Arduaine

Hi, 

i have been struggling to get over a gluten cc issue for the last few weeks (been eating whole foods no dairy/ oats etc)  I went for a blood test this week as the numbness and tingling can’t back and it showed a slightly under active thyroid (6.41 MI/UL) with low tS4 pmol (11.6) 

Could this be prolonging stomach issues? (Mainly d rather than c ) 

im not officially diagnosed celiac but my reactions are extreme. I feel like I must be getting some gluten in my system from somewhere as I was feeling better but a lot worse this last week. Could this be the thyroid contributing? The only other factor is maybe I reintroduced oats too soon? Does this tend to have as a severe reaction? 

My home at the moment is not gluten-free and I live with someone who likes to leave flour everywhere so it could just be that! 

Its been six weeks since the cc so feeling a bit desperate! 

Hi guys l, does anyone recommend a particular brand for l-glutamine? I’ve heard it helps when you have been glutened (like now ☹️/ argh!  ) but can’t seem to find a product (in the uk) which is gluten-free. 

Many thanks 

Fi 

xx

I am just wondering as I am experiencing neuropathy for the first time since going gluten free ... normally if I accidentally get glutened it will be my stomach that reacts first. 

Do people find your response and symptoms depend on what you eat? 

I currently have a numb hand/ pins and needles + brain Fog .. which is how my symptoms started before I was diagnosed but stopped since going strictly gluten free. 

Thanks is advance ! 

Xx

Hi just a quick update - I heard back from General Mills from their European branch ... they said I shouldn’t worry as the European rules are much stricter than in America and offered me vouchers.... they didn’t comment on the fact that this seems to imply they simply are doing the bare minimum required by their American consumers or the fact that I still managed to eat this product as a European and I’ve seen the American brand on sale in the uk. 

I have now tested the packet I bought with a Nima sensor - first test came up positive for gluten and I retested the same packet another two times and these tests were negative. For me thats enough to not trust General Mills products. A search on twitter showed a number of people with the same problem complaining around the same time as well. 

Its now ten days later and I’m still feeling the after effects so I’m pretty pissed off! I have complained to the FDA and I really hope they take action on this soon. 

Yes to all the above- normally I can eat gluten-free oats as long as I’m not suffering from a gluten reaction already. 

I’m actually based in the uk and a friend brought me them from America... I hadn’t seen them on sale here so perhaps they Didn’t meet European good safety standards. I’ve tweeted General Mills and they have asked for more info so I’ll let you know what they say but I imagine it’s due to the mechanical sorting probs mentioned by what Ennis said above (I doubt they will admit that though) 

 Very frustrating as you want to trust labelling. Have gone most of a year with no reactions so it’s so disheartening to be back at square one.... I guess l have to make all the beginners mistakes first. Anyway thanks for the support guys ... I find it dufficult to keep reading up on gluten-free news because I don’t want it to take over my life but I wish I had read about General Mills Before!! 

Fi

x 

Hi all just wanted to put it out there that I had a reaction from a box of “gluten free” honey nut Cheerios - the expiry date on the box is nov 2019. 

Having googled I can see that there have been questions raised about this product before. Anyway AVOID!!!!!! 

Fi 

x

Cool thanks, I will only go for the dry ones in the future. I did find a couple of posts on a different website from someone who had the same issue. 

Hi all,

I have some questions about the logic behind the biopsy... if it can take months or years to heal from celiac, surely damage would still show up even if you hadn't recently completed a gluten challenge and had only recently gone gluten free?

Is the definition of celiac damage to the villi + evidence of antibodies? And anything else is ibd or Ibs? 

. I have been gluten free for about 9 months and have seen dramatic improvement in my neurological symptoms and gi stuff but had a series of cross contamination accidents in the space of two weeks and still suffering a month later.

Would it be worth undertaking a endoscopy right now while I'm feeling crappy?

 Im currently weighing up the merits of undergoing the scheduled challenge in Feb which they recommend a month of eating gluten before. 

I just don't want to do unnecessary damage and don't feel convinced by the logic of the biopsy when it only seems to rule things in rather than out? If that makes sense. 

I did a previous gluten challenge for two weeks with a negative blood test  results and another one two weeks ago just in case which was also negative. 

I'm not sure if I am celiac or NCgs but I'm pretty convinced gluten is the enemy as my neurological symptoms have completely resolved giving up gluten but are back mildly after the challenge and currently with the cc. 

Any info appreciated! 

Ah ok, the bloating was fairly extreme and immediate.. which is quite unusual for me as normally there is a 24hr delay. Maybe I just overloaded my system. 

Thanks for all the replies everyone - its very useful to have the support, particularly as my gp today said 'a tiny but if gluten three times won't cause an upst stomach for weeks' 

I just wanted to print off the entire forum for him to read!! 

Ta! 

Gosh darn it! 

Still suffering from a string of cc incidents 4 weeks later...I'm still fairly new at this so am falling into all the obvious traps it seems! 

Thanks for the tips 

Hi guys, I just wondering if anyone has found that lentils can be an easy source of cross contamination? 

The particular brand was merchant organic pre-cooked bought at Waitrose.  I am 99% certain they were the issue but I hadn't heard of lentils being a risk in the same way as oats. 

I do share a kitchen so it's a possabity some snuck in but I make sure to pre-rinse everything. 

Thanks for your help 

Hi guys,

Hope your all good just looking for a bit of support and information..How long do you take to recover from a glutening through cc? 

been gluten free free for about 9 months awaiting a biopsy to confirm celiac. Have been recovering well so far but accidentally got glutened through cross contamination about 5 days ago. Brain fog and neurological symptoms have subsided but still having gi issues - mainly D and feeling pretty weak.

Just looking for some support that this will heal as when this happens I always have anxiety that I won't recover. 

I have been been eating whole foods, no dairy etc 

just want to know there is light at the end of the tunnel. 

Fi 

xxx