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cathzozo

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  1. Hello-

    I discovered via a hunch and then the diet that I am definitely gluten-intolerant, but I never went through official testing. Then my grandmother and several aunts tried it too, with obvious improvement. My mother finally tried it because even though she had no obvious symptoms, all of the rest of us had improved our thyroid function by going gluten-free, so she went gluten-free, and six weeks later her TSH was normal. (By the way, my mom did the blood test before going gluten-free and was negative, and I think one of my aunts tested negative too.)

    So, I've been bugging my brother now, to try going gluten-free, and he finally agreed and has been doing it. I think he always had gastro issues, but he swears not. He's been going for about 3 weeks on the gluten-free diet, and he doesn't think he feels any better, but I think he just isn't noticing "better" because it is happening so gradually. So eventually, he wants to do a big gluten test, and see if he notices any problem then. So here's the question (finally): How long should he stay gluten-free before doing his gluten challenge?

    Thanks for any advice.


  2. I had pretty bad gas from dairy and eggs for awhile after going gluten-free. My theory is that before, I wasn't digesting them at all, then once going gluten-free, I was somewhat digesting, and that somewhat wasn't pleasant. I took some Lactaid, and just cut out the eggs for awhile. Finally once I was really healed up, I realized that I could eat these things again. You probably will too. For me, I was reacting so extremely to the eggs that I couldn't have 1 slice of gluten-free bread with eggs in it without regretting it later. I still use Lactaid and lay off the eggs if I've been glutened recently.


  3. Latley I have been having problems with my head STILL. I posted earlier but I still am having problems. I am wondering if I need to eliminate another food from my diet. I am gluten free and dairy free. I am tired of feeling so slugish all the time. I feel really hung over when I get up in the morning..no I haven't been drinking! :) I am tired throughout the day also. I was reading about others who eliminated soy, corn and potatoes. What should I do? I haven't had any stomach or bathroom issues, just a really foggy head.

    Kimberly,

    Here are just some ideas - no answers, though. Have you been keeping a food diary? Maybe that would be helpful. Likely food intolerances would be dairy, eggs, soy, nightshades (potatoes and peppers), nitrates/nitrites, other food additives/chemicals. Corn, like gluten, is in SO many processed foods. So you might not be able to tell a response to that unless you eliminate completely for a bit of time. Also, are other things OK? For instance, are you having seasonal allergies or even more likely, allergies to something in your home/bedroom? Are you possibly depressed? Have you been exercising? Often moderate exercise can make me feel better when I'm just a little sluggish. Are you sleeping OK? Stress from work? Good luck and I hope you feel better soon.


  4. Rob,

    You may notice over the next few weeks that some weird symptoms that you would never connect to Celiac are better. In fact, they may not be symptoms that you really even noticed or thought were worth addressing. I never realized how badly my shins always itched until they stopped itching. Then the next time I got glutened, I realized, oh yeah - my legs used to feel like this all the time - how horrible!

    It's possible for your reaction to gluten to become more severe or just change slightly once your intestines have a chance to heal. So you may become more sensitive or you may not. But since you currently have diarreha, you probably will continue having that as a symptom. You'll probably be able to tell when you accidentally get glutened.

    Good luck on the diet!


  5. Welcome to the board! I didn't have big problems with support from my family luckily, but I just wanted to jump in and say that it's a good idea to just not bring your health and gluten up with people who give you problems about it. For whatver reason (most likely their own hang-up), they can't/won't deal with it. They will be more supportive when they figure out their own problems.

    Also, I wanted to say that your two daughters might well benefit from removing gluten as well. My mom, three of my aunts, and my grandmother are all now eating gluten-free and their (and my) hypothyroidism has been improving. It appears that the reaction to gluten was causing the thyroid problems among other things. My mother, in fact, has returned to a completely normal TSH with no medication by following the gluten-free diet, but she never had any traditional gastro symptoms. Your daughters can either go through testing, or just try out the diet.

    It's something that your son, as well, should keep in mind and know about and probably get tested for or try out the diet, but in his current state of aggressiveness I wouldn't push it. Maybe in a year or so, he will notice what a difference it has made for you. My brother is like that. It is completely clear to everyone else that he CLEARLY has celiac, but he won't even consider it right now. You can't force this on other people.

    Anyways, good luck! Keep reading and posting here. It's a hard diet to figure out the details of at first, but it does get easier.


  6. what about a small salad bar that doesn't have any other gluten containing food on it? my hometown there is only one restaurant and everyone always eats there, i'd like to join but am scared of what everyone says about buffets. this one has lettuce, carrots, pickles, cheese, pudding, eggs, and things of that nature. the croutons and that sort of thing are not actually in the salad bar part. i don't normally eat dressing anyway. does anyone think this would be ok if i just ate some of the lettuce with carrots and some shredded cheese on it?

    Since the croutons really are not part of the salad bar, I probably would. But I take more risks than some people. Additionally, technically shredded cheese can have flour on it as an anti-caking agent (especially if it was purchased as shredded cheese). Although I've never seen this on a package, it is possible and one of those things they warn you about that you should check. Also pudding can have gluten in it, so don't eat that unless you check. But since this is the only restaurant in your town, I think it would be completely appropriate to ask them if the grate the cheese themselves, and if not, if you could ask to see the ingredients on the shredded cheese. And I think you should also ask about the dressing. And if you want a salad, they could bring you a serving of the dressing from the back. In a best case scenario, once they get to know your needs, maybe they could just bring you a simple salad from the back and charge the same price as the salad bar. Generally, if people know why you have these needs and if you are a repeat customer, they will make quite a few modifications to keep your business.


  7. School can be really stressful. I was high anxiety my whole life, but always under control. And then grad school took it to a whole, new unhealthy level. I also think that was when my celiac disease was triggered, and I was working two jobs, and my mother had a heart attack and almost died. All of this took me to a point where I realized that I was no longer just my normal high-stress personality, but not healthy. In a way, I'm glad I got there because I realized I needed to see a psychiatrist, take meds for a few years, get therapy (after three tries I found a great psychologist). The combo of meds and therapy allowed me to make real changes. I don't think I could have done as much in therapy without the meds, but I don't think the meds helped me change my ways of thinking. It was the two together. And now, I have much less anxiety then I ever did, even when it was under control. I've recently weaned off of all my meds, but I was on three psych meds for 2.5 years. Although I understand some people's resistance to psych meds, I think it was 100% necessary for me.

    Also, I fully understand getting a drink. That's a natural desire to escape, but it easily backfires because alcohol is a downer, and if your anxiety is your personal response to depression and problems, alcohol's downer qualities is not what you need.

    Anyways, this was really long-winded. But I just want to let you know that I think it's great you've got the psychiatrist appt scheduled. I think it would be appropriate to email your professor and carefully explain your current anxiety, that you are seeking treatment, and that you'd be glad to come in to office hours to talk one-on-one as a replacement for answering questions on the spot in class. I think in nursing school, of all places, this should be understood by the professor.

    Good luck!

    Catherine

    Thanks for all your support. Its greatly appreaciated.

    My background is that Ive always had high anxiety since childhood. Also going to a strict catholic school traumatized me, due to what some of the teachers did to me. I was diagnosed with post traumatic stress syndrome. Anxiety for me had always been an issue however I notice a direct correlation to what I eat and how bad my anxiety gets. Ive been fairly strict with my diet since the summer. Last night was my first drink in months and my body couldnt handle it. As far as my personal life causing anxiety... I just started nursing school, a new part time job, and one of my teachers at school is stressing me out. I have performance anxiety and I dont like to be randomly put on the spot in front of my classmates and asked to do a talk about something Im not prepared for. The teacher has done this to the students (not me yet) and it freaks me out. When I do presentations I have to be very well prepared and take a tranquilizer. I cant do impromtu discussions. So this is causing me stress. I may have to let her know my problem with it. Last class she actually made every foreign student stand up and talk to the class about their culture and hygiene habits????

    Im seeing a pyschiatrist in two weeks, I need help.


  8. My teenage daughter started an iron supplement this afternoon and her face has been flushed since. She even feels a little warm. Does anyone know what this would be? Is this normal when starting iron?

    Thanks!

    By any chance, does the supplement also contain niacin, which is a B vitamin? It causes flushing. If you don't come up with an answer, I'd watch her very, very carefully for any other signs of an allergic reaction, and maybe take some benadryl, and get medical help if needed. Furthermore, I wouldn't take it again without talking to a doctor. That is scary!


  9. My grandmother recently made a similar bad decision. She really wanted one of her husband's cookies, so had one. And then really regretted it. She's only been gluten-free for about 6 mos. I think so this was the first holiday season. My mom will be visiting her next week, and will be making her a bunch of gluten-free cookies to stick in the freezer so she can safely fulfill the desires of her sweet tooth. She's diabetic, so it's still cheating for that diagnosis/diet, but at least not bringing back her IBS such that she can't leave the house for several days!

    I think I can understand it, though. I've had no problem replacing my sweets. I think the gluten-free sweets are pretty good, and I've found that I do a decent job of making them, but I LOVE breakfast tacos. And almost every morning, I have to consciously talk myself out of going for breakfast tacos at my favorite place -- because not only is there a pretty high chance of CC, it's also not good on my checkbook to go out for breakfast every morning. :) I don't know what part of breakfast tacos is so addictive, but it really is tough for me to say no to that!


  10. I'm normally a hungry person anyway, but after I've been hit, especially if it happens a couple of times in a short space of time, when most of the symptoms have gone I get really excessively hungry (I was up until 2am this morning eating because I couldn't sleep I was so hungry) I just feel like I can't fill up, whatever I eat I am never full or satisfied. Is this normal?

    It's very normal for me. Before I started eating gluten-free, I ate SO, SO much. I think it was because I was not absorbing all the vital nutrients, although I was obviously still able to absorb basic calories because I was overweight. My body kept feeling hungry because it needed certain nutrients. Once I started eating gluten-free, I realized that my appetite dropped considerably. All of the sudden, I noticed I was saving half of my meal when eating out to take home and have as leftovers. When I get glutened, I get hungry again for a couple days. I up my eating, although I know that's probably not good for my weight, because it's the only way I feel like I will be able to make it through those days. Hopefully, in a few days, you will be back to "normal."


  11. Well, I'm not sure that I'm very Marta Stewart-y at all, but I have had the same problem as you with bread. My bread is still not perfect, but this is the best answer I have. Sometimes bread collapses when it has too much liquid. I live in a humid area and don't use my central air much so the environment and my flours already have more liquid. I decrease liquid amounts by 1-2 Tbsps for every recipe and that has helped. Also, make sure that you are not using Jumbo instead of large eggs - that could add extra liquid as well.

    Good luck!

    Catherine

    Ok...I need help from you "Martha Stewart-y" types out there!!

    Why, why, why.....does my bread come out of the oven looking beautiful and then as it cools, it looks like some one let all the air out?? What am I doing wrong? I am using Bob's Red Mill gluten-free bread mix.

    Any ideas??

    TIA

    Dallas


  12. Hi! I've been hypothyroid for a couple years and on Synthroid. For the first time ever, my TSH has been stable since I've been gluten-free instead of constantly upping my Synthroid dosage to adjust. I plan to start trying to drop my dosage very slowly after my next, hopefully 3rd nice decently low TSH level.

    ALSO, much more significantly, my mother has been testing with elevated TSH levels for quite a few years. But she never took medication to deal with it. And since she started her gluten-free life, she has now had a normal TSH test for the first time in YEARS. This is what convinces me that now, if I start dropping my dosage, my thyroid will be able to start doing it's job again.

    So, I think it's worth a try to slowly start dropping your dosage (with your docs approval) and monitor your TSH to see how your body reacts. That's my plan at least.

    Good luck!

    Catherine


  13. If at all possible, go see a psychiatrist. They will spend more time talking to you about your actual symptoms and make the attempt to pick a medication that will actually help you. Also, please realize that it's somewhat of a guessing game with these medications. So, if it's not right - go back and talk to them again until it is the right dosage and medication combo for you.

    Typically, a primary care doctor is likely to prescribe an SSRI, which is great for some people and problems, but isn't the thing for everyone.

    You didn't mention it, but if you don't see a therapist, you might consider that. Therapy combined with meds made such a huge difference for me. Looking back, I can't believe I put off treatment so long. I no longer go to therapy, and I'm weaning off the meds, but it's been a couple years. It seems that if you stay on the medications longer, your brain actually "heals" itself somewhat. That doesn't mean you will necessarily need it your whole life, but at the minimum try to take the meds for 9 mos - 1 yr, to give your body that time.

    Good luck!


  14. I am asymptomatic when it comes to gluten. I just found out I had celiacs about three months ago. My doctor told me I have it to a very mild degree. It's only blunted the villi in the first couple of inches of my duodenum. I have other issues too that I found out about years ago (signature).

    My doctor said that because I have it to such a mild degree I could afford to cheat once a week if I wanted to. However he also said that as human nature goes, one day would turn into two, and two to three, etc, etc.

    Even though he did say this, I have not cheated since starting this diet two months ago. I check labels and make sure theres no gluten in anything I eat. When I go out, I make sure theres no sause on anything I order. However, I don't really worry about what its being cooked on or with.

    I did get french fries one day and I had really bad bloating. I got naked wings with nothing on them one day (i think there may have been something on them though) and I got a really bad headache and I walked around almost like I was in a fog...I couldn't really concentrate. So I think I may be developing symtoms.

    I did not get new silverware or cooking utensils/pots/pans etc. I did not get new condiments to avoid cc. I did not look at any of my bathroom products - shampoo, soap, makeup, etc. I have not gotten any of these symtoms that I think I may be developing from any of this stuff (at least I don't think I have).

    My question...do I need to be extreme with removing gluten from my diet/life? I know not to eat it. But do I need to make sure it's not cooked on anything that had/may have gluten on it? Do I need to get new cookware? Do I need to check my bathroom products and get gluten-free ones?

    Thanks somuch for your help!

    Hi Britni-

    I haven't been doing this for too long, but I'll let you know how it's going. I thought that I wasn't too sensitive to gluten until I had been off of it for several months. There are annoying symptoms I used to have that I just thought were part of being me - itchy skin (with or without obvious rash), headaches, sinus congestion, and gastro issues. Being gluten-free quickly fixed the gastro issues, but the other things have improved so slowly that I never even noticed they were better until I got glutened, and then I realized how many things are effected. And I am hypothyroid, and for the first time ever my TSH levels are dropping instead of continuing to go up and up and up. That is pretty amazing to me. The auto-immune response can damage so many different parts of your body. It's just not worth it to not be careful. There was a link to an article posted somewhere on this forum about cognitive decline being caused by celiac. That makes me want to be as gluten-free as possible.

    I would say to be as careful as possible with food. Eat out as little as you can, although when you have special social requirements, go ahead and eat out. If possible go to a place with a gluten-free menu or go to a nicer restaurant where the wait and kitchen staff actually have a clue. I often called ahead to begin with, and I sometimes still do, depending on the restaurant.

    At home, I bought a toaster oven, so I can clean it out well if I have any concern that something gluten-y somehow got in it (husband). We do not do any cooking with any gluten containing food at home, but my husband does have his own loaf of bread and his own waffles. I did not buy new pots and pans, but I don't have teflon pans. I would want to replace teflon pans. I also did not replace cutting boards, but that is because we have all plastic cutting boards, not wood, and they go through the dishwasher. I did replace wooden spoons.

    I don't worry too much about skin and personal care products. But it turns out that the shampoo I usually use is gluten-free anyways, and I don't wear makeup so that's not a big deal. But if you take medicine or vitamins, check those.

    I, too, thought a lot of the precautions people take were a little overboard when I first began, but I, like so many others, have realized how little it takes to make me sick now that I'm finally healthy. I also have really enjoyed learning how to cook on my own. Since eating out is so hard, I've developed a whole new set of skills. Furthermore, eating is now cheaper because I eat our so much less and cook from scratch.

    Good luck!

    Catherine


  15. OK! I finally succeeded. I think that I just had my batter too wet. Doesn't help that I live in muggy-land, either. So, I made the Potato Bread from Hagman's GFG Cooks Comfort Food. I intentionally shorted the water, and then as we were mixing it, we looked at the pictures on Carol Fenster's webpage, and tried to imitate her "graceful globs." I also shortened the rising time a little, didn't let it get over the edge, and popped it in the oven. Oh - and I also used mini pans and muffin tins for rolls. Until I am feeling VERY confident, no more yeast bread in the big loaf pans! Thanks everyone for all the ideas...


  16. So I started eating gluten-free 5 months ago. Here were the symptoms that got better:

    1. D and other gastro issues

    2. fatigue

    3. achy joints

    4. my thyroid is apparently behaving better because my TSH is going down and I'll be lowering my synthroid dosage

    But for awhile I was still taking a vitamin with gluten in it, so I've been completely gluten-free for 6 weeks probably, and I got glutened this weekend. I KNEW I got glutened, but before I figured out the culprit, my husband was scrubbing the toaster, and throwing away jelly jars. I finally figured out that the culprit was dried wasabi peas (not smart on my part), and here are all of the odd things that came back that I didn't really even notice were gone (in addition to above symptoms BAD):

    5. a long-term, but very mild rash showed back up on my legs (apparently, it had disappeared and I hadn't noticed)

    6. a rashy, bump on my head that has been there my WHOLE life re-flared and itched horribly (it hadn't disappeared, but was smaller and less itchy)

    7. my seasonal alleries flared up big time and I feel like I have a sinus infection (looking back I haven't been taking my daily claritin for awhile)

    8. I got a headache.

    9. And I'm totally brain-fogged.

    I was totally shocked that this many things really do seem to be connected. It's really a shocker. Maybe some day I'll even be able to wean off my psych drugs (although I'm not depending on that). I'm just so amazed how much healthier I am in so many ways.

    Thanks for listening/reading!

    Catherine


  17. Thanks for all the tips everyone. After another not-so-great loaf of fallen bread, I decided that maybe I had too much liquid. My mother was talking about how she has to usually put a little extra because her climate is SO dry. We are SO muggy here, so I think that could make a difference.

    I also bought, but haven't used for bread yet, an oven thermometer. I figure that should help. And I'm going to try to find that Gluten-Free Gluten Replacer. That sounds like a good idea!

    Catherine


  18. I think there is a lot that the docs and scientists haven't figured out yet about this disease. They have identified something called celiac disease, but the diagnostic criteria they have given to it are very narrow, so a lot of people who don't have celiac disease (as defined by criteria) still have the same problems as people who are diagnosed as celiac, and can still solve it the same way - with the diet.