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rachellek

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About rachellek

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  1. Hi, I'm new to this site and new to Celiac Disease. I feel so alone and really need some support from people who can understand. Here goes...

    I've been sick for 10 years and finally figured it out on my own 6 months ago. I went off gluten and feel like a normal person again. Anyways, I finally got into a gastroenterologist and he recommended biopsies for me even though I've been gluten free. In order to have a valid result, I needed to eat gluten for ONE WHOLE MONTH. Well, you can guess what's happened to me in the last few days. I ate 2 cookies made of flour and a peice of breaded chicken nugget. I FEEL LIKE I GOT RAN OVER BY A TRUCK AND AM IN THE PROCESS OF DYING. My symptoms run the gammut from bloating, nausea, constipation, diarrhea to tunnel vision, dizziness, spacey headedness, no memory, headaches, hair loss in clumps and an uncomfortable buzzing feeling in my whole body that makes me just want to jump out of my skin.

    Why am I posting here? I need some advice on whether I should continue or not. How can I possibly carry on eating gluten for a month? I felt unsafe driving my kids to soccer and dancing last night. Is there a benefit to a doctor written diagnosis or is my body's response all I need. Do you think I have celiac or just food intolerances? I've also been having blood glucose issues in the past month that I don't know how to handle. I think I'm hypoglycemic at certain times after eating something sweet (even an orange) so, do I cut out fruit and all sugar too?

    If those questions are too complex for anyone to answer, here are some more general ones. What types of vinegar can I trust? Is regular white vinegar malt vinegar? what about vinegar in store bought salad dressing. Is maltodextrin gluten free? What other sources of hidden gluten have you encountered that you were surprised by (I read all ingredients all the time). Do many of you have high risk for osteoporosis? If so, what have you done or taken to help? (I was scanned last week and am in the high risk category although I'm only 33).

    Last but not least ...why did this happen to me, no one in my family has ever had any of these problems and they all think I'm absolutely loony I'm sure. I really feel alone.

    Thank you thank you thank you for what ever answers you can give me! I would appreciate it so much!

    Rachelle