just drop over and die, it really scared me to look in the mirror.  I was one that was overweight with eating gluten, it caused so much inflammation and puffyness.  And when I stopped eating gluten, I was losing several pounds of water a day.  In a month, I dropped 30 lbs, underneath I was a skeleton, no muscle.  I remember the shock on peoples' faces when they saw me for the first time in awhile.   I'm 64 now (female), built back muscle, and now do 20 push ups a day, walk a few miles a day, and working up to getting back into my old Pilates machine routine.  It takes awhile, go slowly, but vitamins, and the right form of the vitamins really really helps.

I had a big return of my energy when I addressed the vitamin deficiencies created with Celiacs. It takes a long time to heal and start absorbing vitamins again, but supplementation really helped me. 
I had big D deficiencies (take D3 and K2, the K helps absorb the D), B vitamin deficiencies, especially B12 and B1 (thiamin). 
KnittyKitty has posted a LOT about B vitamins. Try searching for those posts and you will dig up a lot of info. 
it's not about just taking vitamins, most are junk, have fillers, are not forms of those vitamins that your body can absorb and use. But taking the right forms of each vitamin makes a huge difference, you have to learn about what actually gets absorbed and works.  Also I strongly prefer capsules or gel caps, not hard tablets.  Make sure they are labeled gluten free of course.
I recommend a naturopathic doctor if that is available to you.  I have also learned a lot of reading articles by Dr. Jonathan Wright (naturopathic doctor here in the NorthWest USA, has many books and known world wide), also I follow the Youtubes by Peter Osborne (he has a lot of info about the right forms of each vitamin).  Search out articles and youtubes by these guys.
When I was first diagnosed in 2015, I dropped so much weight after going gluten free, I literally looked like I was ready to just drop over and die, it really scared me to look in the mirror.  I was one that was overweight with eating gluten, it caused so much inflammation and puffyness.  And when I stopped eating gluten, I was losing several pounds of water a day.  In a month, I dropped 30 lbs, underneath I was a skeleton, no muscle.  I remember the shock on peoples' faces when they saw me for the first time in awhile.   I'm 64 now (female), built back muscle, and now do 20 push ups a day, walk a few miles a day, and working up to getting back into my old Pilates machine routine.  It takes awhile, go slowly, but vitamins, and the right form of the vitamins really really helps.

I understand. An ENT doc tried to prescribe me some PPI's for my complaints about dry cough and asthma, but I refused. I still remember the look on his face when I said "but you NEEEEED ACID TO ABSORB VITAMINS..." and he nodded his head, he knew I was right.  I took over the counter antacids for a few months, but followed the advice in the article, and gradually tapered off.  The morning routine of thumping feet after drinking water helped...I think it helped move a slight hiatal hernia back into place.  But that didn't fix it all, the apple cider vinegar did the rest.  If you can, work with a naturopath. Traditional docs just want to prescribe something that reduces symptoms, not actually fixes or helps the root cause.

It took me awhile, but not until I addressed the vitamin deficiencies created with Celiacs. 
I just posted this for someone else:
I had big D deficiencies (take D3 and K2, the K helps absorb the D), B vitamin deficiencies, especially B12 and B1 (thiamin). 
KnittyKitty has posted a LOT about B vitamins. Try searching for those posts and you will dig up a lot of info. 
it's not about just taking vitamins, most are junk, have fillers, are not forms of those vitamins that your body can absorb and use. But taking the right forms of each vitamin makes a huge difference, you have to learn about what actually gets absorbed and works.  Also I strongly prefer capsules or gel caps, not hard tablets.  Make sure they are labeled gluten free of course.
I recommend a naturopathic doctor if that is available to you.  I have also learned a lot of reading articles by Dr. Jonathan Wright (naturopathic doctor here in the NorthWest USA, has many books and known world wide), also I follow the Youtubes by Peter Osborne (he has a lot of info about the right forms of each vitamin).  Search out articles and youtubes by these guys.
When I was first diagnosed in 2015, I dropped so much weight after going gluten free, I literally looked like I was ready to just drop over and die, it really scared me to look in the mirror.  I was one that was overweight with eating gluten, it caused so much inflammation and puffyness.  And when I stopped eating gluten, I was losing several pounds of water a day.  In a month, I dropped 30 lbs, underneath I was a skeleton, no muscle.  I remember the shock on peoples' faces when they saw me for the first time in awhile.   I'm 64 now (female), built back muscle, and now do 20 push ups a day, walk a few miles a day, and working up to getting back into my old Pilates machine routine.  It takes awhile, go slowly, but vitamins, and the right form of the vitamins really really helps.

Well another thing that lingered for me was acid reflux/gerd with dry cough and wheezing. What I Iearned from Dr. Jonathan Wright is that acid reflux is 99% from too little acid, NOT too much. The food does not digest, and so rots and ferments and that causes the problems.
What helped me a lot was following this article:
https://drjockers.com/hiatal-hernia/
Do NOT take any acid controller medications, those will make it worse in the long run, and you will prevent absorbing vitamins. We need acid to break things down so that our intestines can absorb those vitamins that Celiacs need so badly.
I now only take a sip of apple cider vinegar before meals with protein (first with a little water to get used to it, now I take it straight)...YES ADD ACID.
and these DGL tables after dinner most days (needing to take less and less):
https://www.amazon.com/gp/product/B001IAJW0K/ref=ppx_yo_dt_b_search_asin_title?ie=UTF8&psc=1
 
 
 

It took me awhile, but not until I addressed the vitamin deficiencies created with Celiacs. 
I just posted this for someone else:
I had big D deficiencies (take D3 and K2, the K helps absorb the D), B vitamin deficiencies, especially B12 and B1 (thiamin). 
KnittyKitty has posted a LOT about B vitamins. Try searching for those posts and you will dig up a lot of info. 
it's not about just taking vitamins, most are junk, have fillers, are not forms of those vitamins that your body can absorb and use. But taking the right forms of each vitamin makes a huge difference, you have to learn about what actually gets absorbed and works.  Also I strongly prefer capsules or gel caps, not hard tablets.  Make sure they are labeled gluten free of course.
I recommend a naturopathic doctor if that is available to you.  I have also learned a lot of reading articles by Dr. Jonathan Wright (naturopathic doctor here in the NorthWest USA, has many books and known world wide), also I follow the Youtubes by Peter Osborne (he has a lot of info about the right forms of each vitamin).  Search out articles and youtubes by these guys.
When I was first diagnosed in 2015, I dropped so much weight after going gluten free, I literally looked like I was ready to just drop over and die, it really scared me to look in the mirror.  I was one that was overweight with eating gluten, it caused so much inflammation and puffyness.  And when I stopped eating gluten, I was losing several pounds of water a day.  In a month, I dropped 30 lbs, underneath I was a skeleton, no muscle.  I remember the shock on peoples' faces when they saw me for the first time in awhile.   I'm 64 now (female), built back muscle, and now do 20 push ups a day, walk a few miles a day, and working up to getting back into my old Pilates machine routine.  It takes awhile, go slowly, but vitamins, and the right form of the vitamins really really helps.