Lizzie89

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  1. Thanks, BergieF. I think the fact that her symptoms appear primarily behavioral has been really confusing for me as a non-celiac parent trying to navigate this. She becomes so beligerant about things that are so meaningless. I thought for years that she had a mental illness, and there still might be something. I have to nail down the gluten stuff in order to know what's what, but the gluten is such a mine field. Everyone's thoughts, advice and experience here is incredibly helpful!
  2. So, you got angry and emotional when using Eucerin? I just want to make sure thst's what you are saying. I am still trying to find my daughter's new baseline for behavior, and I always wonder what is gluten and what might be something else!
  3. Thanks to everyone who responded! This is all good advice. On the camp front, it's a day camp and I pack her lunch. Nonetheless, her twin brother, who goes to all the same camps, says that there are crumbs all over the table during lunch, so that's a likely source. She also does use lotion a lot, and probably isn't washing her hands afterward. I just hadn't realized how sensitive people can be to this stuff. Also, since her symptoms are mostly emotional/behavioral, the whole thing is harder to pin down for me. Thanks again!
  4. Hello. My 8 year old daughter has gluten intolerance that manifests in terrible behavioral problems. We learned of this in March, after years of searching for the reasons she acted the ways she did. Since then, we have done everything we can to eliminate gluten and dairy (another intolerance diagnosed), along with a number of food additives that have proven problematic. The change has been dramatic. Here is the thing: over the past three weeks, her behavior has tanked. She is angry all the time, and has hit and kicked me on several occasions. She is in camp, but I send her with snacks and lunches and she now knows to avoid crumbs. The only thing I can think if is that she likes to use Eucerin lotion on her skin. Eucerin can contain gluten, it turns out. I have done some web surfing, and I know gluten doesn't get absorbed through the skin, but she could be ingesting it because it's on her hands. Does anyone have thoughts on this? Help!
  5. Cyclinglady, thank you so much for your thoughts! Yes, my daughter is on board with the diet. She says she feels better physically and hates it when she gets mad. That means I don't have to worry so much about her cheating. There are screw ups, however, like when she didn't realize that the dip for sone carrots at an event she went to could cause her problems. Also, some products that we had been eating and thought were ok contain citric acid, which she reacts to, but she doesn't realize it. I am very proud of her self restraibt, but I also think she must have felt awful for a long time. She has not been tested for celiac, and we have only done the blood tests that found the intolerances. She has been to many psychiatrists, but they all missed the gluten connection. She is now on Zoloft, but one of them wanted to out her on abilify. I refused, thank goodness! Do you know of any psychiatrists or neurologists who understand this? At this point, I want to nail down this gluten/food sensitivity thing and see where our new baseline is. Thank you again so very much for your your insights. I have had very bad luck with mainstream doctors and psychiatrists and find myself turning more and more to groups like this for ideas.
  6. My 7 year old was found to be gluten, casein and egg intolerant in March. Since then, I have done everything I can to eliminate those things from her diet, and have been pretty successful. She had had terrible issues with rage and tantrums and general irritability since before she was 2, but after 3 weeks on the diet I saw a calmer, happier girl. Unfortunately, however, as the weeks have passed, She has hand numerous incidents wgere the rage returns. I have determined that she also reacts to citric acid additives, Natural Flavor and Caramel color. That rules out 90 percent of prepackaged food, even at the health food store, so I make more and more from scratch. She genuinely seems better, but we still have some rough days - even when I know everything she has eaten has been OK. Does anyone have experience with this? I have seen some on this forum say it takes a long time to fully get over the psychiatric symptoms of gluten, but there hasn't been a lot if detail. Can anyone provide any insights?
  7. My daughter, age 7 3/4, has very similar issues. Starting at abou age 2, she started sobbibg and screaming uncontrollable. Doctors thought it was everything from the autism spectrum to ADHD to bipolar disorder. It took years to figure out what was really going on. Finally, this year she was tested for food sensitivities and the results came back showing intolerance to gluten, egg and dairy (casein). Withing three weeks of going on the diet, she was dramatically better, but we kept having relapses, over the past couple of months, I have learned to weed out carmel color, citric acid additive and Natural Flavor. Depending on how much she has eaten, any of those things can lead to rage to the point of running away and not allowing herself to be approached fir close to an hour. The recovery can be anything from 8 to 48 hours. I basically cook almost everything she eats from scratch, and will not allow her to eat sny packaged product with anything in it that I don't recognize. It is a pain, but the alternative is really unliveable. I want to know how long it takes for kids like tiis to fully settle down. She still has a lot of anxiety and emotional ups and fowns, even if the extreme irritability is largely under control.