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Everything posted by kathy1

  1. Kathy 1, I live in Lee. I just found your support thread on the celiac.com forum. Since it was 5 years old, I figured this was the best route. I am FINALLY correctly diagnosed with celiac, but it's taken its toll. I gained weight - lots & uncontrollably - and 2 days ago learned I am into bottom of diabetes range. Still want a group? Did you find help? Could we get in touch? Thanks!

  2. It is for me. I have tested negative for celiac and MANY other things including dairy. I have had more tests in the last year than I can count.I wanted to try probiodics as I have heard alot of good things about them. Since my husband eats a gluten-free diet, I already tried going gluten-free. That did not help at all, so that is why I am willing to give probiodics a try. My Dr has basically said he has no idea what is wrong with me.
  3. I want to be tested for food allergy's. What company do you recommend I go to? Since my DR doesnt believe in testing food allergys, I need to do this on my own.What foods should I get tested for? What company will provide testing on a larger number of possible food allergys? Thank you
  4. I need help deciding which probiodic to buy. What do you recommend? This would be to benefit SEVERE stomach bloating, gas and pain.
  5. Can anyone find the link of previous discussions on Sami's? I would love to read everything yu have on it.
  6. My husb has been eating Sami's Bakery poducts and really enjoys them. For the 1st time since going gluten-free, he enjoys a sandwich again. He eats the Millet & Flax bread, wraps, Hamburger and Hot dog rolls and he really loves the Pizza crust. The store cant keep these products in stock, as soon as they are delivered, the shelves are empty! Our problem is that we recd an email last week from the CELIAC@LISTSERV.ICORS.ORG stating that these products were not gluten-free. The email was old, Feb 2007, so I dont know why it resurfased, but we are now confused. has any testing been done since 2-07 on these products? The product labels do not state that the products are gluten-free, but all of the ingredients listed are gluten-free. So even without a gluten-free label- the ingredients indicate it to be a gluten-free product. The listed ingredients for the Millet and Flax bread are: Organic Millet Flour, Brown Rice Flour, Water, Aluminum Free Baking Powder, Sea Salt, Organic Grounded Flax Seed . If you saw this, would you buy it thnking it to be a safe gluten-free product? I need to know if anyone on the board has any information on Sami's Bakery products? My husband feels fine eating them. We would hate to give up using a product that we enjoy if it's not necessary to do so. Plus, the cost for these products are much more reasonable, 3.99 a loaf of bread instead of $7 or $8. I'd appreciate any guidance you can offer.
  7. Does anyone have a good Tuna noodle casserole recipe? I have the gluten-free egg noodles, but not sure about how to make it.
  8. I think that some of this controversy may be a "CYA" approach, since no one wants to be held liable! My husband drinks Jim Beam and has no problems at all. In fact- his Dr raves about his results on the gluten-free diet, so it does not appear to be effecting him in any way.
  9. Anyone know where we can buy this in bulh at a discounted price? I love this and use it alot. I have resorted to buying most gluten-free items in bulk via the internet, but I have not had any success in finding a site that offers this at a savings. The lowest price I can find is around 2.99. I would be more than willing to buy a few cases at a time if the price is right!!
  10. And how can it be purchased in bulk? I have only found it in multi packs at amazon .com. I believe it comes 6 packages to a case.
  11. I love Pamelas mix but it is very expensive- The best place I have found is amazon .com. saves dollars per bag....
  12. thats exactly what I have been saying since I discovered Pamelas. I use it all the time, just like you would use bisquick. Its fabulous.
  13. Walmart brand (copy of Centrum) vitamens. the pharmasist checked with the manufacturer. Much cheaper too!!
  14. My husb loves the Energ Wylde Pretzels. Says they are very close the "reg" pretzels and they do not cost $5 a bag.
  15. I tried making gluten-free Quiche crust for my celiac husband,but it was awful! Now I make my quiche crustless. It comes out exactly the same, but with no crust. I just spray the pan with oil and toss in my ingrediants. Very simple!
  16. Anyone In Ma?

    The Christmas Tree Shop at the Holyoke Mall carries a variety of gluten-free products at bargain prices. For example- Blue Diamond Smokehouse almond nut thins are 2.89 at Wild oats and other such local health food stores, but everytime I go to the Christmas Tree Shops they sell the same thing for $1 a box. I usually buy 10 boxes at a time since its 1 and 1/2 hour drive for me to get there.They also carry alot of Thai items real cheap too. with so much of the gluten-free foods costing alot more money, I will stock up whenever I can!
  17. Anyone In Ma?

    I live in Adams ma which is about 1 hour northwest of Northampton. I love NH, there are sooo many shops right on Main st and they even stay open till 9pm or so on a saturday night. We go to our Favorite restaurant"Spilettos" on main st on new years eve and then hit the shops till 9pm when the close. There is a Trader Joes and Wholefoods in Hadley Ma.They are on the same street and probably about 1/2 hour from northampton. There is also a support group in Pittsfield ma. Welcome!
  18. Its that time of year again. All of the Easter candy is out on the store shelves. Just wondering which brand of jelly beans are ok? Also, any other easter candy's that are ok.
  19. Thank you so much for taking the time to post all of this useful information. It must have been wonderful to talk to someone that was so well informed. I am finding that even the local doctors know little about celiac disease. Thanks again and I have said a prayer for you!!
  20. just wondering if you will be able to post that info here soon?
  21. Thanks! We dont have a PF Changs at home, I'll have to keep that in mind.
  22. I am going to Cambridge Ma this weekend to see the Star Wars exhibit at the Boston Musuem of Science. We are staying at a hotel next to the musuem. Does anyone know of a family restaurant that has gluten free menu options? We don't want to to travel too far from the hotel. Maybe something we could even walk to? I appreciate any suggestions you might have. Thanks, Kathy
  23. I made the mistake of signing onto this sight when I was 1st researching celiac disease. It has no free info and only tries to get you to pay for a membership. I say skip it.....the free boards like this one is all you need.
  24. I just rcd my sons tests results. The form says : TITER tTG IgA result "27" Flag "H" Reference 0-19 units GLAIDIN AB IgA results" 10" nothing listed under Flag reference 0-19 units GLIADIN AB IgG results "32" Flag "H" reference 0-19 units test performed at Quest Diagnostice in Cambridge MA Can someone explain what all this means and are his numbers high or low. He was DX via his Pediatrician with this test in Dec. He is seeing a PED Gi tomorrow. He has no symptoms at all, I had him tested because my husb was DX in early Dec and his mother also has it. His reg Ped did not know much about celiac disease so I am hoping I will feel better with the Ped GI.
  25. Since most of us will not exceed the 7.5% of income to claim our medical expenses, the flexable spending acctount is the way to go. You have to get a letter from the Dr that gluten-free food is medically necessary. Then you can put in a claim for the "extra" you spend on the gluten-free food. Plus the money in the Flex acct in not taxable, so it is a double savings. gluten-free bread for example, runs me $7 a loaf. I can buy a loaf of WW bread in the supermarket for aprox $2, so I get $5 back from my card for every loaf of bread I buy!!! Over a years time it really will add up. I am very lucky as my company just this year starting "giving" us a flexable spending acct with whatever left over money is from our benefit selections. Since we take my husbands health ins and decline mine, they "give me almost $3,000 a year on a tax free debit card" to be used for nonremibursed med expenses, deds, co-pays etc. These come right off the card. The food expenses need to be sent in paper form and it is alot of work, but well worth it! Especially if you buy gluten-free for your whole family, it is a savings you cant beat!!
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