Hello! I'm new to posting here but have observed for a little while. I'll give background first and bring us to my current concern.
My daughter, age 3 at the time, had been complaining for a couple of months of stomach aches. Would sometimes alter her activity levels or appetite, but otherwise wouldn't change too much of her lifestyle. She also had an extremely bloated belly, but at the time I didn't consider it a symptom as I assumed it was just toddler tummy. After two visits to her pediatrician, they ran the blood test for celiac. It came back glaringly positive. We followed up with an endoscopy; positive also.
So since June she's been gluten free. She also has two other AI diseases - lichen sclerosis and alopecia arreata, as well as chronic ear infections so is on her 2nd round of tubes. Besides all of that, she's been a relatively healthy, happy kid. We did have her blood levels run once more a few months after, since she was dealing with chronic headaches that started post diagnosis but are now gone. The only other weirdness we've seen is something she seems to have staring episodes, and once school couldn't get her to really wake up after a nap. Not sure if she's just a deep sleeper or if there's something neuro going on.
She's four now, and we've been gluten-free since June 1. She is in school and although they've glutened her once, we have a great system down and I don't think she's ingesting any gluten there, although she isn't the greatest at keeping her hands out of her mouth. We have a 99% gluten-free household, and anything with gluten isn't around her. But for the past 2 months she's been complaining of stomach aches again. She says they feel like they did before her diagnosis. I'm just wondering what I should be looking into, what about or if I should worry. I do have a call into her GI dr. We see a GI at the University of MN who specializes in Celiac, but I do wonder if maybe we should try to get into Mayo.
Daughter having stomach aches again, 7 months out from diagnosis
in Parents, Friends and Loved Ones of Celiacs
Posted
Hello! I'm new to posting here but have observed for a little while. I'll give background first and bring us to my current concern.
My daughter, age 3 at the time, had been complaining for a couple of months of stomach aches. Would sometimes alter her activity levels or appetite, but otherwise wouldn't change too much of her lifestyle. She also had an extremely bloated belly, but at the time I didn't consider it a symptom as I assumed it was just toddler tummy. After two visits to her pediatrician, they ran the blood test for celiac. It came back glaringly positive. We followed up with an endoscopy; positive also.
So since June she's been gluten free. She also has two other AI diseases - lichen sclerosis and alopecia arreata, as well as chronic ear infections so is on her 2nd round of tubes. Besides all of that, she's been a relatively healthy, happy kid. We did have her blood levels run once more a few months after, since she was dealing with chronic headaches that started post diagnosis but are now gone. The only other weirdness we've seen is something she seems to have staring episodes, and once school couldn't get her to really wake up after a nap. Not sure if she's just a deep sleeper or if there's something neuro going on.
She's four now, and we've been gluten-free since June 1. She is in school and although they've glutened her once, we have a great system down and I don't think she's ingesting any gluten there, although she isn't the greatest at keeping her hands out of her mouth. We have a 99% gluten-free household, and anything with gluten isn't around her. But for the past 2 months she's been complaining of stomach aches again. She says they feel like they did before her diagnosis. I'm just wondering what I should be looking into, what about or if I should worry. I do have a call into her GI dr. We see a GI at the University of MN who specializes in Celiac, but I do wonder if maybe we should try to get into Mayo.
I just want my little girl well. Any thoughts?