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BeckyW

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About BeckyW

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  1. There seems to be very few doctors out there who understand Celiac.  And I have never found one in the Southeast region of Michigan.  I would love to have a doctor who understands what is happening and the challenges.  Any one know of such a doctor?  Not the one who has to have a biopsy as proof but one who will actually listen to the way I react.  I know, I am prolly asking for a miracle!


  2. Cyclinglady - I have an appt with a new Endocrinologist on June 9th.  For now my family doctor is treating my thyroid.  No one really knows how to treat it. When it is hyper they lower the synthryoid, when it is hypo they raise it.  I can't seem to find a dose that maintains.  My body is like swinging all over the place.  I am moody, shedding hair, weight loss then gain, and the symptoms just go on and on.  I just don't know how to regulate it and neither do the doctors.  It is really making life difficult.


  3. Thank you all for your help! I have heard the Miralax is a good product and may have to have that on hand.  

     

    cap6 where do you buy the Smooth Move Tea?  Is it available at a grocery store or health food store?

     

    These are all excellent ideas so thank you!  Unfortunately, we have to have this conversation!


  4. I have Celiac disease and 2 other auto immune diseases.  I never eat gluten but my intestines still have absorption issues.  I have trouble sometimes where my body absorbs meds too much and other times it doesn't absorb enough.  Making my TSH level and calcium levels fluctuate.  Does anyone else have issues with this?

     

    Also, has anyone found anything to take to keep the intestines "calm".  Something to keep it healthy feeling and not feeling like you always have a stomach ache?

     

    Thank you for any help you can provide.  This is a constant battle.


  5. Hi,

    I'm 23 years old and was recently diagnosed with celiac and a host of other food allergies and health conditions. I was wondering if there is anyone in the Bay Area, California who can relate and would like to be buddies (email, text, chat online, face-to-face). You don't even really have to be from the Bay Area, I just would like someone to talk to (that's what's so great about the internet). Right now I only have my dad (who is sensitive to gluten but no other food allergies) and my boyfriend (who has no food allergies) and they try to help as much as they can but it's not the same as having someone who can directly relate and who will understand my story. Otherwise, I have no other friends because I've been so sick for the past 5 years until they finally figured out it was food allergies a couple months ago. I'd love having more friends I can talk to and we could support each other Admittingly, I need a lot of support right now, I'm really struggling with accepting that this is my new life.

    I don't live in the CA area but I totally understand how you feel. Besides not being able to eat gluten, I have multiple food issues. The main ones are soy and dairy. I also can't eat alot of vegetables or fruits. It sure can be frustrating and helps to have someone to talk to about all this. I am always willing to talk to you!!


  6. I have spent hours calling pharmaceutical companies and have not found an oral contraceptive without lactose in them. The Demulen is no longer made and that was the only one available without lactose. Most of the estrogen is soy based also. Thanks for everyone who responded!

    Does anyone know of any natural supplements that would help with the discomfort of monthly cycles?

    Thanks again for all your help!


  7. I could really use some help! Doctors just aren't providing much help so I thought I would turn to this message board where I learn more.

    I had my thyroid removed in Feb., 2006. I was diagnosed with Celiacs in Aug., 2006. I am having an absorption problem with calcuim and vitamin D. My body is not absorping either very well and I am having every symptom you can have from the low levels. I have taken different types of calcium - citrate and carbonate. The doctors want me to take the carbonate but that seems to upset my stomach. I am also on vitamin D prescription strength, over the counter vitamin d, magnesium and zinc. I currently take 1,500 or more of calcium, 3 prescription strenght vitamin D, 2 over the counter vit. D, mag and zinc along with the synthyroid.

    One day my levels will be fine and then all the sudden they drop and I can't figure out why.

    Can you someone please give me some information on this or any ideas what I can do for this? I am so frustrated as I feel horrible and the doctors are not helping at all.

    Thank you!

    Becky


  8. Magnesium seems to be really good for constipation. I was wondering though if you can get too much and have side effects from it? I was reading on line that some side effects are being tired and feeling fatigued. I am referring to the liquid magnesium citrate. Does any one have any guidelines on this?

    What about prunes or prune juice? Is this as effective as magnesium?

    Thanks for any help you can give!!!


  9. Oh wow, if you could get the recipe, you'd be my hero! The snow is great - we got another 8 inches or so today alone! It's wonderful and so peaceful looking outside. Plus, I don't have to go out in the snow. Tomorrow I am going to make chicken soup and try gluten free matzah balls! I'll have to plan a work trip out to Troy area sometime this year though to get some good eats!

    Can you share your recipe for gluten free matzah balls in the chicken soup? I have never had them and they sound good.

    Also, can you share some of your snow with us Michiganers?!

    Thanks,

    Becky


  10. Hello, thanks for your responses. My daughter is just "shedding" hair, more than usual. There are no bald patches or anything. Her hair is just thinner than it used to be. All her hair products are gluten and soy free.

    I have considered the thyroid issues as I have them and had to have my thyroid removed. I guess its time to try a new doctor and get another opinion. We do go to a holistic naturalpath doctor who is working on her hormones and says she has anemic symptoms.

    The more I am reading I am thinking it could be the lack of nutrients. She takes gluten free vitamins and supplements but it is so hard to get her to eat enough.

    Thanks for all your help and support!