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jen22

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  1. Hi everyone, I was diagnosed about 8 months ago. I also have Type I diabetes and Hashimotos. I am feeling very discouraged right now because I am having trouble managing my Type I and just coping with all of this. I work full time and have a daughter and husband. I exercise, I try to eat healthy foods, I gave up alcohol several months ago because I thought it might be contributing to my depression I believe I was glutened this past weekend - we went out to eat. I find it almost impossible to be confident when eating out. I started seeing a holistic nutritionist who recommended some
  2. Thank you! Thank you. I am feeling less crazy. I thought it seemed way too soon to be talking about refractory. I'm going to take your advice and also read up more on the forums. I do not know anyone, personally, who has celiac disease and getting my family to rally has been a challenge. I have taken over all of the cooking and food prep and meal planning to try to limit exposure as much as possible, but our habit of eating out between 1-3 times a week (including lunch) is probably not doing me any good right now.
  3. Hi all, I posted earlier this week about my lab results after 2 months. I went to the gastro today and he said that he was "very surprised" that my antigliadin antibody (both IGG and IGA) numbers are exactly the same. I am still having some diarrhea about 2x a week. However my TTG IGA and IGG are both now normal. He questioned if I was adhering to a gluten free diet and suggested I look at my lotions, etc. I have been strictly gluten free for 2 months and cut out all grains, corn, etc as well as dairy. I even changed out my lotions, toothpaste, makeup, etc. He said I need to be even
  4. Thank you... I figured that but I don't know why my doc would want to run the labs so soon then. It just feels a little discouraging.
  5. Hi - have you had a comprehensive lab panel done? Maybe there are other issues? I would talk to your doctor about it. It could be something other than Celiac.
  6. Hi all, I was diagnosed a little over 2 months ago and have been strictly gluten free since then. My doc ordered repeat labs at two months and a follow up appointment. I have received them and the only marker that has changed was TTG IGA (now negative, previously positive). I still have high Antigliadin Antibody IGG and IGA. I don't know what to make of this. Isn't two months too soon to tell? Does anyone have experience with post-diagnosis labs they can share? Thank you.
  7. Hi all. I was diagnosed with celiac about 10 days ago. I've done pretty well so far with not eating food with gluten (I think) but I still seem to be getting a rash under my insulin pump site (I also am Type I). I was thinking about all of the products I put on my skin, brush my teeth, hair, makeup, etc and I have been overwhelmed with looking at all of that. Does anyone have any suggestions for how they did that? Do you think it is necessary?
  8. Thank you - I had my endoscopy today and the doctor said he didn't see the telltale signs of celiac but he did biopsy. There were a number of other things he noted, like a polyp found in the fundus, and my stomach was very inflamed. He said to start a gluten free diet right away anyway. It is hard not to get ahead of myself and wonder about the results and if they come back negative.
  9. Hi everyone. I just received my labwork and my gastro scheduled an endoscopy for tomorrow to diagnose if I have celiac. My bloodwork showed: Antigliadin Antibody - IGA - High (>100, normal <20) Antigliadin Antibody - IGG - High (59, normal >20) Tissue Transglutaminase Antibody - IGA - Detected However, endomysial antibody screen (IGA) andimmunoglobulin A were normal. I have been living with Type I diabetes and Hashimotos for some time (T1 for 24 years, Hashi for 5) and for most of the past year I have been for the most part following a gluten free, low carb
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