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AmberJ

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AmberJ last won the day on December 16 2016

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  1. I had a similar reaction (couldn’t lose weight then lost way too much after diagnosis...then a year later weight ballooned and I couldn’t lose it no matter what) BUT, I have found that my body hates sugar of all kinds. I went on the Whole30 diet at my doctor’s direction (no dairy, no sugar, no rice or other grains), and my bathroom habits straightened up, my energy skyrocketed, and my moods lifted. Took about 6 months on the diet though. I’d say give it time and try cutting something out that you wouldn’t normally think of. Celiac has far-reaching consequences, but even with just eating meat and veggies, I feel so much better that it’s worth it!
  2. I use Acure lotions. Love love love them! Also love LipSense lipstick and Younique stiff upper lip lip stain. I use Younique eyeliner and mascara...and a bit of blush/bronzer by Neutrogena. When I wear concealer, it's Younique. (I sell Younique now because the results are that good with no reaction.)
  3. I'm a first sergeant's wife (ret.). Yes, it disqualifies you from serving. If it is diagnosed during service, you will be med boarded out of the military because all MRE's and d-fac's are unsafe for a Celiac. I'm not sure about NOAA Corps.
  4. Yes, I had a perforated colon as well. At 21 years old. I'm now 35 and only a year into being gluten free, and no more issues as long as there is no cross contamination issues. Your body can only handle one pain at a time, so if something got worse, look into that. (And keep in mind misdiagnoses are common with Celiac patients.) Hang in there, it does get better.
  5. Yes, and I had to quit soda pop and limit lactose to get rid of it. It hurt so badly I would be sweating bullets.
  6. If it says "artificial flavorings" or "natural flavorings"...I will refuse to eat or drink it unless it says specifically that it's gluten free. The damage to my villi is not worth it.
  7. I was in an out of wheelchairs for 26 years - even had surgery on both feet - which did NOT work - and now since being gluten free, and eating mostly organic fruits and veggies, I am no longer in pain. The pain in my feet is mostly gone. I have eliminated gluten, as well as most caffeine, as well as soft cheeses, real whole milk (I use Silk), and yogurt. I still eat eggs, hard cheeses, and occasionally at my mom's, a limited amount of whole milk. The trick for me also though, is avoiding foods sprayed with a bunch of pesticides. Certified gluten free Cheerio's makes my feet hurt for days. Non-organic celery does the same thing. So the pesticides is the only thing I can think of. Keep trying different things. Don't give up. You got this!
  8. I'm unable to eat some things without gluten-type symptoms. I don't think it's gluten, I think it's pesticides and weed killer that's sprayed on just before harvest to make the harvest heavier and with less weeds. Cheerio's uses this. Wouldn't be surprised if this is your issue. Try some brand that's gluten free and organic, or use rice or quinoa as a substitute.
  9. Beer is gluten. Beer is a no-no for NCGI or Celiac patients. Try wine, most are gluten free.
  10. You may have a lot of strange symptoms for the first year. Your body is healing! But as for frequent diarrhea, it could be just the detox from gluten. I know it sounds crazy, but I had diarrhea, anxiety, and sleep disturbances often in the first month after going gluten free. If you're anything like me, it'll be a thing where you KNOW you got glutened when it happens. Diarrhea, while still a symptom of it, is in and of itself different than getting glutened. When I get glutened I get what I call "angry bubbly gut", like there's hundreds of loud, aggressive, angry bubbles in my gut. They can be heard from across the room as they round the corners of your intestines. Please keep in mind that these first few weeks are going to be different, sometimes uncomfortable, but just overall different. The body can only really deal with one issue at a time. If your toe is cut off, and you have a large cut on your finger that's healing....you'll feel the toe. If you have a dairy allergy and Celiac Disease, your body will just keep slugging along, and when elimination of gluten eases the body's load, only then can it deal with the dairy allergy. That's just an example but I hope you know what I mean. A good idea, endorsed by all my doctors, is to track as much as you can. I opened a new calendar on Google just for health. I'm sure there are apps that will do it for you. I track when I have BM's, any strange symptoms, what I ate before I got sick, etc. On more than one occasion it has helped me individually to track what patterns exists between how I feel and what I eat. Not to mention that it's extremely to doctors. I wish you luck, the next year will be a journey but you will learn a lot and get better! Be well! Much love!
  11. Sorry for my type-o, I'm on my iPad and I have fat fingers apparently, LOL.
  12. I'm so sorry you're going through that. I'm just about going on a year since my diagnosis. I don't eat out. Just went on vacation, and when handed a gluten-free menu, I asked if they prepare it on a separate part of the kitchen, and if they didn't know, or if they said no, I didn't eat anything. I'm becoming a pro at watching people eat. It helps to keep a small jar of peanut butter and some gluten free crackers, or bring a Tupperware container of grapes and cheese in my bag...I just eat what I brought rather than buying anything. No one has ever said anything to me about me bringing food when they don't have anything that is safe for me to eat. It also helps to eat substantial food before I go, so it's not agony smelling all the scents. I was amazed that I managed to go 9 days of airports and family get-togethers without being ill! When I get glutened, it helps to get a washrag and pour rubbing alcohol on it, and lay it on my pillow. The smell is strong, even stronger than when you're not nauseated, but the chemicals in the brain resist the vomit motions when you smell rubbing alcohol. I don't know how it works, but it really does help. Also, drink fluids...water, chicken broth, etc....to stay hydrated. The less hydrated you are, the less likely this will pass quickly. You have to take care of yourself! Avoiding gluten is likely remembering to eat or bathe...its self-care! I know it's difficult when in the middle of divorce or other super stressful times...but seriously, take care of you! You are worth it!
  13. Yes. The connection between gluten and the thyroid is strong. And the connection between sleep issues and the thyroid is strong. So it's not unreasonable to think the issues are connected to gluten.
  14. I have always had depression. On medication, etc. since I was about 12. But since going gluten-free, I've been off my medicine and doing great! When I get glutened by CC or whatever, I end up feeling enough depressed that my husband tells me I need to remember it's just my body responding to gluten, and we talk about where I may have gotten glutened. We can ALWAYS find something that is the probable place of CC. I can tell I'm down, but it's significant enough that he can tell too. It persists for a few days and then gets better.
  15. I wouldn't if I were you. The black eyed peas from New Year's Day meant 4 days of misery, based upon that guess......
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