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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    Wheat flour is fortified with vitamins in the U.S. as a part of USDA policy. Gluten free facsimile products are not fortified. There is no government mandate for such. When you remove wheat flour by going gluten free, you may be removing a significant source of vitamins.
  2. trents
    Multivitamin products are seldom potent to offset the vitamin and mineral deficiencies that typically result from long term undiagnosed celiac disease. We commonly recommend sublingual B12, a B-complex 5-10k IU of D3, 400 mg daily of magnesium glycinate, and zinc picolinate. The forms of certain vitamins like magnesium and zinc are important since it has...
  3. trents
    Are you addressing possible/probable vitamin and mineral deficiencies through some serious supplementation?
  4. trents
    That's the spirit Beagirl!
  5. trents
    Welcome to the forum, @DanteZaffar! Are you still eating oats (even gluten free oats) and dairy? There are other foods besides those that contain gluten that can cause celiac-like reactions. We call this "cross reactivity" (not to be confused with cross contamination). Their proteins are similar enough in structure to gluten to trigger the same kind...
  6. trents
    Welcome to the forum, @HeloIP! There are some other diseases, some medications (NSAIDs, olmesartan) and even some other food protein intolerances (the dairy protein casein) that can cause flattened villi in the duodenum but the most likely cause is celiac disease. Your GI doc may want to run some blood work to check for antibodies that are specific...
  7. trents
    GliadinX is such a product and many/some report it really helps. In the interest of disclosure, the company that produces it is one of our sponsors.
  8. trents
    Welcome to the forum, @Kenz! Eating out is the number one threat to anyone with celiac disease. The best advice I can give is "don't"! Especially if you are supersensitive. The biggest problem isn't avoiding gluten in what you order but in how it is prepared and handled back in the kitchen where cross contamination can and does happen at multiple stages...
  9. trents
    Thanks for the clarification on the scope. This is what confused me, "gastro doc said from the biopsy there was mild atrophied villi but I know that could be from where the sample was taken and they could be gone not far away." I interpreted that to mean when the scope was done they didn't do a thorough job of checking the area that would be affected by celiac...
  10. trents
    You might be having trouble digesting meat because of the damage to your villi. But what about gallbladder problems? Were those burgers, even the turkey ones, greasy? The odd thing is the "peeing like a racehorse" after consumption. You say you have follow up GI appointment coming up. Please be aware if the GI doc wants to do an upper GI to specifically...
  11. trents
    Concerning dosage, I found this: https://patient-info.co.uk/sodium-feredetate-190-mg-5ml-oral-solution-88092/summary-of-medicine-characteristics Age 6 – 24 months: 12.5 mg Age 2 – 5 years: 20–30 mg Age 6 – 11 years: 30 – 60 mg But these dosages are in mg, not ml.
  12. trents
    It is "chelated" to improve absorption but not buffered from what I can tell. What she is taking is an appropriate pediatric iron supplement product. By the way, it is normal for iron supplementation to turn poo black. That is not a worry per se. But iron supplementation can cause an upset tummy. Iron can irritate the mucosal lining of the tummy...
  13. trents
    What iron product is she prescribed? Is it buffered? Has she had her B12 levels checked? B12 is necessary for the assimilation of iron.
  14. trents
    Found this: https://pubmed.ncbi.nlm.nih.gov/26830864/ Shows an association between rosacea and celiac disease as well as other autoimmune disorders.
  15. trents
    Welcome to the forum, @Nita hearn! It's interesting that you should ask this question. I just has an appointment with my dermatologist last week because I have developed a red rash on my cheeks and red bumps/pimples in the bridge of my nose. My wife was concerned that I might have developed rosacea, which she developed years ago. She's not a celiac but...
  16. trents
    Some might. Some might not. Why don't you try it? Taste is a very personal and individual thing. I don't know that anyone can speak for you.
  17. trents
    Welcome to the forum, @Thoas! Just curious. Why do you ask? Is there some reason you are hesitant to try it besides taste?
  18. trents
    Malabsorption of vitamins and minerals from celiac disease tends to be global. So, if you are low in one or two things that have been tested, you are likely low in other vitamins and minerals as well. Routinely, we the admins on this forum recommend to those celiacs who were undiagnosed for years to supplement with sublingual B12, a high-potency B-complex...
  19. trents
    Welcome to the forum, @Dorothy O.! May we assume you have now been officially diagnosed with celiac disease? You seem to imply this and if so, when did these blood pressure and cough symptoms start to appear?
  20. trents
    Paulo, Las reglas del foro requieren que todas las publicaciones se realicen en inglés.
  21. trents
    Most doctors don't even order anything besides the tTG-IGA and maybe total IGA when doing blood testing for celiac disease. The EMA is the very first celiac blood antibody test that was developed and has largely been replaced by the tTG-IGA which is less expensive to run in the lab. My understanding is they both pretty much check for the same thing. The IGG...
  22. trents
    @lizzie42, So, I'm confused with what you are uncertain about. Do you really have any doubt that your 5 year-old son has celiac disease? Is it because he isn't exhibiting anemia and the rash as did your daughter? The genes are certainly there and the antibody testing certainly indicates celiac. And given the fact that he was on a reduced gluten diet...
  23. trents
    @lizzie42, Are the results you posted above for your daughter or for your son? If these are for your 5 year-old son, they are strongly positive and definitely suggest celiac disease. The ttg-iga is the centerpiece of celiac disease antibody testing and at 59 it is a strong positive. If you are wondering why some of the other tests are negative, you need...
  24. trents
    If it was me, within 2-3 hours I would be throwing up violently with excruciating abdominal cramps for 2-3 hours. When this phase was done I would go into the diarrhea phase for several hours. But every celiac is different in how they respond to getting "glutened".
  25. trents
    NCGS is 10x more common than celiac disease. This should help you get off to a good start:
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