moleface
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Thanks for the reply! I try not to be too harsh with doctors, but I can't help it when I'm so deeply frustrated. I went from peak health and daily running to suddenly feeling like death 247. I rapidly lost enamel on all my teeth, and...
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Oh, I know that the ketogenic diet is a good treatment for some conditions, mostly due to eliminating carbs. Apparently it does wonders for diabetes. Still though, I can't help but scoff at my brother for buying into the biggest fad...
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Gluten free Cheerios warning !!
moleface replied to Arduaine's topic in Celiac Disease - Post Diagnosis, Recovery/Treatment(s)
Yeah, I considered doing that, but I haven't gotten around to it. I feel like one call wouldn't make much of a difference, and I'd be complaining to an underpaid customer service representative who has no control over any of this. ... -
Gluten free Cheerios warning !!
moleface replied to Arduaine's topic in Celiac Disease - Post Diagnosis, Recovery/Treatment(s)
This is why I stick to inherently gluten-free foods - I've been burned too many times. Oats are obviously a huge source of cross contamination, so even if it tested at the 20ppm limit, it still could contain gluten-contaminated oats... -
Thanks for the advice! Honestly, I was always skeptical of the Crohn's diagnosis, and I originally figured that the gastro doctor had misdiagnosed Celiac. I started to entertain the possibility of both once my symptoms continued despite...
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I actually hadn't read that before, but thanks for bringing it to my attention! It's a good summary of how varied the symptoms really are. I have all the gastro symptoms, but my main issues were always autoimmune - iritis, swollen hands...
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Thanks for the clarification, but they didn't do an upper G.I. endoscopy - they did a colonoscopy. This is just further evidence that this new doctor didn't even consider celiac to be a possibility. The previous gasteroenterologist...
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Yeah, that's the impression I'm getting. If doctors won't acknowledge celiac after all this evidence, I'm pretty sure I'll never be able to convince anyone. The irony is that these people are basically telling me I'm deranged for...
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Well, after going to the new gastroenterologist, it looks like I was right all along - the first gastro doctor had misdiagnosed celiac as crohn's disease. I had a new colonoscopy done, which now shows no ulcers, anemia, or inflammation...
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It's disheartening that so many doctors could be so irrational. If I managed to find this many inept, dismissive doctors in my own limited experience, this sort of thing must be absolutely endemic to the medical system. It's frightening...
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I just wanted to bookend this old thread with some updated info. To sum things up, sometimes it really isn't you. Sometimes you just happened to get a particularly bad doctor through sheer luck of the draw. Today I finally went...
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Statistically, people with autoimmune diseases are likely to get dismissed by multiple doctors before receiving an accurate diagnosis. I think part of the issue is that the gluten-free lifestyle is viewed (somewhat accurately) as a "fad...
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Gluten Withdrawal Symptoms?
moleface replied to Nestor's topic in Celiac Disease - Post Diagnosis, Recovery/Treatment(s)
Yeah, this happened to me too. I got disagnosed with iritis and my blood test showed antibodies associated with autoimmune diseases, on top of a year straight of severe gastro issues and swollen hands. I only found out about celiac disease... -
Tooth enamel defects?
moleface posted a topic in Celiac Disease - Post Diagnosis, Recovery/Treatment(s)
I was hoping someone could help clarify this, because I'm very confused. Aren't enamel defects one of the telltale symptoms of celiac? Because a gastro doctor I saw had never heard of it, and recently the symptoms have been also baffling... -
Tylenol warning
moleface replied to GFinDC's topic in Gab/Chat Room - To Discuss Anything BUT Celiac Disease / Gluten-Free Diet
OTC pain medicines are essentially useless for significant pain in my experience. Ironically, opioids are actually much better for your body, aside from the physical dependence issues. I always found it ironic that American doctors...