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whitball

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  1. I'm just curious -- why wheat? Even without Celiac, it would never occur to me to plant wheat in a garden. And with a Celiac in the house... what is he going to do with it? I don't imagine you're going to let him grind flour in your kitchen. Is there another use for wheat that I'm not aware of?

    The rest of your garden sounds wonderful. :) We've got a bunch of starts going in containers, but hubby hasn't done the tilling yet. We had a really long winter so we had to start our garden indoors this year. Hopefully we'll move the starts to the garden next weekend.

    My husband should have been a farmer. He starts thinking about the garden in November. He loves to experiment and tries just about everything. I just about had a heart attack when he told me that he planted wheat. I needed to ask about cross contamination to make sure all was going to be okay.


  2. As long as you wash the produce before use they should be fine. One thing to be careful of though is breathing in dust from the wheat when he harvests it. You must have a really big garden!

    Our garden covers most of our back yard. He has planted several kinds of beans, tomatoes, potatoes, corn, cucumbers, zucchini, beets, carrots, garlic, onions, peppers, etc. and....the wheat. We'll be eating good stuff in the fall. My husband also cans most of the produce. He has a green thumb.


  3. I'm not one to freak out about stuff on a regular basis, but this issue does concern me. Because of the genetics of this virus and that this has not been seen before is scary. The virus will mutate. Hopefully not into a super virus. To be cautious is good and to have a few days supply of necessities on hand is wise also, in the event that people do panic and make a mad dash to the grocery store if this becomes a bigger problem.


  4. I was diagnosed in 2006. I have been worried about my children and have had two of my three children tested. Both did not not test positive, although I am certain that my daughter is a celiac. My oldest son was not tested, as he refused to do the testing. Two weeks ago, he described some of the same problems that I had at his age. Muscle pain in his back and legs, tingling in his fingers and toes, fatigue, etc. He has decided to go gluten free without an official diagnosis. It has been two weeks and he feels much better. I really am comfortable with his decision to not seek an official diagnosis. It's an expensive process (He has no insurance through his job) and he would really end up with the same information that we had from the beginning. He needed to be on a gluten free diet.


  5. Most of us on this forum have gone through the same feelings that you are experiencing right now. This is a normal reaction and the sadness and anger may be there for awhile until you start to feel better. No doubt, there are times when we stand out in a crowd at a restaurant or at a family meal. Try not to let this keep you from living your life. Your job now is to be your own advocate. Keep yourself safe. Question everything. Don't let other people's opinion or strange looks cause you to feel pressured to eat what they have prepared. They will get over it. For you it is a health and safety issue. Look out for you. Not them. Try not to rush out an buy everything that you can find that is gluten free. I did this and wasted alot of money. Keep it simple for the first several weeks. Fruits, veggies, meats, nuts, dairy (if you can tolerate these) are some things to stick to and will give your gut a chance to heal. Then start adding a new thing one at a time. Good luck and welcome to the forum.


  6. Just wanted to add another comment about German Shepards. My male has had ongoing problems with anal glands. His glands need to be emptied every two months. His vet is not sure of the reason why his glands are filling up so frequently. The fluid has been clear, so there has not been an infection so far. Pay attention to your shepard if he is licking his rectum alot. There could be a problem and it should be checked out by the vet. Their hip shape does not allow for them to sit in a way to empty the glands on their own.


  7. I'm a case worker and work with adults with developmental disabilities. I cover two counties and trust me I know where every bathroom is in each part of the counties that I cover! Being a celiac has it's challenges, especially when I attend conferences. Most do not have a gluten free menu, so I often have to bring my own food. My clients often struggle with understanding my food restrictions, as they often offer their own snacks or food when I visit their homes.


  8. I certainly understand your frustration. It took me almost 15 years to finally get a diagnosis. I have spent thousands and have been called a hyperchondriac (I can't spell either!), been told it's in my head, etc. I questioned everyone because I just didn't feel that what I was being told was the right diagnosis. It finally took the abdominal adhesions that I suffer from to get me set up with a doc for a consult to look to see if I had a bowel obstruction. I told him of my other symptoms and he ordered tests to see if I had Celiac disease. Finally found someone to listen. My advice is to not go through this any longer. You know what helps you feel healthy. Follow the diet and save yourself some hassle and don't continue to allow the poison into your body. Good luck to you.


  9. I bought two puppies in Nov.2007. A male named Luca and a female named Jasmine. Best breed I've ever had. Easy to train. They listen very well and respond to voice tone for discipline. They hate to get chewed out! Our pups are very sensitive and react strongly if they are in trouble. It's almost like their feelings get hurt. They love to play and really need to run every day. Both are great watch dogs, but are really just great big babies.

    Here are the things that you need to pay attention to: Know your breeder. When we bought our pups, we were told that they were wormed and had their first shots. The breeder purchased her own vaccines from the local Farm and Fleet store. When we got them home, both pups began to act very strangely. I took them to the vet and found that the pups had been wormed only once and their bodies were full of worms. Both were 8 pounds under weight. The vet was furious about this. both pups were extremely ill. I kept them, because I didn't want to return them to the breeder. The female pup was the runt and continues to be so. I do think that had she been healthy, she probably would not be so small. Luca is huge and healthy now. Make sure also that you can handle alot of shedding. Shepards shed alot!!!!!!! They need to be brushed daily. Good luck and have fun.


  10. I was diagnosed in 2004 with metabolic myopathy. I too had significant muscle problems for many many years. Mostly pain. I was lucky to have enough muscle control to be a college athlete and worked out for most of my life. In my mid thirties, I began having huge problems with climbing stairs, stamina, holding my arms above my head, etc. My diagnosis ranged from MS to "it's in your head", to Mcardles Disease, to Metabolic Myopathy, to Celiac Disease. I had a muscle biopsy in 2004, that showed samples of my thigh muscle tissue. The fibers that were supposed to be large muscle fibers, were instead small muscle fibers. Many of them were de-nervated. Pretty scary stuff. The pain continues, when I'm tired. But I do have more stamina since going gluten free.


  11. I was an awful pre-celiac! I was always in pain. My legs would hurt so bad, that I needed to stay home from work on many occasions. My friends were awful pre celiac too. They thought that I was making things up just to go home. They often ignored me when the pain was so bad that I would cry. I was diagnosed in 2006, and my friends actually educated themselves on the disease. I think that they realized that they were treating me badly. When we have a girls night out, we go to a place where I can eat. It has turned out pretty nice for me. I hope that things get better for you and that you can connect with people with the same interests. Shame on the people who were too shallow to stick with you through this. You deserve better.


  12. I had a similar experience two weeks ago. I ate a Clif bar, not realizing that there was malt in it. I just saw the wheat free on the package and went on my way. I have also found that rice and corn are a problem, but didn't think it was that big of a deal if I ate it occasionally. But that week I had Rice Chex almost every day. So, I was driving down and express way going to my next meeting and almost fainted. My heart rate felt like it was at 6,000. I was sweating, felt like vomiting, completely scared to death. I considered going to an urgent care, but changed my mind, but had several more episodes of near passing out. Took 45 minutes to get home. I saw my family doc, who did some blood work, and all was normal. I tested it yesterday with a small bit of cake, same thing happened today. Guess I'm done with rice and corn.


  13. Ditto with JNBunnie1, Silliest of Yaks. It's a good idea to give information to the main person involved with the person's care. Your experience is valid and your information is valuable. I run into this situation sometimes especially with clients with Down Syndrome who have ongoing D, allopecia (I know this is not spelled correctly, but you get the idea) and skin issues. I have tried to get a psychiatrist to test for Celiac, but just wouldn't listen. But, that said, we still need to try to get the word out. Good luck.


  14. You should really consider starting your own business. Sounds like you are already a super advocate and that is what is missing in alot of homes out there. The people that we work with deserve good service and the bottom line is they are the ones that pay our wages! Sometimes I can't believe some of the things that I hear and see being done to people. As far as contacting adult protective services, you did the right thing. The agency should not be able to release your name to anyone. Another option that I have used is to contact the licensing body of the home. It works and we have had home investigated.


  15. What a mess! I am glad that you are aware of the different options that you have. Sorry to get so worked up! I've seen alot of awful situations. I am a case manager and find that I have to constantly get on staff to give me information from dr. appointments, med reviews etc. I always preach about documentation and always read the communication logs. Makes staff real mad! I've had to show up to homes without calling first and have found staff sleeping, gone, even found a client locked out of their own home while a staff was napping. It's amazing what people can get away with and what clients have to go through to get the services that they deserve. good luck.


  16. I would recommend that you contact someone who can help this person. Immediately!!!! A case worker, Adult services worker perhaps? My first concern is that this person is being abused by support staff. If this person is receiving home help services, my guess is the person is elderly or a person with a disability. There are many questions to ask. Is this person his own guardian? If there is a guardian, then in most states the person is considered a vulnerable adult. A phone call to the adult protective services is warranted. If you are a home help staff, in most states you are a mandated reporter. you must report this situation to someone of authority. Not the boss. It gives them time to cover their tracks. For example, If the person is a diabetic and was not getting insulin injections by support staff, then his health and safety is in jeopardy. it would be considered a recipient rights violation. If his diet is prescribed and is ignored by staff, the person is in dangerous hands. If you have further questions, please feel free to ask.