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pikakegirl

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pikakegirl last won the day on May 27

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About pikakegirl

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  1. Yes on the nightmares. Usually I know I am Celiac and my family gives me food but it has gluten in it and I am furious. That has never happened and they arensuper supportive to the point my home is gluten free so go figure. As for food...
  2. Thank you frieze, will research this. I really need a magnesium supplement.
  3. Ok, I have to get it together. After 11 years of militant gluten free eating, not eating out or eating processed food I glutened myself. I have not eaten chocolate since I was first diagnosed and this Halloween I caved. My memory failed...
  4. Thank you poster boy. Yes all those have been addressed. Taking D3 daily and refuse to take meds with muscle pain as side effect. I am EBV positive and unfortunately cannot tolerate magnesium supplements of any kind causing extreme GI cramping...
  5. I was diagnosed in 2007 and had food fear and fear of starving right away. I found because I am Silent I could not rely on having symptoms to tell me that something labeled gluten free was not. At that time legislation for testing had not...
  6. I have an emergency stock of Libbys Naturals Peas and Green Beans. Also use Del Monte no Salt Green Beens and Sweet Peas. Read ingredients carefully because some canned foods add some preservatives and flavors. I find the same with canned...
  7. I lost 70 lbs in the first year. Water retention weight and inflammation. My blood work was normal in 6 months. I wish i had a full vitamin panel done. Took years to find my folic acid, D3, B2 and K2 crashed. When I stopped eating processed...
  8. I have numerous food intollerences and chemical limits so I made my own prep for the 36 hours. I used Miralax and Dulcoax with homemade vegetable broth which I strained to almost clear but slightly yellow. Also apple juice. I would drink...
  9. So great you are getting tested. Celiac affects the Vegus nerve attached to the GI system creating all sorts of symptoms as do vitamin deficiencies. I have been blood, biopsy and genetic test positive Celiac. gluten-free for 11 years but...
  10. I found water to be a problem early on as well. Tap water chemicals gives me gi distress and additives like magnesium to bottled waters does it too. I drank distilled water for years until I read about acidic ph and water. I saw a youtube...
  11. I was diagnosed in 2007 and went gluten free immediately however even a year later I was having problems like you describe. I went on an illmination diet. I got to 10 foods only diet before my symptoms stopped. That diet was organic brown...
  12. I have sikent Celiac as well and I eat Cascadian Farms Organic one ingredient peas, carrots and green beans. I have never had an abnormal ttiga or crp from eating them. My pill cam and colonoscopy were immaculate while eating them. However...
  13. pikakegirl

    Constantly tired

    I found out I was MTHFR positive meaning I am not converting folic acid in foods. Also trouble absorbing B12 though that blood was normal. I am taking the methyl forms of these and have loads of energy now but the early years were exhausting...
  14. I have had this too. More the first years after diagnosis. Rice would go right through undigested. I found I have a problem with rice syrup and digestion. It is as bad as corn syrup unfortunatley. Even after 11 years and a clear colonoscopy...
  15. pikakegirl

    Celiac and Life.....

    I wish when I was diagnosed I had demanded a full vitamin panel to start. This shows the level of malnutrition and malabsorption so you can pinpoint supplements to help you while your gi heals. All the processed food is enriched with vitamins...
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