TexasJen

On 12/1/2021 at 4:09 PM, AmericanaMama said:

Have you had any luck with rheumatology?

No😩. She really didn’t think that there is much chance that celiac is associated with enteropathic spondyloarthropathy at all. She did listen and is checking to see if there is a different autoimmune condition causing my arthritis. So, I could have a whole different problem. Sigh. 😔

I’m just now seeing this post but there is a type of enteropathic arthropathy related to celiac. I think I may have it and am searching for answers. It seems rare and I’m having trouble finding info or physicians that have heard of it. Scheduling an appointment with a rheumatologist. Hope she’s heard of it. 😬

Sure am hoping for good results with this trial .....would love to feel carefree in restaurants. Or, heaven forbid, eat real pizza!

Red Apple lipstick (I don't really like the colors they offer though)

Colour Pop is marketed as gluten-free too. They are not too expensive.

Taco Tuesday, baby!  It's a thing..... We eat tacos and/or taco salads so much here!.  I also make beef and chicken fajita meat and serve it with black beans, rice, guacamole - think homemade Chipotle bowl.   Cajun red beans with chicken and sausage - I make it in a crockpot and serve it over rice. Now that it's getting cooler, I have also been making a lot of soups and chili. 

Good luck!

15 hours ago, SevereCD02 said:

Thank you for the info @knitty kitty. Were the sulfers in the SSRI/PPI/NSAIDs also damaging your small intestines or just causing symptoms?

Hi Severe-

I have 2 thoughts-

One is that there are other formulations of SSRI/MAOI. Emsam is a MAOI. It is a class of drug that sounds like you haven't tried before. It is administered through a patch on the skin so no gluten exposure at all! I have a friend who tried a variety of SSRIs over her life and finally found a great response in Emsam to her depression.  MAOI are a little tricky because there are some pretty strict dietary restrictions when using them (i.e. no cheese) but if it works, maybe it's worth it. It was for her.

Also, Prozac comes in a liquid form. It says that it is gluten free.  

Finally, 70-80% of our serotonin receptors are found in our GI tract.  A very common side effect of SSRIs is diarrhea, especially when starting and stopping them. Usually there is a 2 week period when starting and stopping where diarrhea is very common and even then some people have it for longer - just taking their regular dose. Your diarrhea could just be a side effect of the medication and not being glutened at all.  As we age, we become more sensitive to the side effects of medications so just because you didn't have diarrhea before doesn't mean the SSRIs are not the cause now.

Good luck!

On 8/22/2017 at 1:49 PM, Renee Piazza said:

Hello,

This is my first time posting to this board. My daughters were both recently diagnosed with celiac. We are getting used to it. It's so much easier to control on the home front, trickier when we travel. We suspect we've gluttoned our youngest, who seems to have it much more severely, via cross contact a few times. Dish towels, sponges, cutting boards etc. while visiting family. They go to extraordinary lengths to accommodate us food wise, it's the environmental piece that feels insurmountable right now.

What are your best travel tips when visiting family or going on vacation when you want to cook in a kitchen? We love to cook, food is a big deal to us. Do you bring your own items? If so, what do you bring? WOuld love to hear how other approach this. Thanks!

I agree with cyclinglady. I don't have the same plan for every place we visit. Every place presents it's own challenges, so I spend a lot of time planning meals everywhere we go.

My mom is not really a cook and when she does cook, it's rarely with flour. So I use her pots and pans and clean them well. I buy my own sponge, dish towel, cutting board there. Use butcher paper on the counter and a lot of paper towels to wipe off the counters.

My in-laws live in the mid-west. I'm pretty sure everything there is made with flour.  My sister in law uses her wood block kitchen table to roll out her pie crusts. So, the whole thing is literally covered in flour. I barely eat in her house when I am there. When she's baking, I go outside.  I eat frozen meals, beans and rice out of a can, Chex cereal out of paper bowls, and a lot of bananas. 

I did travel to the East this summer and thought of one easy thing (it may not be practical for every trip though). DC had a completely gluten-free restaurant and it would have been so nice to have our hotel on that block. Then it would be convenient for me to just walk down the block for one hot meal a day. The rest of the family could still go out to a variety of food.  I wouldn't have to eat out of a can for the whole trip!

I do have a plastic travel box for car trips. It has paper bowls/plates, paper, towels, a set of silver ware, a paring knife, spatula, spices, single use packets of mayo and mustard, cutting board, can opener, measuring cups and a skillet. I take it with me camping, hoteling, to cabins. Then I buy some food depending on my needs/type of trip we are taking. 

Traveling and socializing is definitely the hardest thing about having celiac. Remember that life is about the relationships we have and not as much about what we eat - it is very important to keep reminding your kids.

Peanut butter is always my breakfast when I want to stay full for a while.  When I am in a rush, I just eat a spoon of peanut butter and a glass of milk with some fruit. When I have a bit more time, I make toast with peanut butter. Cereal doesn't keep me full in general.

I know you said you might have trouble with oats (but if you figure out that's not the case), what about a bowl of oatmeal?

I just ate Snack Pack pudding this week. It was labeled "gluten free". I think Jello brand puddings are gluten free as well but I haven't checked for myself... I haven't checked on Hershey's brand, but I thought I'd give you some options.

Did you call the person who put the crown on a couple of months ago?  It sounds like a complication from his/her procedure?  Maybe you could work a discount/payment plan since this sounds like it was an unexpected outcome?

Hope you feel better soon!

48 minutes ago, MarieK said:

I have only been diagnosed for about 5 months, so I'm still learning.  I haven't had any beer except gluten free beer in since dx.  However, a friend of mine who has had celiacs for decades was recently drinking a regular beer, and when asked, he said that the process of making the beer made the gluten in it no longer a problem for celiacs.  I found this article online about it.  Has anyone else discovered that they can (or can't!) drink regular beer?  Almost all the other articles say celiacs cannot have regular beer.  I guess I could just try it and see if I get glutened, but I wanted to ask all your advice.

https://www.craftbeer.com/attachments/0001/6865/Celiac_Disease.pdf

The article is interesting theoretically but I am not sold...

First of all, the article is clearly biased.

Secondly, it is constructed like an academic article might be but it is clearly more of an editorial type piece. 

Third, there is absolutely no scientific evidence presented in the article. 

Here's his summary, "

Gelu65, I'm so sorry to hear that you are having such a hard time right now.  I hope you can find yourself a great family practice doctor or geriatrician - someone that will really listen to you. I don't think it's wrong to try a gluten free diet, but there are many causes of night sweats including thyroid problems, medications, low testosterone, and even cancer. The best way to find a good cure is to find the right diagnosis!

Best of luck.....

I was diagnosed recently too and am still looking. I use Aquaphor. I bought some gluten-free lipstick from Whole Foods. Gabriel cosmetics. I don't love the consistency of it but the color was good. Whole Foods has 2-3 brands that are gluten-free and they have a list on their website with what's at your local store. I don't know if there's one near you....