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ajay

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  1. Even my husband has said, "Well can't you go back on the wheat for 3 months and get the blood test just to be sure"

    Can you imagine someone saying "Oh, you think peanuts give you an anaphylactic reaction? Why don't you eat one? Then if you can't breathe, we'll know for sure."

    ::sigh::

    I really don't get it. Considering all the other issues relating to wheat (genetically modified, pesticide treated, etc.) why do people think it's necessary to eat it?

    One idea that may or may not be useful...

    In my field of work, some people question theories/assumptions in amazingly stupid ways. I have discovered that if you can calmly ask them about *their* theories and slowly pick them apart (with an attitude of curiosity, as in "I'm trying to understand this, how do you see it?") eventually, some of them realize their assumptions are a tad off. The hard part is staying calm and non-judgemental about it. So... try to imagine these questions presented in a very clear and patient way. [like Barbara Walters would ask, maybe?]

    -Why does your hubby think you need the test to be sure? I mean, what are his concerns here? That it may be something else?

    - Given that 1) if you eat wheat, you are vomiting and so on, and 2) if you do not eat wheat you are not vomiting and so on, what are some possible explanations? What would be some reasons for eating wheat if it seems to result in vomiting and so on?

    Given your son's condition and the possibility that a gluten-free diet may help, what are your hubby's concerns about putting him on a gluten-free diet? Is he worried about nutrition? Does he think it's too much trouble?

    People put their kids on all sorts of diets... to help reduce hyperactivity, to prevent rickets, etc.

    People go on all kinds of diets to improve their health (to lose weight, to lower their cholesterol, etc.)

    If you feel better when you lots of oranges, it is possible that maybe you needed more vitamin C.

    If you feel terrible after you eat an entire bag of Hershey's Kisses (for example) you might be less likely to do it again in the future, whether or not you conclude that it's not good for you.

    If you feel absolutely terrible after you eat wheat...

    Way back when, before we had all kinds of doctors to tell us what to do, people figured it out as they went along. "Hey, every time I eat the berries off that kind of shrub, I don't feel so good. I don't think I'll eat those berries anymore." That's still how a lot of biological systems work in the wild. As a random example, certain trees produce a substance in their leaves that make a certain kind of caterpillar sick. As a result, those caterpillars avoid that particular kind of tree. No caterpillar doctors involved (to the best of my knowledge, anyway).

    doulagrl, you have my sympathies. Please take at least as much care of yourself as you would one of your pregnant charges. My wish for you is to find a doctor who treats a positive response to diet as a basis for diagnosis, so you can wave around that stupid piece of paper if you have to. I hope you can find even a fraction of the understanding that is on this board somewhere out in the real world.

    And please, please, please, stick to your guns here. You and your son both deserve to be and feel healthy.


  2. Hi Sandy,

    Yes, Kinnickinick makes yummy bagels. . .but sadly they contain corn and soy and are therefore off limits for me - I am one of those unfortunate 30% whose bodies can't tell the difference between corn and wheat. Sigh. I will continue to dream. . .

    Sophie! I react to corn, too. And darned if half the yummy gluten-free versions of stuff out there have corn in them. So I end up making most of my pseudo-gluten foods from scratch. Now I have a problem getting a batch of brownies to last longer than a day... I literally do polish off the whole batch within 24 hours... I know there's a recipe for bagels in one of Bette Hagman's cookbooks... are there CC concerns with bean flours and soy?

    Maybe it's just as well that I still can't get a loaf of gluten-free bread to come out right. I'd probably eat the whole thing before it cooled down!


  3. Any ideas? The thesaurus was no help. It suggested "fretful" which is even more insulting than intolerant. :huh::lol:

    Nancy

    That's it! I'm "gluten fretful!"

    I have to admit, sometimes I feel like a "celiac poseur." Because I don't know if I "really" am or not. The only possible reason I can think of getting tested is that if it happened to be positive, I could maybe finally convince my mom (who practically lives on immodium) to consider a gluten-free diet.

    What I do know is that I went to Denmark in October, and there were these lovely pastries everywhere and (according to my sweetie) they were heavenly, and "the US should be ashamed of what we try to pass off as a 'danish'"...And I never tried even a nibble. Who could possibly give up pastries for life unless there was something seriously wrong?! Sheesh.

    gadgetgirl, congrats on taking care of yourself and (forgive me) going with your gut. If it helps in your explanation to your friends, you know you have an immune reaction from your Enterolab results, and even the pseudo-gold-standard biopsy is an iffy process, so no hedging or apologizing!

    [ironically, while accompanying my sweetie to a doctor's appointment, it came up that we had a gluten-free household. His doctor looked over at me and asked "Celiac?" and I'm the one who said, "well, I've never been tested..." So yeah, I'm a hypocrite. Do as I say, not as I did!]

    Gamecreature, no support groups even in Chicagoland?! :(

    And to be fair, when I first cut out wheat, I was one of those people who still 'cheated' now and then even though I knew I was gonna pay for it. As I spent more time off wheat, my 'cheats' got fewer and far between as I finally realized it just wasn't worth it. Some of us are a little slow on the uptake, perhaps. So maybe those "oh, I just take a pill" folks are kidding themselves... and setting themselves up for some nasty complications a few years down the road. If I honestly believed I could just take a pill, of course I'd try it. So I have some pity for the buffet-moaners, because they may very well be nuking their guts out.


  4. I'm having a lot of thyroid and adrenal problems that have caused me to be ridiculously tired all the time, so I've started drinking 1 cup a few mornings a week, and it has definitely helped my tiredness. I have never drank coffee regularly - more like a cup or two a week, except for a period of a few months last year where I drank it every morning at work.

    I'm not sure what I believe about whether it is good or bad for you, but I know that my 1 cup is not nearly as bad (or good) as those that drink a pot a day.

    I have low blood pressure & some other issues, so I start the day with a double shot of espresso and drink black tea through the rest of it. I know it's not the best thing for me, but without it, honestly, I am a slug. I did do a serious elimination diet way back when, and at that time I cut out all caffeine. I tapered off, though, because caffeine headaches are hideous. I spent about 2 weeks slowly cutting back a bit at a time, and by the time I cut it out completely, I didn't have any nasty withdrawal symptoms. I also got pretty much nothing done during my first caffeine-free week. :lol:

    I fell off the wagon about 3 weeks after that. I might try again someday, but after losing a year or so, it's really frustrating to lose even a day of being a functional human being.


  5. Amazing to me is that strangers are more pleasant than family! My mother's been really good and last year made me all my own food, even stuffing (wasn't good but she tried & that's what mattered to me)

    Turns out we decided we're not gonna meet each others families on a big holiday, many reasons and all valid on both sides. So we'll do bits at each visit. I think in the long run that'll be easier anyway both for the importance of it and them getting used to me either bringing food or just not eating.

    Funny, he was nervous about them asking me too may questions in general & I was worried about the gluten.

    You're right, there is a point were you HAVE to change the subject because someone always ask, "What EXACTLY does it do to you?" I've started saying "intestinal damage, trust me that's all you want to know."

    We did talk about him writing out recipes of stuff he really likes to cook so I can go over it & tell him what needs to be altered. Would definitely be easier if we saw each other more so until then it's repetitive info.

    AHH! The throwaways! I'd forgotten about those! I'm going back East for T-day & I will definitely grab some of those for my family day

    This sounds like a fine plan to me. There's enough stress involved in "meeting the folks" without meeting them on a holiday that is (more than any other) all about food! I love the recipe exchange idea.

    Good luck!


  6. Argh, do you guys mind if I vent for a second?

    My in-laws went to Rome a few weeks ago, and guess what my mother in law brought me back for a gift? A WHEAT chocolate torte!!!

    ...

    Does anybody else have someone in their lives that just refuses to "get it"? What do you say or do about that? Whimp that I am, I just thanked her for thinking of us and stuck the think in our fridge for DH to eat later. But it really hurt...and I'm really mad at her for purposely buying the one thing she knows I *can't* enjoy!

    anerissara, please vent! Especially here. Your MIL sounds like a real piece of work.

    My "fantasy" reactions:

    1) insist on serving her a slice topped with a ton of (lactose filled) ice cream.

    2) say "I'm so glad it's worth eating even if it makes me sick... shall we pack it up and enjoy it in the ER?"

    3)Bring it to your non-ultra-Catholic non-denominational church group and then tell her how much everyone there enjoyed it. [my favorite choice]

    Be proud that you are far more gracious than I! :D

    I think it she knew exactly what she was doing and it was rude, mean, and distinctly unChristian. I also believe that while being lactose-intolerant is not fun, there is a big difference between a lactose intolerant person "cheating" and a celiac "cheating".

    I think this does give you an automatic excuse to pass on future dinner invites you get from her. Especially if your son needs to be gluten free as well. You can explain that you don't think she seems to take it very seriously, and it's one thing if you get sick, but totally another if your son gets sick, and you really don't want to trouble him with things like thyroid disease, osteoporosis, and bowel cancer when he grows up.


  7. So what I'm wondering is: should I risk a gluten challenge? The problem is that I have a job to deal with--and so if I can't go to work, what am i supposed to do? Not a big deal to go to work when you feel sort of bad, but I've been out all this week because I am so dizzy, and my stomach is really bad (especially in the morning, and also with reflux--I think.)

    Hi Allison,

    You can search around the boards a bit about testing, because a lot of people wrestle with it. I think part of the question is, do you personally need an official diagnosis? Some people need to have it medically confirmed, for whatever reasons. And if that's what you need, then that's a valid reason. Some figure if you improve on the diet, what more evidence do you need?

    Some notes of caution:

    1) A positive result is a positive result, but a negative result is a big question mark. There seem to be a lot of people on the boards who officially tested negative but definitely react to gluten. From what you've said, it sounds to me like it would be in your best interest to live gluten free no matter what you get for test results.

    2) In my experience (and others have mentioned it, too) after you have gone gluten-free, you may be even more sensitive to gluten than you were before. It's like now your body has enough strength to really react to it. That may be where you are now-- A new job and stress can distract you enough that some small amount of gluten sneaks in and whammo! I used to get big red hives when I ate wheat. I had an accidental challenge this spring. I got a full-on anaphylactic reaction.

    There were times when I wanted to get tested for celiac disease since I do get digestive symptoms as well (they just come later). I still wonder if I'm "really" Celiac, but after that last incident, I am firmly in the "not worth it" camp.

    I would say the doctor who suggested eliminating gluten should have tested you then... But so many people have problems getting their doctors to even recognize that there's a problem, so I'm *really* glad it even came up as a suggestion. And that you tried it.

    Anyway, welcome. Please keep us posted on how you're doing. People here can be very helpful and supportive (and part detective, too).


  8. Just one thing that I wanted to address here:

    This may have nothing whatsoever to do with gluten. I've had two of these in the past year, and they both turned out to be MRSA (Methcillin Resistant Staph. Aureo-something) infections. This is a VERY nasty bacteria, and it's a fairly new thing that people are acquiring it outside of hospitals. When I had my first one in April, it took the docs at Kaiser 10 days to get around to testing it for MRSA and getting me on the right antibiotic, so don't assume that your doctor is up to speed on this. Not to be preachy, but I would make an appointment NOW, and demand to have the fluid cultured for MRSA. If that's what it is, they should put you on a course of Septra to get rid of it.

    I, too, would be interested in more info. I get these nasty, deep, lesion-like pimples, but I've suspected they're correlated to my diet. They seem to appear about the same time as some of my other symptoms, and the recur in the exact same places each time. Is there anything characteristic about a MRSA infection?


  9. My dd was tested for celiac disease a few weeks ago and it was positive. So I got tested 2 weeks ago. I was told that the tests were negative, but the nurse called today. She said they got more results back and they are positive for celiac disease.

    I am in shock. I have been research celiac disease for a while now, and i know what I have to do to help me and my kids feel better. But just knowing for sure that we have it is such a horrible feeling. I am scared and sad and I feel bad for passing this on to my kids. I suspect that 3 out of 4 of my kids have it. I don't want to put them through blood tests, so we will just do the diet and see how they do. I just feel horrible about this and I hardly know where to begin. My kitchen is FULL of food that contain gluten. I don't know whether to throw it out or just finish what we have and not buy any more. I would rather make our bread than buy it, but I don't have a good enough mixer to make dough, and i won't have the money to buy one until we get our tax return.

    Sorry, but I am rambling. I told you I was in shock! I am very confused right now.

    Thanks for listening!!

    ptkds

    Remember, you didn't *choose* to pass it on to your kids-- that's just random chance and genetics.

    Put all of your gluten stuff on the dining room table and invite your friends over to take whatever they want. Toss the rest, or donate it if it's unopened. Don't eat it. It will take long enough to "de-gluten," so you might as well start as soon as you can.

    I can't really imagine what you're feeling right now... If it helps, I would like to point out that you are doing your kids a huge favor by putting them on a gluten-free diet. Maybe they will recover faster because they are younger. And I imagine that goes a long way toward preventing the many horrible complications that can happen from the cumulative effect of gluten and the resulting damage.

    I think you're doing the right thing.

    If money is tight, I think it's easier/cheaper to start out with unprepared ingredients (veggies, fruits, fish, cuts of meat, whatever). I didn't even try gluten-free adaptations for months because they were so expensive. On the bright side, after a year without chocolate chip cookies, my first gluten-free attempt tasted great! (They've gotten better since then...)

    Good luck and hang in there. Think of how happy and healthy your family will be!

    (insert cheerleading icon here)


  10. Thank you, I am going to cook gluten free & see what happens! I am going to talk with my significant other as well, tell him how I feel and seek some support!

    *Definitely* tell him how you feel. Though it is not always the case, it can make a big difference if you try to explain it. OK, so it's not as extreme and obvious as anaphylactic shock, it's still deadly. Would your sweetie want you to drink a drop of mercury every day? I mean, It wouldn't kill you the first day, but...

    Also, if it turns out your sweetie is clueless, post about it here! You may get some good advice, and you will get plenty of sympathy!


  11. I went with "Besides wheat, barley, and rye, I strongly believe or know via testing that I react to other foods, but neither oats (avenin) or dairy (casein)."

    I react to the usual suspects with both allergic and digestive symptoms. I am allergic to corn and lactose intollerant. The jury is still out on oats, and since a casein sensitivity hasn't occurred to me, I haven't tried eliminating dairy... perhaps I should...

    I confess, whenever I start feeling sorry for myself (All the gluten-free stuff has Stupid Corn in it! Why is there Maltodextrin in medications?!) I just go to these message boards for a reality check. Postings here help me realize how lucky I am for all that I can eat


  12. ...you won't eat the gluten-free bread in your gluten-free airline meal because there's no ingredient list on it.

    ...you've mastered the art of saying "oh, that's so sweet, but no thank you."

    ...under normal circumstances, the words "free samples" mean nothing to you.

    ...you pack a bag of food for a trip to the mall.

    ...one file drawer at work is just for food.

    ...you over-tip restaurant servers who "get it."

    ...you hate the phrase "modified food starch"

    ...there's a bowl of leftover halloween candy at work, and you don't even bother to dig through it.

    ...you eat dinner before you go to a dinner party.

    ...you've ever been so excited to find a gluten-free version of something you haven't had in years that you buy it and take it home... and only when you put it in the pantry do you realize you never actually liked the original stuff in the first place!


  13. I think the extreme hunger and crying was due to being pregnant! That was the good thing that came out of the trip! I have been starving ever since and I'm 14 weeks pregnant now. I had no idea my symptoms would start that early but they did.

    We were are Green Turtle Cay and so I call the baby Turtie. I like it better than "it" since we don't know if it is a girl or boy yet.

    CONGRATS!

    Great news. May you always have plenty of bananas! :D


  14. the ingredients off the box are:

    maize starch (corn), tapioca flour, rice flour, vegetable gums: guar, methylcellulose.

    Orgran's All Purpose Flour is not only Wheat Free and Gluten Free but dairy free, egg free, yeast free, gmo free, soy free, vegan and no added cane sugar.

    I've found that it works most like a wheat flour in baking, they have a self rising flour as well.

    D'oh! Stupid Flippin' Corn. Grumble.

    Sorry. I'll go read posts from people who are allergic to Everything That Is In Everything and then I'll fell better...


  15. Hugs to us all!!!

    I think what bothers me the most is when good friends don't seem to care. Come on, how difficult to make chilli with corn mesa instead of wheat flour. Oh, yeah my circle is getting mighty small.

    People put flour in chili? Whatever for?

    My most recent example of stupidity was when I had to attend a business banquet with a Important Political Person. He noticed that I wasn't eating much. When I explained my 'allergy', he scolded me: "You know, you're missing out on a lot of joy!" As if I was doing this to punish myself or something. I really wanted to punch him.


  16. Okay, I've never tried posting a poll before... Let's see how this works.

    So DH and I are hosting (his) family for Thanksgiving. They live halfway across the country, so we've never done Thanksgiving Dinner together before... Just today I realized that one of their traditional Thanksgiving dishes is pecan pie... And that involves both wheat (crust) and corn (syrup)! In my kitchen (shudder)!

    I'm trying to figure out how to deal. I can't really ask my MIL to bring it already made, because she'll be traveling for a few days before she gets here. So it will have to be prepared here. One idea is to ask her to make it on Wednesday, so there isn't flour flying around the kitchen (and in my mixer! ack!) while the rest of the feast is being prepared. Thoughts from the board? Ideas?

    I should add that the in-laws are very cool and kind. MIL has gone out of her way to prepare food that I can eat whenever I visit. Last year, she adapted her top secret family Christmas Cookie recipe and made a whole batch that was gluten-free! *and* guarded them from the many other cookie lovers in the family. They're usually very considerate. Plus, Thanksgiving tends to be full of family traditions. I don't really want this to be the Thanksgiving That Was Lousy Because We Didn't Have Stuffing. I mean, I know folks can adapt. But since they've really made a remarkable effort for me, I want to be able to meet them halfway. Well, without getting sick, obviously. I think most of my kitchen stuff has never seen gluten. What do I need to do to decontaminate it afterwards?

    As always, thanks for any suggestions.

    -aj


  17. I'm back. This trip was very challenging. I was fine the first day, slept through the night and felt great. I woke up Tuesday for breakfast and they had gone to get fresh loaves of bread. ALL the counter tops were full of bread crumbs and the kids were walking around dropping cheerios every few steps.

    I wiped all the counters down. Then I grabbed a bowl out of the cabinet. It had bread crumbs in it. I washed every dish I used from then on. I kept all my dry food in my room and tried my hardest to be paranoid. Tuesday night I had a stomach ache for 16 hours. That usually only happens when I'm glutened. Then I got reflux really badly (again glutening symptom) and had C for a few days. I didn't feel horrible, so I'm thinking just a bit of cc. I didn't sleep past 4am the rest of the week.

    Then on Sunday I started getting really, really hungry. I woke up at 4am and had a snack because I was starving. Then at 7am I had two bowls of cereal. I cried because we were out of bananas (yes, I realize this is crazy). I went to get bananas and ate 3 of them. Then a piece of lasagna - all before 11am...

    1) Ok, I am resisting the urge to yell that your family was SUPER INCONSIDERATE. Or, at least, I tried to...

    2) I think this is the first time I've seen it mentioned by someone else, but I get really, really hungry after the cramps ease up. Like, "I've polished off everything in the cupboard, what can I eat now?" hungry. I've been wondering if there's a gluten connection.

    And no, under the circumstances, it is NOT crazy to cry about a banana shortage. I think most of us would have done the same if we'd been in your shoes!


  18. Portland is my city! I have not yet ventured into gluten-free dining, though, as I am still a bit symptomatic and TERRIFIED of getting glutened! But there are so many great restaurants- check out the Old Port, Exchange St. in particular, for many great choices. Also, David's on Congress street seems progressive so perhaps aware of the gluten thing? If you travel through Wells, Me. on your way up to Portland, (which you will if you come in on 95), there is a FABULOUS restaurant about a mile and a half off the highway called Joshua's. They WILL cater to gluten-free diners. (friends own this) ALL organic, fresh food grown in their gardens and absolutely DELICIOUS! Gorgeous setting as well. If you call ahead, Barbara will let you know gluten-free items. The brochette (beef) is exquisite. Have a great time in Maine!

    lisa

    Thanks for the tip, Lisa! Mom lives in the area, so next time I drive up, I will have to try Joshua's.

    I have had very good experiences at Salt Water Grill on Front Street. I'd consider it a Nice Occasion Place.


  19. I'm actually posting under my husband's account - he was already logged in. We're headed to Boston next weekend for several days and are searching for restaurant recommendations. We'll have our 2 year old with us... so they need to be kid-friendly. My husband and son both have celiac disease.

    I've read that Pizzeria Uno has a gluten-free menu... has anyone gone to the locations in Boston? Did it work out? Know that we can go to Legal Seafoods, but can't do that every day. We'll be staying near prudential center and doing the major tourist sites.

    So far, my list consists of: Pizzeria Uno, PF Changs, Legal Seafoods, Fresh City & Whole Foods.. Would love any feedback on these places and others.

    We live near NYC and have had so many bad experiences trying to take our child to recommended places -- they simply turn us away (Rissoteria, etc..). So, we'd love to avoid this frustration -- and not starve.

    Thanks for any suggestions!!

    Betsy

    I realize that by now you have already travelled and returned. Please give us a report! How'd it go? rants? raves?


  20. I'm new here and new to celiac. My daughter (8 years old) was diagnosed about 4 weeks ago and we have learned everything we can about staying gluten free. She is feeling better and we are getting the hang of it. But we have a family trip planned for December to visit relatives in China. We will ask the folks we know over there for advice on the local stuff. But I'm just wondering if anyone has had any experiences with China or Chinese food here.

    Thanks -

    I think it depends a great deal on where in China you go and how well you speak Chinese. I spent about a month and a half in Southern China, and I think my biggest problem was MSG. I brought a bottle of wheat-free soy sauce, which came in handy and was gone altogether too soon. I think generally speaking, the biggest concern would be cross-contamination of kitchenware. And the fact that people insist on trying to feed you. I was incredibly fortunate to stay at an excellent hotel, and the dining room staff took very good care of me. Outside the hotel, however, all bets were off. The concept of an allergy or intolerance seems to be unfamiliar. On the plus side, I found plenty of fabulous fresh fruit and it wasn't hard to get steamed fish. And the steamed rice is so much tastier there. I am going back in December, and I'm bringing Tinkyada pasta for the noodle dishes in addition to the wheat-free soy sauce.

    You definitely have two advantages: you will be with relatives (who will undoubtably be enthralled with your daughter and won't want her to get sick) and you are her parent (so it's understandable if you get super picky about her food). Or at least, that would be my hope.

    For what it's worth, I flew United and requested the fruit plate (they have a gluten-free option on the website, but not when I tried to request one on the phone. Go fig.). It came with cookies, but luckily the person seated next to me thought they were delicious.

    I hope you have a wonderful visit, and that your daughter has a happy, healthy time.


  21. Thanks for the tips. To make matters worse I will be in a foreign country ( Eng ) and don't even know what snack bars will be suitable. With Customs at airports so strict now I don't think I can carry that much food with me ( for 4 weeks ???) so its going to be areal challenge. Its next year - but am already starting to be scared.

    How can I cope for 4 weeks w/out homecooked meals ????

    You can definitely check a reasonable amount of food. I have managed just fine with dried fruits and nuts, and on my last long international flight, I had a soft-sided cooler with a cooked chicken breast and other munchies for the flight. I took the cooler out of my bag to go through the x-ray machine, made sure my medic-alert necklace was prominently visible, and prepared for battle... and there was absolutely no problem whatsoever.

    So it may depend a bit on your luck and the airport. Check the TSA website before you go, too, since the restrictions may be different in a few months. If possible, bring some documentation (like the restaurant cards!) with you in case you get an annoying security guard. One time I had a problem until someone higher-up on the food chain came by and ended up chewing out the woman who was giving me a hard time. So if you get attitude, you could (nicely) ask to speak with a supervisor. Total side note: I recently flew KLM. I requested and got a gluten-free meal. And a flight attendant even gave me some leftover gourmet cheese from first class as an alternative to pretzels!

    Good luck! You will have challenges, but you may also have some very pleasant surprises. Here's hoping for more of the latter.


  22. Oh it gets better...my boss just came to my office door and said, "What kind of pizza do you think I should order for Wednesday?". I told her, "You're asking gluten-boy (my nickname here) who can't eat any? I really don't care." She said, "Oh I know you can't but I thought you'd be good to bounce this off of." So I said, "Veggie and pepperoni". So she reads off her selections and I respond, "Again, on behalf of people that can't eat pizza, that sounds fine." And went back to working on my computer. THE NERVE OF HER! She is coming to my party on Saturday night. I should make sure something sits out for DAYS before hand and give her that to eat so she gets food poisoning.

    OMG, you are so nice. How did you resist the urge to say "Pineapple and Anchovies. Together. It'll be great!" ?!

    I haven't read through the rest of this thread yet, but I have to add a funny pizza story. I worked at a place that had lunch meetings every friday. With, of course, pizza provided. Every Friday.

    Well, I worked with a person who's Jewish and keeps Kosher (no milk/dairy and meat together). And another person was Catholic and observed Lent (no meat on Fridays). And two vegetarians. Spring rolls around, and what does the assistant order for our Friday meetings? Pepperoni pizza. It was kinda funny. At least I wasn't the only one frustrated. Maybe she wanted to be sure there were lots of leftovers...


  23. OK, I admit it, I read "Against The Grain" as a newbie. I had to get it, since I loved the play on the classic novel's title. I haven't read it since, so I can't honestly say what I'd think of it now. I remember liking it.... which after reading some of the above comments, makes me a little nervous.

    What I did want to mention was about cheating. When I was first going gluten-free, I did cheat about every 3 months or so... then maybe every 6 months... Now I don't ever deliberately cheat. For me, I think in the beginning I resented that I couldn't eat what I wanted, and there were foods I really missed. I was pretty sure that I was allergic to wheat, not celiac, so I'd just feel not-so-great for a few days, no biggie. As I spent more time gluten-free, I was able to really notice the difference in how I feel. And my exposures felt more and more severe. So I got to a point where I realized that no matter how tasty that croissant may be, it's just not worth it.

    No, cheating is NOT a good idea, and not everyone does it. But I can understand why someone might, because I was once willing to do so. I can imagine it would be harder for someone who is asymptomatic, since you don't get the feedback ("This really sucks, and I voluntarily did this to myself?!"). Maybe some of us are really thick on the issue ("a little bit of arsenic can't be all that bad...") but the sooner we come around, the better.

    I can't believe she'd suggest being rude to a server in a restaurant. This person handles your food, for goodness sake!


  24. Anyone have any feedback about cruises and meeting gluten-free needs??? Or feedback about a cruise/cruiseline you've been on that met the gluten-free needs, etc.

    We're considering going on one b/c we can get a great rate through the military, but I want to first get as much info and feedback before making a decision. It's not like there will be a PF Cheng's on board. HAHA!

    Thanks!

    turtledupree@hotmail.com

    Hi Turtle,

    I posted some comments about Carnival Cruises under another thread which has "carnival" in the title... you can PM me if you can't find it. Let us know what you decide!


  25. Wow, these are such great ideas!

    Because I react to both wheat and corn, I bring my own food everywhere. Interestingly, I have yet to be challenged. Maybe I don't go out enough. :D If anyone gives me trouble, I figure I'll just ask what they sell besides bottled water that I could actually consume. If they can come up with three things, I'd be genuinely surprised. Maybe I'm just cocky, but I have a friendly attitude and a nice big Medical Alert necklace (birthday present from my mom. Yay!) so I just take my chances. If anyone took my gluten-free goodies, though, I'd be taking names...