Kris Fisher

CitriCal is what my Dr suggested but when I asked if it was gluten-free she didn't know. Is there a web site where we can look up vitamins and medications like we can food?

Thanks alot.

Thanks Leah

Does anyone know of a calciim D Supplement that is gluten-free? I'm thinking it would be powder vs. pill form.

Kris

I tried them right after being diagnosed and felt awful after eating them. They taste great but I agree, there must be some cross contamination going on.

Kris

I just took my Daughter to a Gastro and was telling him I've recently been diagnosed with Celiac. He wanted to know how I was diagnosed. Thru blood I said no biopsy. He said I wasn't 100% diagnosed then. He said I needed to eat normal food for 2 months and then get scoped! Are you kidding, I'm not going to put myself in that pain again. I told him I had a positive response from the diet and his reply was "I give patients sugar pills and they feel better" He implied it was in my head . I came right here for support and they all said don't eat normal again, to fire that Dr. A positive anything is proof enough.

Good luck

Kris

My suggestion comes from this message board. I was diagnosed in April and began eating vegy's vegy's and more vegy's. My abdomin was actually larger than when I would react from gluten. In my case it was the gases from the vegy's. I quit that and the bloating went away with in 2 days. My next thing was taking dairy out for a while. These guys here are wonderful and suggested me taking dairy out for a couple of months and hopefully I can re add it back in later. I feel so much better now. I really want a big glass of milk but I'm strong and will avoid anything that potentially makes me hurt.

I hope you find something that works for you daughter.

Kris

I really appreciate ALL the help you all have given me. I knew you guys would understand and have the best advice out there.

I will take you advice and stay gluten free and have my Daughter tested by my Family Dr. I have now changed the way I feel about my Family Dr vs. the gastro Dr. Thank you for helping me realize that.

I didn't know a test could come back negative and still not mean I don't have Celiac. I wish I had all this yesterday when talking to the gastro. When I mentioned to the gastro that the diet made me feel better I wish I would have said there are no pills for celiacs only the diet and I'm responding positively.

You guys are great

I asked the Dr why I felt better when on the diet he said he has given patients sugar pills before and they respond with feeling better. Basically it was all in their heads and basically all in my head!

I would prefer to stay gluten free but I have to do this for my Daughter. The Gastro didn't say this but I felt he didn't take her symptoms as celiac because I'm not 100% diagnosed. If I can prove I have it then I can rub it in his face. I can take the symptoms of celiac disease for my Daughter any day.

Kris

I was diagnosed with celiac disease by blood in April of this year. I immediatley went gluten free. Still didn't feel the best so I recently went dairy free aswell. Last week was the best week I had in a while.

Anyway, I took my 6 year old Daughter in to be tested as she has similar stomach issues as I do. The Gastroentologist and I began discussing why I brought her in. I say I was recently diagnosed with celiac disease. He asked by what means, I tell him by blood. He said I'm not 100% diangosed! He says the only way to prove celiac disease is thru the scope. He said I need to go back to normal eating for 2 months and then be scoped. I'm so frustrated today I can't take it . I'm so mad at my family Dr who didn't follow thru and have me scoped 3 months ago. I feel he wasted 3 months of my life. NOW I have to go off of my gluten/diary free diet and be in pain for a 100% dianosis. Has anyone had to do this because of the Family Dr.'s incompetance?

Kris

Seriously, check out the raw recipes for dairy subs; they've got some good ideas.

What is "Raw Recipes"?

Can we have regular peanut butter OR do we need to buy gluten free peanut butter, if there is such a thing? I seem to be okay with JIF but everyone at work, no one with celiac disease, say's "you can eat peanut butter"? So now I'm asking you.

Kris

I also do the warm water, salt and snort method. a Dr. told my Sister about it. People at work think I'm crazy. They have never heard of it before but the ones who have sinus infections have tried it and it works. Save a heck of alot of money from Dr and prescription bills.

Kris

Hi Kris,

You're right, it's so overwhelming at the beginning. If you want, you can PM me and I can give you my email address - sometimes it's easier to hvae a communication buddy.

Lorka, I would PM you but I don't know how. Is it some sort of emailing you personally?

Just wanting to verify something. When you say "sans bread", you mean sans as in the french meaning without bread , right? Sans isn't a type or brand of bread is it?

My Bread is called Sans Gluten Free. Fiber Bread. From Premium Glutino Supreme. It says gluten, wheat, milk, casein free. What is casein anyway?

As all of you suggested, I will try going dairy free. It's going to be hard but I can do it.

I was diagnosed in early April with celiac disease. My frustration comes from not knowing everything. I have the forbidden list of ingredients but it seems the ingredient lables I'm ready don't list any of those ingredients so I assume it's Gluten/Wheat Free. Yet after I eat stuff I feel like crap. This whole week I've not had any energy and was totally in a fog. I can't eat alot of vegies because they upset my stomach so much.

My normal day of eating is an egg for breakfast, cottage cheese with frozen fruit for snack, sans bread with tuna and cheese for lunch and some rice chips for late afternoon snack. Supper is a piece of meat of some sort or potatoe. I've totally cut my eating habits in half. I've always been able to pack away the food yet stay thin. Maybe I'm eating all wrong, that is what i need to know. Help help help

Is there a book out there that you would suggest to give me the inside tract on Celiac?

Thanks

Kris

My middle Daughter, Shayla has enormous stool. Every time she has a BM she plugges the toilet. I'm not kidding you. She is a very thin, pale child who can eat a ton of food with no weight gain. She has no stomach pain as I do. She does look sickly some times in her face but I relate it to her pale skin. Would the large stool be a sign of celiac. I don't want to get her tested unless the experts, you, thinks it a possiblity. My reasoning is she had e-coli when she was 4. The little girl that she got it from died 10 days into it. Shayla was hospitalized for 30 days. She is better now but VERY scared of Dr.'s and needles.

Any advice would be great.

Kris

I also deal with C most of the time. I've just started eating the new yogart Activia. It's supposed to help regulate you in 2 weeks. The yogart taste great and I'm a picky eater.

Kris

Rachel, I'm glad you asked this question. My Daughter who is 6 years old and was diagnosed 1 year ago with gastritis has mouth sores. I think her diagnosis isn't right. I'm taking her to a gastro specialist to have her tested for Celiac in July. I didn't realize the mouth sores could be from gluten. I don't get them but like everyone says we are all different.

Anyway Thanks

Kris

I'm a massage therapist and I use hypoallergenic massage oils and gels... Have the therapist check and make sure there is no wheat germ oil in the blend... I use TheraPro or Biotone massage gels... so if it's either of those brands it's safe... if it's the Aveda massage oil, def. check because I think that has wheat germ oil in it. Any other brands I'm not as familiar with so just have your therapist check the ingredients for you. If they can't you might want to consider carrying a lotion that you like that you know is safe (I don't like massaging as well with lotions but some therapists don't mind and especially with an "allergy or intolerance" issue...)

Thanks for the info, I'm new to Celiac and would never guessed lotions or shampoo can have wheat in them. Speaking of shampoos I'm trying Tresemme and now the base of my scalp itches like crazy when i'm washing. I could scratch holes in my scalp it I didnt have control. Have you heard of this?

Kris

I'm getting my first massage tomorrow and was wondering if the oils they use will be okay for celiacs?

Kris

You will find the strength in yourself soon. Just believe in your inner strength. When I told my co-workers that I was diagnosed with celiac and then explained what I wouldn't beable to eat one lady said you might as well kill yourself! It just goes to show you who has the strength and who will never have it.

Kris

Mine depends on how my stomach is feeling. I'm up and down on the gluten free thing so on the good days my sex life is good. On the other days it's stay away my stomach is the size of a 5 month pregnant women. I'm glad those are few and fare between.

Kris

Hi moussyluv, not to say you have this BUT my Daughter at age 4 had E-coli. It presented her with painful stomach cramps and diahria (sp?) then after a full night of every 15 minutes of diahria the blood in her stool came. There was nothing but blood. She was hospitalized for 30 days and had dialisis for 3 of those weeks. I'm not trying to scare you but I would definatly check it out. The only way the can diagnose e-coli is thru a stool sample which in MN it took 1 week.

I'm glad she is feeling better. My 6 year old daughter stopped eating last year because it hurt her tummy. She lost 4 lbs in 2 weeks. we took her in and they sent her to a gastro specialist. They scoped her and came to the conclusion she had gastritis. Now that I'm diagnosed with celiac I brought her back into a regular Dr and he suggested putting her back on prilosec for 3 months to see what happens. I'm now going to make an appointment with the gasto specialists to see if she really has celiac or not. My gut says she does. My middle daughter is skinny like yours and has an appetite of a man. Her bowels are crazy hugh and 9 times out of 10 plugges our toilets. Sorry if thats gross to some. I read that bulky stool can be a sign as well, so I asked my Dr and he suggested putting her on stool softners. It's not working. She had e-coli when she was 4 so going to the hospital for a procedure is out of the question as far as she is concerned. Does anyone think my Middle child should be tested as well?