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About heathen

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    hanging with the hubby, yardwork, gluten-free pancakes
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  1. There is a brand new review of Celiac Disease in the Annals of Internal Medicine that recommends testing in 1st degree relatives of people with a new diagnosis of Celiac Disease. Your doctor should have access to this medical journal, or at least know someone who does. You might want to pass this info along. Biopsy is still the gold standard for diagnosis, but the antibody test (if they draw the right ones) is gaining more ground.

  2. I don't think I've ever heard of a stool test for H.pylori... especially since it lives in the stomach. Hmm. Well, with the help of google, there is a stool antigen test--basically seeing if your body is fighting the infection. The blood test works on the same principal, whether or not you have Ab to the bacteria. I would think that the blood test is easier, but it might be more expensive than the stool study. I would ask your GP why he or she favors one over the other.

  3. First, "allergy" is a bit of a misnomer, but alot of people use it because the preferred term, "intolerance," doesn't always communicate the seriousness of the condition. If you have a positive antibody blood test, you have Celiac Disease--there is no "mild" about it. If this is the case, all gluten needs to be eliminated from your diet. It's very overwhelming at first but very much worth it in the end. Most of us that are a few years out from diagnosis would never cheat--it's just not worth it no matter how good that Oreo looks!

    Second, you need to call your health care provider who made the diagnosis and ask these same questions. If you don't get helpful answers (or if you aren't directed to someone who can give you helpful answers), I would seriously consider switching providers.

    I have a non-gluten-free hubby, and we have a mixed kitchen. Thankfully, I was diagnosed before we got married, so he knows all about cross contamination. This is going to be your biggest issue unless the whole family goes gluten-free. As for the vegan diet, get plugged in to your local gluten-free community--usually just a google search away. Typically, you will find one or more Celiacs who are also vegetarian. They will be your greatest resource for what is available in your area.

    Good luck.

  4. The important thing to remember is that fibromyalgia should be diagnosed using very strict criteria AND after everything else has been ruled out, including Celiac if GI symptoms are present. Unfortunately, it can be a default diagnosis when MD's are frustrated and would like to treat something. For those with fibromyalgia AND Celiac disease, it's important to practice good sleep hygeine and take part in mild to moderate exercise most days of the week as well as adhering to a gluten free diet. These will probably do more to help both conditions than anything else.

  5. I was having the same issues with the cookies being too crumbly. Now I blend the mix VERY WELL with a hand-held pastry blender (like you would use for from-scratch pie crusts). Once the dough is very formed, which takes about 5 minutes of blending, I form the small dough balls by hand. Have had GREAT success. Most of my non-gluten-free friends assume that they are "regular" cookies.

  6. First, everyone MUST understand that it is only in the last 15 years that the medical community figured out that celiac disease is not just a rare disease of childhood. This is what most MDs were trained to believe, and it takes a while to re-learn, but the awareness is growing.

    Second, most docs are not aware of the growth of the gluten free movement over the past few years. Again, they were taught that adhering to a gluten free diet was more difficult than most other diets, and they don't want to put their patients on something so restrictive if they don't absolutely have to. So, respectfully educate your docs on the gluten-free foods, restaurants, services available in your area.

    Third, I understand that many people who use this forum have had very bad experiences with some of their doctors. Yes, some doctors choose not to keep current and continually educate themselves. However, I feel some on this forum use a pretty broad brush in their characterization of the medical field. Very few doctors are just "in it for the money" or "do not want to diagnose Celiac because they are afraid you won't need them for future health problems." That's just ridiculous. While doctors, blood tests, and biopsies can be 100% wrong, most doctors are acting in what they believe to be your best interests.

    Celiac Disease is difficult. None of us have the exact same symptoms, and even "classic" presentations can look like so many other more common things. If your doctors don't "get it," try to help them understand rather than deciding that they don't care about your health.

  7. it's really important to remember that the genetics we know about are just PREDISPOSITIONS! there are Celiacs who don't have any of the known genes and plenty of people who have them without Celiac Disease. Like most things, Celiac is a combo of genes and some environmental factor (illness, exposure, etc) we haven't figured out yet. While you are technically your genes, YOU ARE NOT YOUR GENES. further, DO NOT BE DEFINED BY A DIAGNOSIS!!!!

  8. about the lactose intolerance... it goes with the celiac disease since the part of your intestines that digests milk is destroyed by the celiac antibodies. it should get better as you heal.

    as for brothers, i have one, and they can be buttheads. but they get over it most of the time. put him on ignore and wait for him to grow up. he might also be a little scared that he could get it, too.