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Docsgirl

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  1. Sorry to say, but you are wrong about Rituxan not being able to cause remission for very long. The man in his 80’s was eating gluten and was still in remission after five years. For future reference, Rituxan is used for a variety of things. It isn’t just for one particular illness. Clearly, my use...
  2. For me, the DH and the Celiac are inseparable. The DH was how I found out I have Celiac. I had no other Celiac signs. At all. For now, all we have is immunosuppressing drugs to help with the inflammation. When you are on death’s doorstep, you will do whatever it takes to live. As for t...
  3. For the unpteeth time, I religously followed my gluten-free diet. My entire family was trained as well. At that time, my daughter was a server as she worked her way through college. Anytime a customer had a question about gluten-free choices on the menu, all servers would come get her to answer all...
  4. It is entirely possible. The only other, and first patient that used this drug was in his 80’s, so they never did an EGD after he went into remisssion, because you don’t do that to old people. It took 13 months for him to go into remisssion, and he was eating gluten as well. Five years later, he...
  5. Yes, I am able to eat gluten. Within about eight more months, all of my sypmtoms should be gone and I will be in remission! I have had ZERO side effects. The “worst” thing I had was an all day migraine three days after each infusion. THAT WAS IT! No nausea, no vomiting, no hair loss! Nothing! Th...
  6. What is your problem? You really don’t understand what I shared do you? It almost seems you fancy yourself the only “expert” there is! Having a masters degree in Biology makes me more than capable of understanding my illness and it enabled me to be able do my own research for clinical trials and c...
  7. Actually, the published case study is available all over the internet. Rituxan is an old, very safe medication. My body overreacts to so many medications, but I had no reactions to Rituxan at all! We planned for all possible reactions, and we were all so pleased that I had none! I immediately...
  8. Oh boy, yoy certainly are a skeptic aren’t you?! Do you seriously think that I got this far not knowing how to consume a gluten-free diet, including removing iodine, and by not having repeated immunoassays and GEDs? Stop acting like I am a child who doesn’t know anything about Celiac Disease! I ...
  9. Hello all. I, too suffer from celiac disease and DH. I do not respond to the gluten-free diet, and all medicinal treatments, save one, were unsuccessful. I am moving into the second phase of my treatment using Ritixan to kill my B cells to allow me to stop taking the Dapsone that is killing me. Literally...