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Blondie13

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  1. Hi there I have just discovered this site after it was reccommended by someone in an email, following a post on an IBS board here in the UK. I'll try and condense my situation into a few bullets, to make it quicker and easier to read: - Through my life I have always had a 'sensitive stomach' - whenever I was ill, 99% of the time it was stomach related - November 2004 - Hospitalised with severe gastroenteritis. On a drip and on morphine for couple of days. Hell on earth! - Following November experience had diarrhoea every day, always getting bloated, etc too. - April 2005 - Hospitalised again, again with severe gastroenteritis. Prescribed course of strong anti-biotics, again put on morphine and drip for couple of days. - Following second gastroenteritis symptoms got worse - still had diarrhoea all the time, got so bloated after eating I looked 6 months pregnant, stomach started getting really painful. Developed anxiety about bowel movements because of severe symptoms, and, after hiding it from family/boyfriend for few months realised something was wrong: - Late June 2005 - went to doctors. Seemed a bit disinterested, said it would 'probably go away on its own eventually'. Prescribed amitripylene, at night. Told to take Immodium 'when I got upset' - August 2005 - symptoms were so bad went back to GP, with my mum for added support (even though I was 23!), demanded to be referred to consultant. Luckily have private health insurance, so got an appointment fairly quick: - August 2005 - saw consultant. Had an endoscopy and a colonoscopy, and then the thing where you swallow a camera in a little pill. Was told had 'slightly' abnormal villi that meant I 'either had an immediate relative with celiac disease, or I would develop celiac disease in the future at some point'. Nothing else really wrong, except the pill camera showed my upper GI processed food very, very slowly, and my lower GI processed them very, very fast. Given no idea what this meant! Diganosed as 'Post Infection Disorder IBS'. Told to eat more fibre... - Symptoms got worse progressively. Lost my job from taking so much time off work and have not worked since. Now rarely leave house as got so bad - I am in severe pain every day (that leaves me sweating and crying), would have diarrhoea several times a day if I didn't take Immodium every day to slow it down a bit. Couple of months ago I started following Heather Van Vorous's 'Eating for IBS Diet', which has helped a bit (bloating has gone down, and gurgling, etc, but still in so much pain). Saw doctor again last week, who increased my Amitripylene up to 50mg a night, gave me Immodium on prescription at 4 a day, and prescribed Codeine for when the pain is at its worst. Also gave me an anti-spasmodic to take before I eat (Mebeverine) - Got my GP to refer me to a respected hypnotherapist (Peter Whorwell at Manchester University) for gut-directed / IBS hypnotherapy. Great success rate but appointment not til May 10th - Ordered myself the YorkTest food intolerance testing kit (again lucky enough to get it covered by insurance). My results: - Foods to AVOID and the strength of the reaction (from +1 to +4) Cows Milk +2 Wheat +1 Gluten (Gliadin) +1 Buckwheat +1 Corn (maize) +1 Millet +1 Lamb +1 Yeast +1 - Foods to ROTATE/eat with caution Barley Egg White Pork Beef Lentils Hazelnut Garlic Ginger SO, that's my situation as of today. I have only left the house 3 times in 4 months, and for a once highly confident and sociable person, working in Marketing and travelling the world, that is SO depressing. I really need some advice from people going through something similar. Does my intolerance to Wheat/Gluten mean I am further along the path to 'developing celiac disease'? What the hell can I eat - between wheat, gluten, corn and yeast that rules out about 80 %of my diet?! I already had eliminated all dairy other than the occasional bit of cheese, which I have now replaced today with dairy-free cheese. I know it's pathetic but I'm really scared, and don't really understand my position. Do I have IBS or celiac disease? Or both? Is it possible to develop celiac disease slowly, after a period of time? Or after gastroenteritis? Are there any supplements I should be taking? I heard acidophollus is good? I know it's a lot of information, and lots of questions, but I'm so confused!! Any information on ANYTHING at all will be so gratefully received? I have second cousin with celiac disease, but no-one closer that I know of. Should I ask for a blood test to look at celiac disease? Help! Right, I'll stop now...
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