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silky_chicken

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  1. Hi everyone! I really need some advice on how to handle a situation. My niece was diagnosed celiac disease, by blood test, 3 months ago. I was diagnosed 2 months ago. The past 2 months have wreaked havoc on my emotions and coping with being gluten-free now. My niece's mother, my older sis, has recognized that she has at least a gluten intolerance. My sis went to the dr today to have the blood test done after describing her symptoms to the dr, he suggested that she do a gluten challenge, well she already has and has suffered since going with out gluten then starting back. So without a blood test or biopsy, her dr diagnosed her with celiac disease. Her dr also described to her "well now you are allergic to gluten start listing that on your paperwork." But celiac disease is not a gluten allergy. My sister today said, "well the number of celiacs in the family is growing." But do we really know that???I don't know, how to put it exactly into words, celiac disease still scares me. I would do anything to not have it, it's changed my life completely... and without any diagnostic tests she is now diagnosed... like am I frustrated for no reason? Am I being stupid? I feel like she could have nonceliac gluten sensitivity... or maybe she does have celiac... it just makes me uncomfortable... maybe because I didn't rest until I got my test and my results were in. I didn't just accept that I had it. I had to see the blood test. Maybe I just need a hug. I'm not sure. any words of wisdom or kind thoughts are appreciated. -Silky
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