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olalisa

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  1. Before my diagnosis and going gluten free, my feet cramped constantly, with the big toe curling up very painfully. I think part of it is vitamin deficiency, but I think it can't be all from that because when I accidentally get glutened now (which is very infrequent, thankfully) I will get foot cramps for a few days. That makes me think that it's possibly part of the neurotoxic reaction that I and many other people with celiac experience. Hope this helps.


  2. Recently I'm noticing that when I use Bandaids I break out in a VERY itchy rash where the bandaid is. This is something new for me. I had a couple of moles biopsied last week and bandages became a real problem--itchier by the day. I tried Bandaid brand and also Nexcare brand. Does this mean I'm becoming latex sensitive or allergic? Could there be gluten in the glue? Could it be related to celiac? Any responses would be appreciated. Thanks.


  3. Can we just say that it's possible to loook at this both ways?

    It's possible to view this as a lifestyle choice. This attitude gives some people a feeling of control.

    It's equally possible to look at this and say, "Hey, there's no choice here." For some people, this is such a no-brainer that there really doesn't seem to be any choice.

    Personally, I have some days where I feel like I am making a choice, and some days where I feel I haven't got any choice.

    Please don't try to force Geoff to feel that he has a choice. You can't force feelings. Maybe he will come to feel he has a choice, maybe not. If he doesn't feel he has a choice, then he doesn't have a choice. Period.

    For those of you who feel that you have a choice, you have made very inspiring arguments--but don't beat him up with those inspiring arguments, okay?

    How you see things is not necessarily the same way someone else can see them--or live them.

    Fiddle-Faddle,

    Thanks for articulating so well what I was thinking as I read this thread. I felt like Geoff was getting pummelled for his point of view, and was trying to figure out how to say what I thought. You summed it up perfectly--especially the part about feeling like you have a choice some days and not others.

    I don't think ANY of us would choose to have this disease and to have to be concerned about every molecule that goes into our mouths. That's what I think Geoff is trying to say, if I hear him correctly. And I couldn't agree with him more.


  4. welcome, Jesse!

    I know how overwhelming it feels when you first get diagnosed. It took me a while to grieve, and sometimes I still tear up a little at pizza commercials. As for "fagels" (that's what I call my "fake bagels") the glutino ones are quite good, as are the kinnikinick (not sure I spelled that right). As for breads, make sure that whatever kind you choose, you toast it a little to make it edible....makes a huge difference.

    It is a sharp learning curve, but you'll get there. And you're going to feel soooo much better, which makes it all worth it.

    We're here for you. You'll get lots of info and support here. Never hesitate to ask questions :)


  5. Would it be getting too personal to ask what is CAUSING so much stress? Seems to me that that should be the place to start. Of course, not being able to sleep is an awfully vicious circle--you start the day exhausted and unable to deal with the little things that normally don't phase you, and then they keep you up at night so you can't sleep, and then you're exhausted the next day, too...

    You might not want to put it all out there for everyone to know--but then again, it could be really amusing to see how we would all disagree on how to fix it!

    Anyway, if you feel like I might be able to help, feel free to pm me.

    Hang in there, it really does get better, and there are lots of people here who care and can help, in many different ways. :)

    (My own personal stress-reliever is chocolate, but that might not be the healthiest thing around....)

    I agree with Fiddle-Faddle. Understanding the source of the stress and anxiety is the place to start. You might want to try massage therapy for relaxation (I'm a massage therapist so I'm a firm believer in that), and if needed, an anti-depressant. I'm also partial to chocolate. Dark chocolate in moderate doses works wonders for me.


  6. Hi everyone,

    I'm leaving Saturday to go "muck out houses" in New Orleans for a week. This means going into houses that haven't been opened since Katrina and taking everything out, including the sheetrock. I'm somewhat nervous about the work we'll be doing, but we'll have respirators, so I'm hoping that will keep me safe in that regard.

    What I'm most anxious about is the food situation. One woman who is going says she'll be my "personal chef" on the trip, to solve the cross-contamination issue. I've talked to her about what I can and cannot eat, and about pans, utensils, etc. I'm still worrying some about getting glutened so far from home. I'll also be in a situation where 54 adults will be sleeping in one big room, so you all KNOW what my worries are there :blink:

    We also have a 15 hour drive each way, in vans, to New Orleans. (Wow, as I type this, I'm beginning to wonder about my sanity in volunteering for this with celiac disease, but I really felt called to do it).

    So.....any suggestions on food for travel, "back up" food for meals, or just general words of encouragement would be greatly appreciated!!


  7. Welcome, Noelle!

    I also had gnawing hunger before my diagnosis. When I accidentally get glutened now, I'll have it again for up to a week. As for the other symptoms, many of yours sound like mine--the low BP, the candida, the dairy intolerance, low energy, anemia and other nutritional deficiencies, the list goes on....

    I had some other symptoms that you haven't listed, like serious edema in my legs/ankles and lots of leg and foot cramps, but the symptoms of this disease are SO variable, which is one reason it often goes undiagnosed.

    So....if you feel better off of gluten, I'd stay off of it, even without an "official" diagnosis.

    Lisa


  8. Here is a link to my favorite cream of anything soup recipe. It is fairly easy, okay, not as easy as opening a can, but those days are over. I use it just like I normally would in my recipe.

    http://www.gfutah.org/recipes/Condensed%20Cream%20Soup.html

    Hez

    hez, I just found that recipe this weekend and used the cream of mushroom recipe in a casserole. Turned out GREAT!

    That site has lots of good recipes and tips, by the way. Check it out, everybody! :)


  9. Yay! I'm so glad you found it! I think the cider is much better than the two gluten free beers that I've tried. They make several varieties-- my store has the granny smith kind and I can't wait to try it:)

    I just checked the website and they actually have pear and raspberry too...hmmmm....wonder if they're good.

    They also have, on the website, a direct "gluten free" link to click! What a concept!!


  10. I've eaten at two PF Changs locations (Raleigh and Durham, NC) and have had great experiences at both. The wait staff seems to understand and I've never gotten sick there. I probably go about once or twice a month. Some of my favorite dishes are the spicy chicken and whatever the shrimp dish is on the gluten free menu--can't remember it at the moment.

    I agree that avoiding peak times is always a plus--at ANY restaurant.

    Enjoy!


  11. Welcome, Stephanie! You've found a great place with a wealth of information and camaradarie (I'll need spell check on THAT word)....

    I know it was hard being diagnosed just before the holidays, but consider it this way--you got your first holiday season under your belt right away! It will get easier. I've been diagnosed around 9 months and feel like I'm getting the hang of it.

    Stick around, you'll be glad you did :)

    hey--where IS the spellcheck! Momma Goose! Help me!