Kristie

I have celiac and a milk allergy. I can tolerate some milk products but for the most part I stick with soy. My dh is allergic to peanuts and he can't tolerate soy milk at all. Although soy in products does not seem to bother him.

I breastfeed our 5 month old but my supply seems to be dropping lately so I have been supplementing with formula. Only about 2 a day. She gets 3-4 oz total a day. Well, we tried the milk based kind and she would scream so much because it hurt her tummy so we went to soy. Now about a month later she tolerates the formula great tummy wise but I have noticed that she gets trimmers after eating the soy milk. I think they are getting worse. Last night it really started to scare me and I put two and two together and realized that it was the formula causeing her to do that. THen my dh says that is what happens to him when he drinks soy. So this morning I call the doctor and they said to go back to the milk based and see what happens. It is a different brand so it may make a difference but what if she can't have either one? What else is there?

Your post was written a few weeks ago but if you would like help on increasing your supply I am a lactation consultant and could give you some ideas. I know that maintaining a milk supply can be difficult for some people and some situations. There is research that shows the HUGE impact breastfeeding has on preventing celiac so please don't give up. Let me know if I can help you at all.

my oldest son does not want to be tested for celiac. he says he would be devastated if he had it. he will be 23 in april and is living at home with us and has a dead end job that does not even give him full time hours. he lives in depression more often than not. he has the runs about 1/2 the time. he went over a year being nauseated and throwing up and having the runs. i have tried to tell him that if he has celiac disease, it could be the answer to his health problems. he also has dermatitis in patches all over his body. he tells me he can't take much more, yet he finds a problem with every solution we try to give him. he doesn't want to take antidepressants and he doesn't want to go to a councelor.

christine

My sister was devestated when her tests came back that she had celiac. You would think that she might be relieved. But after trying the diet and the changes she felt she was relieved. There is a lot of research on celiac and mental disorders out there on the internet. Unfortunately the bottom line is you can't make him get tested and if he does you can't make him stick to the diet. This must be so frustrating for you. My sympathies are with you.

Good Luck.

My sister was diagnosed with Celiac a couple of years ago. She had been sick for over fifteen years (started having seizures in highschool) and was constantly misdiagnosed. She is currently on disability due to the effects of the disease at age 30. Last year our mother and paternal grandmother were diagnosed as gluten intollerant (both sides of the family).

My oldest son has had learning problems since he started school and the doctor wanted him to be tested. His tests came back negative but of course, as I was waiting for the results I was researching like crazy.

So this is the part I need help with. As I was looking at the symptoms of celiac I realized that my youngest child, age five seems to fit into a lot of these catagories. This is the child that should be at the least risk for the disease because she was breastfed for three and a half years.

1. pale stools (always thought that was strange)

2. gassy (puts her brothers to shame)

3. sleepy (recently started taking lots of naps; been blaming it on a growth spurt)

4. weight (just about everything I read says underweight, I don't see that, but this child eats constantly--I don't think it's the normal she's a big eater; it's becoming a real worry, but she doesn't gain weight--she's thin in a family that's overweight)

5. She has become really cranky and winy (blaming that on the fact that I started traveling)

None of these really bothered me (with the exception of overeating) until I read the celiac symptoms. With the family history and knowing what my sister has had to go through I believe that I should get her tested. But I can't imagine her allowing them to take blood. I'm not sure that I want to put her through that. My twelve year old did fine but she's only five. Is there another test we can do. I've thought about changing the diet and see if there is any change but I'm not sure how long we need to wait or what to look for. It also seems to be extremely expensive. Any advice? What tests did you use to have your child diagnosed?