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CarlaB

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CarlaB last won the day on August 11 2017

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  1. I have been fascinated by Broda Barnes MD's work on thyroid. In your research you might include this doc in your search. Sorry you're feeling bad. I got glutened from an iron skillet yesterday, so I'm a bit out of it myself.

    Oh, and since you're breastfeeding, be sure you're getting enough fluids. I get nauseaous when I get dehydrated. If your baby is going through a growing period, maybe he's eating more and taking more of your fluids.

    I didn't feed my babies significant solids until they were about a year old, so don't worry, breastmilk is all he needs! I didn't use baby foods at all!

  2. I have been taking Solaray Thyroid for years due to low basal temps (Broda Barnes MD did a lot of research on this) and so many other symptoms of low thyroid, including cold hands/feet, low energy, etc. I did not have trouble with weight, probably due to the gluten intolerance. In fact, my weight dropped to 123 and I'm 5'8". I've since gained 8 pounds back. I don't know if that's really low weight or not, but people could tell I was sick and I was eating twice as much as any grown man would. I was taking 300mg per day thyroid, but have reduced it to 150 since going gluten-free. I use my basal temps as the indicator as it seems to be more reliable than the blood tests IMHO, but that may have something to do with my basic distrust for the medical profession ... that's another topic altogether. When the doc tested my throid during all the testing for celiac, he said my levels were normal; that was when I was taking 300 mg. daily, so apparently I needed it.

    I knew about my throid problem years before I learned about my gluten problem.

    Carla

  3. I'm not sure how to quote ... but in response to the adjustment of foreign adoptions, I think you'd also like my son! He's quite a little charmer! We've had him for 7 years now, and after the initial difficult year, he has adjusted quite well and is a straight A student. Most people who meet us don't even know that he's adopted unless we tell them as he even looks like the rest of the kids. But that first year can be hard. Now, I feel no differently about him than the others that I gave birth to. So, in the end, adoption is no different than having your own, so don't be disappointed in any way if it's your only option. We did it not because I couldn't get pregnant again (actually I was 5 months pregnant when we went to Russia), but because of all the orphans over there needing homes.

    When I was young, I never really liked children much ... I didn't even like to babysit. Most of my old friends and even my family are surprised at the size family we decided to have! Truthfully, passing on this health issue isn't even a concern. I had to stop having children because of health problems, and now that I know the problem, we've actually discussed having another. However, being 43 brings up a whole different set of issues, so we're just going to wait for grandchildren!

  4. My battery is almost gone in my computer, so I can't read everything here, unfortunately.

    I breastfed most of my kids for almost two years. They didn't eat a significant amount of solids until 1 year old, only the stuff they would pick off my plate when I was eating. Breastmilk gives the best nutrition of any kind of other food and has many components that are still being discovered that cannot be duplicated in formula. I definately would hold off on introducing grains since all people with the celiac genes don't develop the disease!

    I fed on demand. Sometimes they would go for hours, sometimes not very long at all ... just like me!! Sometimes they're just thirsty ... sometimes hungry ... sometimes just want the cuddling. You cannot spoil a child with love, only things. :rolleyes:

  5. I've only skimmed over this, but I've gotten the idea. I have 5 kids that I've given birth to, and one boy from an orphanage in Russia. It is true, not everyone is called to adopt as it is much more difficult to adjust to taking one of these kids than to have a baby of your own. I never believed all the psychobabble about bonding until I adopted! Bonding is real! I am glad we did it, but it was a very difficult adjustment for both us and our son. He is a great kid!!! But the first year was VERY hard. Plus, who's to say that you won't adopt a kid with a genetic problem you don't know about? In Russia, all the kids are labelled as having a problem because the orphanage gets more money for sick kids. You literally have to sign off that you know the kid is sick and take the risk.

    As far as having a kid and passing it on ... I have two copies of the gluten intolerant gene, so my 5 biological kids all have the genetic tendency to have a gluten intolerance. I think two of them have an active problem, and am going to have them tested by Enterolab. I know that I am very glad I exist and would rather exist with this disease than not exist at all!!! BTW, I was very ill during my pregnancies and did not know about my gluten problem at the time.

    As far as the rudeness going on in this forum, I usually find the only reason a person would be rude to a stranger or get upset with a stranger is an underlying guilt/hurt on their own part. I know that the negative traits in my children that bother me the most are the ones I have ... their other negative traits I can more easily forgive. I don't mean this to start another argument or lashing out, but just as a recommendation to look inside at why something offends you (including this post :unsure: ).

  6. I was fortunate enough to never have fertility problems (although I did have very difficult pregnancies) ... but I did teach natural family planning for 7 years and helped many with infertility who could be helped with low-tech methods to find out what their problem was. The method I taught (www.ccli.org) used temperatures and mucus signs. You can tell from the charts if it's a luteal phase deficiency (often accompanied by PMS), low thyroid, etc. It might not be a bad idea to look into it as you progress on the gluten free diet so you can see what's going on with your body as you heal. For example, a luteal phase deficiency can indicate low progesterone, which is needed to carry a baby to term. Scanty mucus (sorry guys, I know it's gross, but there are a lot of gross things discussed here!!), can be an indication of a vitamin A deficiency and can prevent sperm migration. Warning, this is another area where docs have little education. CCL has teaching couples all over the world, so there should be someone near you who can be of help. They are all volunteers, so would be happy to answer questions even if you don't take the class.

    For those thinking "Didn't she say in another thread that she has six kids?" ... yes, they were all planned and the youngest is almost 8 :rolleyes:

  7. Crushed Ice was the BEST! I even craved cool air during my pregnancy WEIRD. I would get in the car and turn the air on high and just soak it in (obviously I was preg in the summer). I wasn't even hot.

    Shelly

    I was always HOT when I was pregnant. Drove everyone crazy because I'd have the house as cold as a meat locker and I'd turn down the A/C at work, too. This from a person who always had a low thyroid and was always freezing! (I've been gluten-free for 4 months and take 1/2 the thyroid I used to)

  8. I wore one on the top for a couple years and it did relax my jaw. However, my TMJ was still a problem with my jaw cracking every time I opened my mouth and a lot of pain, so I needed the bottom appliance that actually moves the jaw ... it trains the muscles to hold it in a different place, which is why you even have to wear it while eating. I had no trouble playing my flute with it (flute players are notorious for having TMJ, but I even had it for the 23 years between HS and when I started playing again). But I do remember the relief the top one would give me at night. Now my jaw never hurts, I just wear it for grinding. Just like gluten intolerance, they are still learning a lot about TMJ.

  9. At each restaurant they have a binder with all the recipes for their products in it. Once I asked to see the ingredients for the soups and every one had gluten in it. I gave up on eating there since I was more worried about cc in the salads than the soups. I would double check the recipes at the restaurant because I thought I looked at the fire roasted corn and the black bean. Perhaps it used to have something labeled "food starch" and with the new labeling laws the recipes would be more specific.

    The ironic thing is that I often go there for internet connections and just get a cup of coffee. I've gotten to know the man who cuts up the fresh fruit and salad ingredients. I told him about never getting anything to eat there, and he assured me that there would not be the slightest crumb in the salads or fresh fruit as their cleaning between making different products is very thorough. Still, I never actually eat there, just drink.

  10. I felt like an idiot when I was learning to eat and talk with it, especially since I have six kids to tease me about it. I put off going to an ortho for years ... I live near Indiana University, and am seeing Dr. Coghlan (sr., his son is in the practice, too). He was a professor at IU for years and taught TMJ treatment. I'm moving to Ohio, and he recommended one of his collegues to me. You could give him a call to see if he has a recommedation where you live. I originally got a recommendation from my dentist, but stopped seeing that ortho as I really don't think she knew what she was doing.

    Carla

    PS Yes, it's in your mouth, on your bottom teeth. It made me lisp, but my daughter wears one and she can talk normally. It didn't help that I live in "Spencer" so whenever I had to give people my address, with the two "s" sounds and the lisp, they couldn't understand me!

    Oh, and it's so unnoticeable that you could participate in the activities being discussed in another forum and probably not have a problem :lol:

  11. I have gotten RLS ever since I can remember. When I was pregnant, it was the worst, and I was also anemic with each pregnancy. I've always considered it a sign to take iron for while, which would make it go away. Since being gluten-free, I have not had this at all, nor an anemia problem.

    When I was pregnant I always had low blood pressure ... if I got up and walked around at night, the RLS would go away and I could go back to sleep.

    Funny you mention ice chewing, I used to always chew ice! Now I drink water with no ice! I never made the connection.

    Carla

  12. I have had TMJ for as long as I can remember. My chiropractor could help tremendously, but it would always come back. I saw an orhtodontist who specializes in it, and got a splint that's worn 24/7 for six months (yes, even while eating). It pulls the bottom jaw down and forward so that the joint isn't jammed up (if that makes sense). Now the otho is grinding down the splint so that my teeth lengthen (on their own, not with caps or other expensive solutions). Believe it or not, they do grow. My top and bottom teeth have not touched for months except for the front teeth, but are now starting to come together. This has completely healed my TMJ!!! At this point I wear the splint at night because of my grinding. All was completely covered by my medical insurance (not dental) because it's a joint problem.

    My chiropractor did help a lot with comfort, but my muscles needed to be trained to hold the jaw in place, which is what the splint did.

    I think the whole thing is aggravated by the joint pain I get from the gluten intolerance.

    Carla

  13. Here is my doctor's actual response when I emailed him. I was glad to have him so supportive and validating. I do not have the celiac gene, but two copies of the gluten-intolerant gene. I'm so much better, my kids would physically assault me if I even pretended to consume gluten.

    Very enlightening. I think I'll use this lab for future diagnostic testing with suspect celiac problems. Certainly would rather spend the money on a more accurate determination. I wonder if you have to be half dead before the antibodies show up in the blood -- next time I talk with Dr. G____ I'll see what his experience has been.

    Thanks again -- will put these in your chart.

  14. My tests came back negative as well. The biopsy did, too. I had figured out that wheat made me ill about three years before the blood test, but did not eliminate all gluten from my diet. Maybe this is why my blood test came back negative. I went on a gluten challenge before the biopsy and was very ill the whole time; if you read the list of symptoms, I had almost all of them. My oldest daughter and husband had to take over the things I normally do (we have six kids, infertility was one problem I did not have!). Whenever I go into denial because of my negative (actually, inconclusive) tests, my daughter and my husband assure me that I'm crazy and that I will not be consuming any gluten around them. I am waiting for my Enterolab results, but no matter how they come back, I realize that I get very sick from gluten. I am one of those who feel bad if contaminated by a crumb. It seems apparent to me that gluten can make you sick even if the docs can't expain why. If you feel better not eating it ... don't.

  15. I went to Moe's at an off-time and stood by the kitchen. They let me read their seasonings, cans, etc. to see the ingredients. The main office had told me they were switching over to Knorr seasoning, and this particular restaurant already had the Knorr seasoning. The label on the Knorr said "modified food starch." I have not researched it any further as the cook told me that they only use it in the chicken, so the seasoning they told you and I they were switching to is only used in one product and has modified food starch in it. I read the other seasonings, for the beans, etc. and found they were okay. I avoid the chicken because of the unnamed food starch.

    CC is an issue because they touch the tortillas, then use the same hands to pick up the ingredients ... I'm one of those who gets ill off of crumbs, and only have a mild reaction when I eat there.

    They have a binder that has all the recipes and ingredients listed. They have been very helpful to me when I've asked, but I've also only bothered them with questions when they weren't busy.

  16. Did you see the news that McDonald's uses wheat derivatives in their fries? They just disclosed it today on their website and defended themselves by saying that the protein is removed, therefore it shouldn't bother those of us who need to eat gluten-free. What do you think? Are they safe? I'm staying away from them ... I haven't eaten them since going gluten-free, but it was nice knowing that I could have them if I got in a pinch.

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