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Latest Celiac Disease News & Research:
Everything posted by queenofhearts
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ARCHIVED New To This Topic....questions
queenofhearts replied to tboss's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
It definitely sounds like Celiac is a possibility. Are you anemic? (The bruising would be a tip-off.) I had recurrant diarrhea, anemia, arthritis, & migraines for years but not until I developed liver damage did the docs figure out it was Celiac. All the pieces of the puzzle just fell together... I'll bet the same thing happens with you! Good luck... -
ARCHIVED I've Lost Over 25 Pounds!
queenofhearts replied to Nantzie's topic in Related Issues & Disorders
Congratulations, Nantzie! It's amazing what can happen once we stop poisoning ourselves! Leah -
ARCHIVED How Did You Cope Going Gluten Free?
queenofhearts replied to susiek's topic in Coping with Celiac Disease
Here's one of my in-the-middle-of-a-deadline emergency quickies: Nuke a potato. Serve with salsa & some grated cheese. Or with cottage cheese & chives. (I grow chives in my garden. They're very easy to grow.) Super-speedy & sorta healthy... better than not eating anyway! Leah You do have to be careful with cottage cheese though--... -
ARCHIVED Corn Tortillas Dusted W/ Wheat Flour?
queenofhearts replied to luvs2eat's topic in Gluten-Free Restaurants
Do you make your own? They're so good homemade, but tortillas are one of my grab-it-when-there's-no-time-to-cook staples... now I'm wondering... Leah -
ARCHIVED Going To Have Thai Food Tonight
queenofhearts replied to VegasCeliacBuckeye's topic in Gluten-Free Restaurants
The problem is, recipes vary, ingredients vary, chefs sometimes make changes, so you just have to ask. And even then it's a little risky, which is why I don't eat out all that often! Leah p.s. Don't forget to ask about the broth since some contain gluten. -
ARCHIVED Bones, Soft Tissue Damage.... And celiac disease
queenofhearts replied to princessfuzzball's topic in Related Issues & Disorders
I don't know anything at all about these symptoms, just wanted to say I'm sorry you're going through so much pain, & I hope you find a doctor soon who can really help you. Leah -
One thing that helps me is to have a glass of water & some healthy finger-food-- fruit, baby carrots, grape tomatoes, that sort of thing-- handy to snack on when I'm working at the computer nonstop. Otherwise I tend to get really hungry without realizing it & then suddenly feel desperate for calories & I eat too much of the wrong stuff. (Not...
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So is Solaray otc? I didn't realise that. Leah
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ARCHIVED Going To Have Thai Food Tonight
queenofhearts replied to VegasCeliacBuckeye's topic in Gluten-Free Restaurants
There are DEFINITELY some that do. I shop at Grand Asia Market & about 1/4 to 1/3 of the fish sauces there have wheat. So you really do need to ask. The good thing is that unlike soy, MOST fish sauces are safe. Leah -
ARCHIVED How Did You Cope Going Gluten Free?
queenofhearts replied to susiek's topic in Coping with Celiac Disease
Yeah, I've had my wacked-out moments too. One night I made "assemble-your-own" tacos for supper & set out flour shells along with corn. I had about a dozen carefully-prepared fillings in bowls arranged around the table. My husband took his flour tortilla in hand &, ignoring the spoons, proceeded to stick his gluteny fingers into all the bowls.... -
My current RRRRRR.... Doc prescribed special iron supplement supposedly more absorbable, insurance won't cover it 'cause it's over the counter, but it costs $55 a bottle! Any advice on that one? Leah
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ARCHIVED Corn Tortillas Dusted W/ Wheat Flour?
queenofhearts replied to luvs2eat's topic in Gluten-Free Restaurants
Yikes! Never thought of this-- the fryer issue is bad enough. Leah -
ARCHIVED Is Gluten Absorbed Through The Skin?
queenofhearts replied to dahams04's topic in Parents, Friends and Loved Ones of Celiacs
I love Sculpey & I use it a lot in my work, but while it should be completely safe in a gluten sense, it still requires caution because the plasticizers in the clay are really not good for you. Something that is not well understood in art supplies-- things can be marked non-toxic (meaning you don't keel over instantly if you taste it) but repeated exposure... -
ARCHIVED Is Gluten Absorbed Through The Skin?
queenofhearts replied to dahams04's topic in Parents, Friends and Loved Ones of Celiacs
There's considerable dispute over this, but the possibility of getting some in the mouth (especially with kids) is so great that you don't want to take the chance, even if it doesn't get through the skin. My policy is that anything that touches my hands (lotion, sunscreen, &c.) has to be gluten-free, because I sometimes unconsciously touch my lips... -
You bet your boots! Stress makes just about anything worse if you ask me. Try really hard to be kind to your body now. I know it's tough when you're short on time. Drink lots of WATER. Do some gentle yoga if you possibly can. Don't forget your fruits & veg. And breathe! I live by deadlines, & I have painted on my studio wall: "There...
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I hope you feel better soon, Berneses-- your symptoms sound just miserable. What a lot to deal with all at once! Wow... that is fascinating. My temps have always been low too, to the point where only when I'm feverish do I get up to "normal"-- & when I tell people that they look at me like I'm nuts. My thyroid has always tested normal but I've...
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I too am a sweet potato junkie, but please don't use plastic in the microwave. It really is bad for you. Johns Hopkins just recently issued a warning about the toxins it releases into your food. I put my sweets in the microwave bare-nekkid on a plate & they cook up just fine! (Be sure to pierce the skin so it won't explode on you though. And turn...
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ARCHIVED Need Advice From People With Experience!
queenofhearts replied to mumseyh's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Well, there are a couple of ways of looking at it. If you feel you need a clear diagnosis, you should insist on an enteroscopy with multiple biopsies, & you should keep eating gluten until you have it so that the damage will be clear. But if you just want to feel better & don't particularly have a need to be diagnosed, by all means go gluten-free... -
ARCHIVED Flour Master List
queenofhearts replied to queenofhearts's topic in Gluten-Free Recipes & Cooking Tips
Slight complications! My e-mail is doing strange things today. I have sent messages to everyone who pm'd me but many of them are stuck in my outbox for some inexplicable reason. I hope the list will get to you all eventually. Please know that I haven't forgotten you! Leah p.s. Chrissy, did you pm me with your e-mail address? -
ARCHIVED Playdough?
queenofhearts replied to chgomom's topic in Parents, Friends and Loved Ones of Celiacs
Another "Play-Dough" recipe"-- when my kids were little I used to make this all the time with regular flour, but they're 19 now so haven't made it since I was gluten-free. I'm just guessing on the xanthan gum amount, but you want it nice and springy, so I would start with 1 tsp. & add more next time if you think it would be better. 1 cup gluten... -
Have you considered blood sugar issues? Are you getting enough to eat? If you have suddenly cut out starches from your diet, that could wreak havoc on your blood sugar levels, & for me, that's a sure trigger for dizziness. Leah
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ARCHIVED Flour Master List
queenofhearts replied to queenofhearts's topic in Gluten-Free Recipes & Cooking Tips
I'm really glad so many folks are interested in the flour list! I must not have been clear in my first message, though, because a lot of you are not including your e-mail address in the pm, & I don't know how to attach a Word document to a pm, so-- PLEASE REMEMBER TO INCLUDE YOUR E-MAIL ADDRESS IN THE PM. ...Or if somebody knows a spiffy way to... -
ARCHIVED Hello! New From Wa State
queenofhearts replied to NancyKay's topic in Introduce Yourself / Share Stuff
Funny, I'm trying to get my other son to be tested for Celiac, since he has some suspicious symptoms. He's very resistant. Won't try the diet either. I admit it would be tough for a college student. James, my Evergreen son, is definitely still hoping to be a photojournalist. And wow, you are exactly right about the influence of the Northwest. J.... -
Wow, what a fantastic gift of information! Thank you so much-- I learned a lot! Leah
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ARCHIVED Questions About Inhaling Wheat Flour And The Soy Family
queenofhearts replied to Sarah8793's topic in Coping with Celiac Disease
Oh, that's true about the lingering haze. I'm lucky that I'm the baker in the family; they gladly eat my gluten-free things & I don't have to worry about the air pollution! Leah