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NicoleAJ

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NicoleAJ last won the day on June 28 2019

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  1. If you haven't been gluten-free for too long, then it's normal to miss and crave the foods you can't eat--the longer you're gluten/dairy free, the less you will crave the things that are so bad for your system. It's also perfectly normal to crave things that aren't the best idea when you're pregnant...
  2. For a while I thought I was having problems with sulfites because I was having reactions to a lot of wines, especially imported red wines. But I wasn't having reactions to any other sulfite-containing products. All of this wheat paste stuff is news to me, but it actually makes some sense. Several...
  3. I have an alium intolerance/allergy. Sometimes my symptoms are different--if I've been exposed to high quantities, I might actually feel constriction in my chest, extreme abdominal pain, dizziness, etc, but if I have an occasional small amount of alium, I generally won't have symptoms, or I'll just...
  4. my white blood cell count has been low for years (I'm 29), and to the best of my knowledge no one else in my family is affected. I've been gluten free for five years now, and my wbc is still low--not dangerously low or anything though. I've never had a doctor worry about it, and I haven't shown...
  5. I actually had a very easy time being gluten free both in State College, Pennsylvania, and to some extent in Miami, FL. Surprisingly, I now live on the Central Coast in California, and I find the knowledge of celiac and the access to products to be the worst I have ever experienced anywhere that...
  6. I concur with all of you--celiac pain can be absolutely unbearable; although, like some other posters, my pain is not high toward the ribcage but rather lower, in the bowels. I don't actually get so much gas, but I do get all of the other classic G.I. symptoms. One thing to add though, if you are...
  7. Cdford--did your neurological symptoms show up before your celiac diagnosis or after? All of my neurological symptoms showed up two years to the day after my celiac diagnosis (when I started the gluten free diet). Penguin and Tailz--thanks for the info on Epstein Barr--that's a relief. Also...
  8. Good news--the MRI of my brain came back normal. Thank goodness! We still don't have answers, but without lesions on the brain, I'm not really concerned about MS anymore. I'm going in for an MRI of the cervical spine and an EMG of the right leg next week. Lorka--I do stretches but mostly...
  9. I can't thank you all enough for all of the great information and words of support. I really appreciate this, as it's been a difficult time. I can speak to friends and family about this, but I have a lot of close friends that I work with that I haven't told about these issues because I don't want...
  10. On Tuesday I'm going in for an MRI and mid-September I'm going in for evoked potential tests because the neurologist seems to believe that there's a possibility that I have multiple sclerosis. From what I've learned thus far, this also seems to be an autoimmune disorder, and I was wondering if anyone...
  11. Wow, I'm shocked about Port. I'm going to have to check on this. My boyfriend and I have had several varieties on various occasions and I haven't had a problem yet. I guess I'll have to be more vigilant in calling first.
  12. Thanks for all of the responses--I hadn't found any definitive answers on the topic, so I assumed that this was a sort of gray area.
  13. I honestly don't know the answer to this question, and I don't mean to anger anyone with this question--I'm just genuinely curious about the legal definitions and ramifications of our disease. When potential employers ask you to check off boxes about your minority or disability status, what do you...
  14. I actually just called Arm and Hammer today about their detergents and got quite an equivocal answer--they cannot guarantee that their detergents are gluten free, so I switched to Purex Free and Clear because they were adamant that their detergent is completely gluten free. It may seem over the...
  15. Yes, I actually went to Qdoba and they said they had nothing acceptable for celiacs and refused to serve me--I wasn't pleased at the time because I was hungry, but I would have been less pleased had I been glutened.