cstark
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Latest Celiac Disease News & Research:
Posts posted by cstark
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What people have describing is seems to be happening my left leg. It's almost a pulsating buzz and it varies in severity. It is such a weird feeling. This has been fairly recent. Like maybe three to four weeks.
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EMK,
I am with you that my neurological symptoms flare up and become more susceptible every two weeks. It becomes rather monotonous and frustrating because then everybody knows that time of month for me. I try to hide the symptoms, but sometimes they just say "HI!". Pbbbt!
In addition to going to gluten free as this was found to be a HUGE trigger, I had also gotten a saliva analysis done because all the medical doctors I would go to said there's nothing wrong with me. (A saliva analysis is more a naturopathic route for healing.) Any way, I was tested out for a metal toxicity and female system imbalance. After doing some research, I had found that the symptoms I was having, even down to the parasite that was found, could be linked to the metal toxicity. I am about halfway through the regimen I was put on. I do believe something is working to the positive side. I have better concentration, less and less brain fog, and hormone are becoming more balanced. That time of the month is a lot better. Finding improvement in the cramping, brain fog, and emotional roller coaster.
With the every two weeks thing, I was starting to think it was just me as well, but hang in there.
{{{{{{{{HUGS}}}}}}}}
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It's tough and scary when you find you have to go gluten-free for health reasons and not just a fad. That first episode hit hard and fast leaving me in a whirlwind of dust. I was in survival mode for quite some time. The doctors all kept telling me "You are fine. All tests came back normal". HAH!! As a last straw, my mom asked if I would be willing to go gluten free to see what happens. This was end of Oct. 2015. Unfortunately, I had the blood work after I went gluten free, but thank goodness my Ig levels were still high that it flagged it.
I didn't think I would make it. Those few months were almost pure torture, panic attacks with the episodes, lovely combination. YUCK! My emotions were a yo-yo, I'm surprised my family did not put in a locked, padded room. I think all I did for the few months was cry and be somewhat depressed and anxious.
Now a year later, things are a whole lot better. My body feels healthier and stronger than it ever was. Emotionally and psychologically things are better. I started to go a Healing Touch practitioner mid-November, and this seemed and continues to help keep body systems in align with each other. My family has supported me all the way. There were moments it was dark, daunting, and yes, even a scary. They were there through it all. Depending on you family relationships, they can be a great resource and sounding board through good and bad times on your journey.
In reference to being vegetarian, don't despair. You are already finding things to substitute and what works and what doesn't work. Found a website that may be helpful for you, minus the grains portion: http://www.mayoclinic.org/healthy-lifestyle/nutrition-and-healthy-eating/in-depth/vegetarian-diet/art-20046446?pg=2. Also, it important to be able to read what your body is trying to tell you, especially as you start the healing process.
There is a Person Who has helped me so much, and that is my Lord and Saviour Jesus Christ. He has been with me each step of the way guiding and directing me. He has also taught me quite a few things about Him and my relationship with Him. Would love to share sometime, but I am getting off topic here.
Things will get better. This is a fantastic forum to bounce questions, suggestions, and advice around. Welcome to the forum egs1707!
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On 9/28/2016 at 4:39 PM, egs1707 said:
At the moment it's microwave rice packets as it needs to be something easy for lunch at work. What do you choose for breakfast? At the moment I have gluten-free porridge oats with fruits but also seeing oats are a bit of a gamble in the early days.
Trying to figure out how long a reaction takes to show up i.e. if I feel ropey later in the day is it really lunch as I'm blaming at present or actually is it something from the morning or even night before?
The food is the toughest bit for me right now; wasn't that great with it before so will need plenty ideas from you good people... seems I'm in the right place though
I'm not able to do much dairy, so I use almond milk as part of my breakfast. You can use it as a substitute for cow's milk for pretty much anything.
Overwhelmed and unable to accept
in Coping with Celiac Disease
Posted
So you have Celiac. Ok. But you can still live a relatively "normal" life, even with its ups and downs. We live with this disease knowing the cure is right there, staying away from gluten. Others are not so lucky with their diagnoses that have no absolute cure: diabetes, ALS, congestive heart failure, cancer, just to name a few.
Don't get me wrong, it does get hard when you are the odd ball out asking about every little ingredient that goes into a recipe or having to say "no thanks" when a co-worker offers you something they cooked. I get it, and sometimes the gluten free life can get down right depressing. I want to challenge you (and me
) not to let it. Find the recipes that work your diet (you can do it on a vegan or vegetarian diet). If co-workers get curious as to why you don't eat their food when offered to you, explain to them. If they don't accept it, then it's their problem. You did the best you can to help them understand. It all matters on how you respond to situations in life.
Hang in there.