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trents

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trents last won the day on August 3

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About trents

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  1. Gallbladder? http://www.healthline.com/health/gallbladder-problems-symptoms#1

     

    Let me correct one thing you said about Pataprozole as this is a medication I also am on and have been for a long time to treat acid reflux. It's a proton pump inhibitor type acid reducer and doesn't need to be taken before meals. It's not an acid neutalizer. I take 40 mg in the morning after breakfast and it works quite well for controlling my GERD. It is also used to treat peptic ulcers.

     

    I sympathize with you in your frustration about the inattentiiveness of your physician. Changes in the medical delivery system here in the USA have caused primary care physician patient care loads to increase dramtiacally. Now, the doctor has his hand on the door knob as he talks to you, trying to hurry the interaction along in order to get to the next patient.


  2. The reality is, I don't feel well, and I need some suggestions as to what sort of doctor I should see next// any other suggestions. 

     

    Here is the list of symptoms I have: (I am twenty years old and I am female)

    -Panic attacks 

    -Fatigue

    -depression/anxiety INCREASED

    -difficulty walking up stairs (recently I also fell while going up the stairs, but typically it's just heart palpitations and out of breath when doing stairs)

    -body goes numb when jogging even if I only jog for thirty seconds

    -no appetite (have lost fifteen pounds and I wasn't overweight before)

    -pain in my legs when walking around occasionally (it shoots down the entire leg, sometimes both legs)

    -two instances in the past month of a new rash showing up on my thighs and then disappearing

     

     

    Diagnosis I already have:  (and because of celiac disease I am gluten free dairy free)

    Celiac disease

    Autism

     

    Tests I have already had within the last year which ALL came back NORMAL:

    Nuclear stress test

    Echocardiagram of my heart

    thyroid levels

    vitamin levels

    CBC (complete blood count)

    Amylase/ lipase levels 

    Please help me get to the root of these issues. I'm happy to answer any questions if additional information would be helpful.

     

    And these symptoms appeared after you have been trying to eat gluten-free? Or have these been present all along?

     

    Is there a chance you have been significantly exposed to some environmental toxin, perhaps in the work place?


  3. What you describe sounds like it could be a nutrient deficiency like low magnesium or one of the B vitamins. Celiac disease results in the mal absorbing of nutrients because of damage to the micro villi that line the small bowel. There is also something called restless body syndrome that is rather a mystery (similar to restless leg syndrome). My wife takes ropinirole for restless leg. It helps.


  4. Hello, Joy. I know it must be frustrating to have so going wrong with you and never seeming to climb out of the hole.

    I work in a healthcare setting and I can tell you many medical professionals suspect you may never really get rid of MRSA once you have it. You an beat it back so that it goes into hiding ("colonizes") but it's hanging around waiting for an opportune time to make a comeback.

    Keep your immune system strong through healthy eating and regular exercise. Sounds like you're immune system may be on edge as well with the high ANA and sometimes short-term immuno-suppressant therapy can help with that.


  5. It costs less than $250.:) it's a test where I prick my finger and fill 5 little circles with blood, and send it in to a lab that will test for the 96 allergens. I believe I will be starting an elimination diet after the test, if nothing shows up.

    Okay then, its the ELISA test. When you get the results, don't take it as absolute gospel. There are a number of problems with ELISA testing that can produce inaccurate, misleading results. You should do some research on this issue on the internet. What is really telltale in this regard is if you were to have your blood sample sent to several different labs. What you find is that the results from each lab can vary considerably. The other big issue withe ElISA testing is that the lab results often don't correlate well with what you actually experience in real life symptomatically. For instance, the ELISA test results may indicate you have a strong allergy to peanuts. But when you eat peanuts you suffer not ill effects. Or it may indicate that your are not allergic to soy but you know that every time you use soy you get a gut ache, diarrhea or nasal congestion. So with ELISA testing there can be and usually are some false positives and some false negatives.

    Having said all that, there is value in ELISA testing. It's a place to start. It gives you things to look for and to challenge or test in your actual day to day eating habits. ELISA testing is more valuable if you can afford to have blood samples drawn and sent more than one lab so you have results from more than one source to compare and contrast.


  6. Basically, Celiac Disease is an "auto immune" condition, meaning the body attacks its own tissues. In this case, we know that gluten triggers the body's immune system to attack the lining of the small bowel. The lining of the small bowel, when looked at under a microscope, is normally a highly textured surface with lots of little finger-like projections sticking up into the open area of the bowel similar to how stalactites and stalagmites line the walls of an underground cave. This creates a lot of surface area for the absorption of nutrients from the digested food as it passes from the stomach on its way to the large intestine. The immune system's attacks when gluten is ingested by a person with Celiac Disease destroy this texture over time and wear down the finger-like projections, thus greatly reducing the surface area where nutrients are absorbed. Instead, they pass on to the large intestine and are eliminated from the body in stool.

    Theoretically, once you eliminate gluten from the diet the lining (i.e, "mucosa") of the small bowel heals and symptoms disappear. In real life this doesn't always happen as neatly and completely as we would like. There can be and often are several reasons for this:

    1. Age. Celiac disease research has shown that going gluten free brings healing much more reliably in young people. After about age 35 the rebound of the SB mucosa doesn't happen as well. Age also has an adverse effect on healing in many or most diseases so this is not surprising.

    2. Permanent damage to other physiological systems because of the length of time it takes to diagnose Celiac disease. It takes on the average 10+ years to diagnose celiac disease. Thus, nutrient deficiencies and other spinoffs of celiac disease damage organs and nerves over time and this may not be entirely reversible. The best example of this is bone density loss.

    3. The great challenge of eliminating gluten from the diet. Most of us, despite all our efforts, still get "glutened" now and then. It is said that it only takes an amount of gluten the size of a quarter of a grain of rice to precipitate an auto immune Celiac attack in some people. These attacks can last for days or weeks. Gluten is not only in foods but in personal hygiene products and medicines, things that go into our mouths that you would never suspect as containing wheat products.

    4. And then there is something called "refractory sprue" or Celiac disease that does not go into remission when gluten is eliminated. It does not respond to the usual anecdote of going gluten free. A certain percentage of Celiacs have this form. Its a mystery and doctors don't know why.

    Having said all that, it's easy to get discouraged and just give up on going gluten free. But its really the only choice you have if you're a Celiac. Even if it only brings partial improvement we all have an obligation to do what we can do. If we will do that perhaps we can head off some of the problems that would accrue if we just ignore it. And, there is a lot of research being done on cures for celiac disease these days. Sooner or later someone will come up with something that's pretty effective I think.

    Hope this helps.


  7. As far as supplements go, do you have a Costco store near you? They carry a D3 supplement (D3 is the most easily assimilated form) and a Super B-Complex by "Nature Made" and a sub-lingual B12 by "Nature's Bounty" that are all gluten free and reasonabley priced. It clearly states on the bottles that they are gluten free. Most if not all of Costco's Signature line and Nature Made vitamins and suplements are gluten free and state so on the bottle.

    Oranges are the best natural source of folate, I believe.


  8. My guess would be there is a reasonably good chance you might be able to go off your antidepressants but not so good a chance with regard to the thyroid medication as with thyroid disease I think there is actual destruction of the orgain itself. I would not try either without medical supervision. Keep in mind that you may be in the honeymoon phase of celiac recovery. Many people have a symptomatic rebound after the first few weeks or months, even though they remain gluten free. Celiac disease is turning out to be more complex than we thought at one time and complete recovery is much less common when the diagnosis is made after people have reached their mid 30s.


  9. Hi Stacy!

    Most dairy-related respiratory issues are caused by casein but not all. There are other proteins and lipo-proteins that can be the culprit in individual cases. Unfortunately, most allergy testing doesn't differentiate the various milk proteins. To pin it down more specifically, you would have to get some tests done that are more targeted to various milk proteins. I think thosee tests are available but howe expensive they are and whether or not your insurance will cover them is another matter.


  10. I'm sure someone may have posted something like this before, but I figured I would throw this out there. Has anyone had any back problems that came up after being diagnosed? Currently, my doctor is looking into one degenerating disc and two wedged vertebrae. DW is thinking it might be related to mal-absorption from the damage that we all went through.

    I have kyphosis and a little scoliosis. Lots of wedged vertebrae and DDD. Presumably from celiac-related malabsorption as I have osteopenia. I'm almost 60 mow and beginning to have more and more back pain. I develop lower back pain while sleeping most nights and I'm prone to thorasic strains and pinched nerves because of the curvature problems.


  11. i have been gluten-free for almost 9 years....having bowel issues for a while now. can anyone out there tell me (sorry to be graphic) why one bm can be good and the next one (may only be 10 min. after the first) be completely different and disgusting?!! dr. has no idea. going for a colonoscopy and endoscopy in november. but this has been bothering me for quite some time - i just don't get it!!!

    What's the status of your gallbladder?


  12. The older you were when you were diagnosed, the greater chance you will have ongoing inflammation and villi blunting, after years of undiagnosed celiac damage. I'm taking L-glutamine to heal my gut inflammation, because I was diagnosed at age 56 and then had 8 gastrointestinal infections in the past 4 years. If you still have symptoms while eating a gluten free diet, consider other food allergens, which an ELISA blood test can diagnose, or intestinal infections from bacteria, parasites or candida, which a microbial stool test can diagnose.

    Yeah, I've had the ELISA testing done and it turned up allergies to about 30 different foods and to all the staples. I don't even know where to start. You have to eat something. Besides, I have some serious doubts about ELISA testing in general. It has been demonstrated that you can send the same blood sample to different labs and come up with very different results. And there often is not a good correlation between what gives a reaction in a test tube and what produces symptoms in real life.

    From a GI perspective, I am asymptomatic with the possible exception of GERD which is easily controlled by Protonix. No diahrreah, no discomfort, no constipation. Normal amounts of gas. I only had the repeat edoscopy done because I took myself off of the Protonix and developed esophogial pain/erosian. While he was in there the doc did the repeat biopsy and it turned up the ongoing small bowel inflamation/villi blunting. Besides, I wouldn't think non-gluten allergies are the kind of thing that could produce villi blunting. That's pretty unqiue to Celiac disease I think.


  13. I was dx about seven years ago and have been very careful to eaten gluten free. Despite this, however, a repeat endoscopy and biopsy done a year ago this spring showed ongoing small bowel inflamation and villi blunting. I was very discouraged. GI doc insisted I must be cheating on my gluten but I knew I had not. I asked him to order an antibody test, which he did, and it was negative. I am 59 years old. Now I'm trying to decide where to go with this.


  14. I don't have any research on it but I do know I react to both. And with soy it is both an allergy and an intolerance. While being intolerant to one doesn't automatically make you intolerant to the other I think there are quite a few on the board who have intolerances to both and to other stuff like nightshades.

    I don't know about the incidence of soy intolerance in relation to gluten intolerance in general but I can tell you most of the people I have met who have the specific form of gluten intolerance we know as celiac disease are also soy intolerant. And many of them are also dairy intolerant. If you attend celiac support groups this becomes evident.