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Jlewisrn

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  1. I have had 2 biopsies but of the rash itself not the way it should be done for DH. I asked and both times was told “it’s not DH” so they wouldn’t even consider it. I give up
  2. I have ANA drawn which I think they were testing for lupus. I don’t know what else that tests but it was negative. My thyroid also came back good. By looking at my labs alone I’m the picture of heath.
  3. I have been dealing with a rash for over a year now. I have been to multiple doctors who have diagnosed me with everything from scabies, eczema, allergy to a medication, razor burn ?, and Now idiopathic chronic hives. I have thought from the beginning it was something I was eating. I decided to cut...
  4. I have been so careful. Or so I thought. I’m not careful with some labels and just assume some things are “safe” I won’t make the mistake again. If gluten is causing this rash I need to know and avoid it. Since I stopped eating it the rash has gone away. I just can’t risk that rash coming back. I c...
  5. They tell me it’s not DH. I have not been diagnosed. I’m sorry... I guess this post was confusing. Some HX I got a rash exactly 1 year ago. I was diagnosed with scabies at that time. Treated twice. That wasn’t it. I have been to 2 dermatologist, 2 allergists, and 2 natuapathic doctors. Only...
  6. I’ve had it biopsied twice. One showed atopic dermatitis the other showed a drug ereption. I can’t get anyone to boipsy for DH.
  7. I just finished 60 of prednisone and had a steroid shot before starting those. I came back from DC with the worst my rash has ever been. Let me first say that I have not been diagnosised. When my steroids started to taper to .5 tabs daily I stated itching. The day after I took my last tab I got a...
  8. I have done extensive research and have been to multiple drs for the rash I have (several allergists, a few dermatologists, my PCP) I have been diagonisied with everything from scabies, medication allergy (I don’t take any medication), and eczema. When I do an elimination diet it goes away. When I...
  9. Darn! I can still the one photo. Hers are blisters not a rash. Mine was more rash like blisters. Hers are sporadic and mine was wide spread.
  10. I have suffered with a rash for about a year. I am currently on prednisone that has cleared it up (for now) I have posted here before... but my question is about my 21 year old daughter. She thought she got bit by a spider. But the blisters have spread. She has it in her ankle, calf, upper leg and...
  11. When I went to the dr he suggested I go on a histamine restricted diet until we figure out exactly what's going on. He gave me a printout on the foods to avoid and I did some research. It seem a lot of the foods are triggers for some of your DH. Anyway, may be something to look into if you aren't...
  12. I called another allergist today after being up all night itching. He is running a lot of blood work. One being a celiac panel. I didn't know he was going to run that heck I didn't know I was going to make the appt. I've been using steroid cream on my vaginal area for 2 days. Hopefully it's a small...
  13. I had an endoscopy today and the dr said everything looked good. He took some biopsies but said "you don't have celiac" I cried. Not out of relief but because it's another doctor (and more money) to not know what's wrong with me. This rash is driving me mad. Literally. I could cut out gluten but...
  14. I jus left the GI doctor and he scheduled an endoscopy with biopsy on Monday. How much time should have passed after a stereo shot for the results to be accurate? I had a steroid shot for a horrible rash on August 4. I can't find this information anywhere. Thank you
  15. Thank you. My vitamin D is on the low end of normal. My doctor recommended a supplement. I'm not anemic but have had episodes of being low. I haven't had anything else checked but I was just curious. Thank you