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IrishTwins2009

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  1. Hello Curious what your thoughts are. We are currently awaiting to get into children's hospital with my daughter. Her blood work showed low iga, not deficient but below normal so her Ttg iga wasn't positive. My hubby and I believe she gets it from him so he is also being tested, however he ate gluten free for a couple of months, not super long...
  2. Thank you for taking the time to respond. I just hope this all goes fast because I want my daughter to feel better. I will definitely ask for a full panel. ???
  3. We got my daughters blood back. (I know it wasn't a full panel) I need help. My gut screams celiac. We got a referral to a pediatric GI. Could her blood work still be indicative of celiac. Thanks Tissue Transglutaminase Ab IGA <3 <16 considered normal (no actual number given just less than 3) Immunoglobulins IGA 0....
  4. Thank you so much for your prayers. I've been in tears a lot seeing my daughter struggle. ?
  5. Hello I'm wondering if any of your children had to do the gluten challenge, and if so how long did you do it and did you get positive results. I'm very worried about my daughter. She did the gluten challenge and got to 7 weeks plan, she has been a bucket of sick since starting, was to get to 12 but she caught a cold and it hit her so bad that...
  6. Thanks. Our Doctor is a dingbat and told us everyone is a little intolerant to gluten when we told him my hubby felt better after not eating, but returned to feeling awful after eating gluten again. Do you think that the Ttg IGA would rise at all if there wasn't a possibility of celiac? I am not sure how to ask my question. I will also take note...
  7. Hello I'm wondering if anyone knows if we should retest in the future. My husband has suffered most of his life with symptoms that after many tests were deemed in his head. He went off gluten and finally found some relief. He went on the gluten challenge. He did a couple different blood tests here are his numbers: Taken at 2 and a half weeks...
  8. Your description helps me understand it a bit better. Her intolerance to noise seemed to be getting worse slowly over the years, but when we took her off gluten, all her issues settled. Her ability to cope with noise has become extreme and worsened since starting the challenge. As a mother it's tough to see her suffer. Thank you so much for taking the...
  9. My 8yo daughter has been doing the gluten challenge for almost a month now. There is one thing I've noticed has been getting worse and to the point she has to leave her classroom to go for a walk to get away from the noise or needs to wear sound cancelling headphones. She says she can't concentrate with all the noise. Her brother also has autism and he stims...
  10. Thank you so much. I will look into all of that.
  11. Thank you so much. It can feel so disheartening when we were so sure and to be met with negative results but I don't believe it was a full panel and he didn't eat gluten long. It also appears our GP doesn't understand celiac. We don't know if it's even celiac, but taking gluten out was the only thing at has ever brought relief other than pain meds for my...
  12. Thank you. He is going to keep eating gluten for as long as he can and he will redo the blood test. It's just so frustrating seeing him ill and we thought we finally figured out the mystery.
  13. What do you think? My 8 year old has been "sick" most of her life however when we first took her to many doctors, we were told we were crazy and she was fine. My daughters symptoms include: -constipation, sometimes it's green without any foods that would cause it -bumpy skin -itchy skin without rash -gets super flushed ...
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