Family Not Believing W/o Dr Diagnosis in Celiac Disease Pre-Diagnosis, Testing & Symptoms Posted November 15, 2006 · Report to Admin Even my husband has said, "Well can't you go back on the wheat for 3 months and get the blood test just to be sure" Can you imagine someone saying "Oh, you think peanuts give you an anaphylactic reaction? Why don't you eat one? Then if you can't breathe, we'll know for sure." ::sigh:: I really don't get it. Considering all the other issues relating to wheat (genetically modified, pesticide treated, etc.) why do people think it's necessary to eat it? One idea that may or may not be useful... In my field of work, some people question theories/assumptions in amazingly stupid ways. I have discovered that if you can calmly ask them about *their* theories and slowly pick them apart (with an attitude of curiosity, as in "I'm trying to understand this, how do you see it?") eventually, some of them realize their assumptions are a tad off. The hard part is staying calm and non-judgemental about it. So... try to imagine these questions presented in a very clear and patient way. [like Barbara Walters would ask, maybe?] -Why does your hubby think you need the test to be sure? I mean, what are his concerns here? That it may be something else? - Given that 1) if you eat wheat, you are vomiting and so on, and 2) if you do not eat wheat you are not vomiting and so on, what are some possible explanations? What would be some reasons for eating wheat if it seems to result in vomiting and so on? Given your son's condition and the possibility that a gluten-free diet may help, what are your hubby's concerns about putting him on a gluten-free diet? Is he worried about nutrition? Does he think it's too much trouble? People put their kids on all sorts of diets... to help reduce hyperactivity, to prevent rickets, etc. People go on all kinds of diets to improve their health (to lose weight, to lower their cholesterol, etc.) If you feel better when you lots of oranges, it is possible that maybe you needed more vitamin C. If you feel terrible after you eat an entire bag of Hershey's Kisses (for example) you might be less likely to do it again in the future, whether or not you conclude that it's not good for you. If you feel absolutely terrible after you eat wheat... Way back when, before we had all kinds of doctors to tell us what to do, people figured it out as they went along. "Hey, every time I eat the berries off that kind of shrub, I don't feel so good. I don't think I'll eat those berries anymore." That's still how a lot of biological systems work in the wild. As a random example, certain trees produce a substance in their leaves that make a certain kind of caterpillar sick. As a result, those caterpillars avoid that particular kind of tree. No caterpillar doctors involved (to the best of my knowledge, anyway). doulagrl, you have my sympathies. Please take at least as much care of yourself as you would one of your pregnant charges. My wish for you is to find a doctor who treats a positive response to diet as a basis for diagnosis, so you can wave around that stupid piece of paper if you have to. I hope you can find even a fraction of the understanding that is on this board somewhere out in the real world. And please, please, please, stick to your guns here. You and your son both deserve to be and feel healthy.